Endometriosis Stories

Our videos share the experiences of the endometriosis community from endo warriors and partners to friends and family. Each story is unique and all stories deserve to be shared. Once voice at a time we can create a movement that lessens the stigma surrounding this disease. Thank you to the brave participants who have spoken up and continue to break the silence! If you want to share your story click here.

Dear Younger Me: What I Wish I’d Known About Endometriosis 10 Years Ago

Dear Younger Me: What I Wish I’d Known About Endometriosis 10 Years Ago

So there I was: 27. On the road to divorce. Reproductively challenged. Jobless. What would I say to that girl if I could?

 Lena Dunham Shares Her Endometriosis Experience in Touching Video

Lena Dunham Shares Her Endometriosis Experience in Touching Video

Lena Dunham talks about her lifelong battle with endometriosis and how she's feeling after her hysterectomy

Catharsis Through Creativity: <br />The Story of the Album That Saved My Life

Catharsis Through Creativity:
The Story of the Album That Saved My Life

The catharsis from shaping and capturing these new stories helped me move forward.

Hearing the Endo Warrior’s Cry: <br />Empowering the Voice of Your Pain

Hearing the Endo Warrior’s Cry:
Empowering the Voice of Your Pain

"Even in the midst of a “bad day” as I called these moments, I was ready to push through. A part of me, the part that is socialized by our “suck it up” and “don’t be a baby” society, said I was just being weak...stop being so…

Endometriosis Stories -  Diana Falzone

Diana Falzone's Story: "If You Don’t Have the Knowledge, You Don’t Have the Know How"

TV personality and reporter Diana Falzone shares her experience of endometriosis, from being asymptomatic to experiencing crippling pain, and how she navigated the healthcare system from one moment to the next.

Stronger Than My Struggle: My Battle with Hormones and Beyond

Stronger Than My Struggle: My Battle with Hormones and Beyond

Things were different now. I had been removed from my own cave and shown the light- how could I be expected to return to the darkness? My experience with Lupron had opened my eyes. I wasn’t just crazy or overly emotional: it was my hormones…

A Father’s Perspective on Endometriosis

A Father’s Perspective on Endometriosis

The word endometriosis had never been a part of my vocabulary; I had never heard of it as a diagnosis nor as a possible affliction neither within my own family nor in the course of normal conversation. When my adolescent daughter was experiencing…