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Research Participation Opportunities

Research volunteers are critical to advancing our understanding of endometriosis. Individuals with endometriosis and family members may be eligible to participate in research studies. EndoFound lists current opportunities to participate in studies that we have been informed of.


The ROSE Study

Purpose: A team of committed Feinstein Institute researchers and professionals are conducting the Research OutSmarts Endometriosis (ROSE) study. The goal of the ROSE study is to investigate the causes of endometriosis and bring improved diagnostics and treatments for women with endometriosis.

Time Commitment for Participant: Variable. Approximately 2-4hrs (telephonic screening and online paperwork)

Principal Investigator Contact and Institution: Feinstein Institute for Medical Research 516-562-3636


Citizen Endo

Purpose: The goal of the Citizen Endo project is to bridge the gap between what endometriosis patients actually experience and how doctors characterize the disease. As such, we aim to phenotype endometriosis according to patient's reports of their disease. This will help identify different sub-types of endometriosis. Researchers have already found that there is more than one phenotype of endometriosis by looking at histological samples from excised lesions, but these phenotypes do no correlate with disease stage or symptom severity. Through our app Phendo, a research and self-management smartphone app for endometriosis patients to self-track their symptoms, we collect data on how patients experience the disease day to day. With this data we can begin to identify similar groups of patients based on shared signs and symptoms.  Having this information will ultimately enable better understanding of the disease and identifying more precise treatment and self-management strategies for women with endometriosis. More information can be found here.

Department of Biomedical Informatics
Columbia University Medical Center
 

Disclaimer:

Information on EndoFound.org is provided by study sponsors and investigators, and they are responsible for ensuring that the studies follow all applicable laws and regulations. Choosing to participate in a study is an important personal decision. Before you participate in a study, know the risks and potential benefits and discuss all options with your health care provider and other trusted advisors. 

For more information about using the information on EndoFound.org please see Privacy Policy and Terms of Use.

 

The ROSE Study (Research Outsmarts Endometriosis)

The ROSE Study (Research Outsmarts Endometriosis)

About the Study:  If you’re a woman living with endometriosis, or you suspect you might have it and are scheduled to have surgical treatment, you may be eligible to participate in the ROSE Study. Your immediate family (siblings,…