Our mission is to increase endometriosis awareness, fund landmark research, provide advocacy and support for patients, and educate the public and medical community.
Founders: Padma Lakshmi, Tamer Seckin, MD
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Advocacy

Endometriosis Foundation of america Advocacy

EndoFound's UpEndo Coalition is a powerful voice for everyone touched by endometriosis. EndoFound's advocacy team is committed to speaking up about the policy needs of the endometriosis community. It plays a critical role in helping to secure federal funding for endometriosis research and education. EndoFound is the voice on Capitol Hill, in statehouses around the country, and with federal agencies for those who have endometriosis. 

  • In 2019, EndoFound's two-year advocacy initiative with New York State resulted in the first law in the United States to make materials on menstrual health and endometriosis available to school districts and medical practitioners statewide. 

  • In 2020, EndoFound and the bipartisan Congressional Endometriosis Caucus worked to raise awareness of endometriosis, resulting in a historic doubling of funding for endometriosis research at the National Institute of Health (NIH). 

  • In 2022, EndoFound launched the UpEndo Coalition to educate the public and Congress about the health implications of endometriosis and ensure policymakers are advancing research funding and other policy priorities. 

Endometriosis Foundation of america Advocacy

Learn about our policy positions. These policies help protect patients, educate the general public and ensure that every patient receives the same standard of care.

Join our UpEndo Coalition

 

 

 

 


EndoFound Virtual UpEndo Congressional Briefing

Tuesday, May 17, 12 pm - 1 pm EDT

On Tuesday, May 17 join us for our EndoFound Virtual UpEndo Congressional Briefing and Hill Day with our co-founders, Padma Lakshmi and Tamer Seckin, MD, Corinne Foxx, and other special guests.   It will be broadcast on EndoFound’s YoutubeTV channel EndoTV. We ask that you support this effort by reaching out to your elected officials. Here is a link to the UpEndo 2022 Citizen Advocacy Congressional Day of Action Guide to help you. 


 Virtual UpEndo Citizen Advocacy Coalition Briefing

On Wednesday, May 11, 2022, EndoFound hosted the first Virtual UpEndo Citizen Advocacy Coalition Briefing with EndoFound Ambassador and former Congresswoman Abby Finkenauer and EndoFound Ambassador and EndoTV host Diana Falzone. Thank you to all who attended.

The coalition pursues high-visibility opportunities, including Congressional hearings, federal agency and White House initiatives, and media opportunities and events. In addition, the coalition focuses explicitly on Congressional committees that have jurisdiction over issues of interest to the coalition, such as the House and Senate Health Appropriations Subcommittees and authorizing committees.

 To join the UpEndo Coalition and participate in this meeting, please contact Jeanne Rebillard, Director of Communications & Government Relations, at jeanne@endofound.org.