Endometriosis Stories

Our videos and stories from patients share the experiences of the endometriosis community from endo warriors and partners to friends and family. Each story is unique and all stories deserve to be shared. Once voice at a time we can create a movement that lessens the stigma surrounding this disease. Thank you to the brave participants who have spoken up and continue to break the silence! If you want to share your story click here.

Stacey and Leah's Story: <br> Heartbreak and Hope With Endometriosis

Stacey and Leah's Story: Heartbreak and Hope With Endometriosis

It's heartbreaking because sometimes I'll wake up in the middle of the night when Leah is on her period, and I'll be like, where is she? She'll just be laying in the bathtub

A Thousand Fractures: A Short Story

A Thousand Fractures: A Short Story

My prayers weren’t so much to save my own life, but for my ER caregiver not to accuse me of being an addict.

Leaving Limbo: Our Journey With Unexplained Infertility

Leaving Limbo: Our Journey With Unexplained Infertility

My husband and I took a trip to Japan in the spring of 2016, something we always talked about doing. I had hoped to conceive a “souvenir” while we were there, but no such luck.

Ain't I A Woman? I Will Not Be Defined By Infertilty

Ain't I A Woman? I Will Not Be Defined By Infertilty

After being diagnosed with Stage IV Endometriosis, Author ShaVaugn Morris wonders: Is my womanhood defined by my ability to produce another human, despite the fact I give birth daily?

Flow: The Story of How I Came to Terms <br> With Unwanted Childlessness

Flow: The Story of how I Came to Terms With Unwanted Childlessness

Belgian author Lief Achten reveals her lifelong struggle with infertility and shares an exclusive excerpt from her novel, Flow.

Dear Younger Me: What I Wish I’d Known About Endometriosis 10 Years Ago

Dear Younger Me: What I Wish I’d Known About Endometriosis 10 Years Ago

So there I was: 27. On the road to divorce. Reproductively challenged. Jobless. What would I say to that girl if I could?

 Lena Dunham Shares Her Endometriosis Experience in Touching Video

Lena Dunham Shares Her Endometriosis Experience in Touching Video

Lena Dunham talks about her lifelong battle with endometriosis and how she's feeling after her hysterectomy

Catharsis Through Creativity: <br />The Story of the Album That Saved My Life

Catharsis Through Creativity:
The Story of the Album That Saved My Life

The catharsis from shaping and capturing these new stories helped me move forward.

Hearing the Endo Warrior’s Cry: <br />Empowering the Voice of Your Pain

Hearing the Endo Warrior’s Cry:
Empowering the Voice of Your Pain

"Even in the midst of a “bad day” as I called these moments, I was ready to push through. A part of me, the part that is socialized by our “suck it up” and “don’t be a baby” society, said I was just being weak...stop being so…

Endometriosis Stories -  Diana Falzone

Diana Falzone's Story: "If You Don’t Have the Knowledge, You Don’t Have the Know How"

TV personality and reporter Diana Falzone shares her experience of endometriosis, from being asymptomatic to experiencing crippling pain, and how she navigated the healthcare system from one moment to the next.

Stronger Than My Struggle: My Battle with Hormones and Beyond

Stronger Than My Struggle: My Battle with Hormones and Beyond

Things were different now. I had been removed from my own cave and shown the light- how could I be expected to return to the darkness? My experience with Lupron had opened my eyes. I wasn’t just crazy or overly emotional: it was my hormones…

A Father’s Perspective on Endometriosis

A Father’s Perspective on Endometriosis

The word endometriosis had never been a part of my vocabulary; I had never heard of it as a diagnosis nor as a possible affliction neither within my own family nor in the course of normal conversation. When my adolescent daughter was experiencing…