The ROSE Study
Purpose: A team of committed Feinstein Institute researchers and professionals are conducting the Research OutSmarts Endometriosis (ROSE) study. The goal of the ROSE study is to investigate the causes of endometriosis and bring improved diagnostics and treatments for women with endometriosis.
Time Commitment for Participant: Variable. Approximately 2-4hrs (telephonic screening and online paperwork)
Principal Investigator Contact and Institution: Feinstein Institute for Medical Research 516-562-3636
Citizen Endo
Purpose: The goal of the Citizen Endo project is to bridge the gap between what endometriosis patients actually experience and how doctors characterize the disease. As such, we aim to phenotype endometriosis according to patient's reports of their disease. This will help identify different sub-types of endometriosis. Researchers have already found that there is more than one phenotype of endometriosis by looking at histological samples from excised lesions, but these phenotypes do no correlate with disease stage or symptom severity. Through our app Phendo, a research and self-management smartphone app for endometriosis patients to self-track their symptoms, we collect data on how patients experience the disease day to day. With this data we can begin to identify similar groups of patients based on shared signs and symptoms. Having this information will ultimately enable better understanding of the disease and identifying more precise treatment and self-management strategies for women with endometriosis. More information can be found here.
Phendo App is available for both IOS and Android:
iOS: https://itunes.apple.com/us/ap
Contact: citizenendo@columbia.edu, Department of Biomedical Informatics, Columbia University Medical Center.
Reconfiguring Visions of Inevitable Maternity: Incorporating Infertility into Understandings of Womanhood
Purpose: Understanding the way in which heteronormative expectations of womanhood affect infertile women’s understandings of self, agency, and gender identity in the United States.
Eligibility and Participation: Participation involves an informal phone or Skype interview regarding experience with infertility or childlessness, hopes and concerns, reflections on cultural attitudes about women and gender in America, and perhaps, other related topics. After the interview, participants will be invited, but are not mandated, to continue study involvement through interactions with the researcher in activities such as a doctor appointment. Eligible women are Americans who are infertile, have had a hysterectomy, or face a prognosis of infertility.
Contact: Sasha Martin, Brandeis University
707-738-1453, slmartin@brandeis.edu
