Effective Date: [June 9, 2026]
The Endometriosis Foundation of America, Inc. ("EndoFound," "we," "our," or "us") is committed to protecting the privacy of our donors, supporters, patients, volunteers, event participants, website visitors, and others who interact with us online or offline.
EndoFound is a New York not-for-profit corporation and charitable organization that conducts fundraising and educational activities throughout the United States. This Privacy Policy explains how we collect, use, disclose, and safeguard personal information obtained through our website, events, fundraising activities, educational programs, and other interactions with EndoFound.
INFORMATION WE COLLECT
We may collect information that you voluntarily provide to us, including:
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Name
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Mailing address
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Email address
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Telephone number
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Donation information
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Event registration information
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Volunteer information
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Employment application information
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Communications submitted through our website
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Any other information you choose to provide
When you visit our website, we may also automatically collect certain information, including:
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IP address
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Browser type
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Device information
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Pages viewed
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Referring websites
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Usage data
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Cookie and analytics information
DONATIONS
When you make a donation to EndoFound, we collect information necessary to process and acknowledge your contribution.
Payment card information is processed by secure third-party payment processors and is generally not stored by EndoFound. We may retain information regarding donation amounts, dates, campaign participation, and contact information for tax, accounting, stewardship, and legal compliance purposes.
DONOR PRIVACY
EndoFound respects the privacy of its donors.
We do not sell, rent, trade, or exchange donor personal information with other organizations for their marketing purposes.
Donor information may be shared with service providers who assist us in processing donations, managing donor records, conducting fundraising activities, providing communications, or performing services on our behalf, subject to appropriate confidentiality and security obligations.
HOW WE USE INFORMATION
We may use personal information to:
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Process donations and transactions
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Send donation acknowledgments and tax receipts
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Respond to inquiries
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Register participants for programs and events
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Provide educational materials and updates
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Communicate about fundraising initiatives
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Improve our website and services
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Comply with legal obligations
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Protect the security and integrity of our systems
COMMUNICATIONS
Individuals who provide contact information may receive communications regarding EndoFound's programs, advocacy initiatives, educational activities, events, and fundraising campaigns.
Recipients may opt out of marketing emails at any time by using the unsubscribe link included in the communication or by contacting us directly.
COOKIES AND ANALYTICS
Our website may use cookies and similar technologies to improve functionality, analyze website traffic, and enhance user experience.
We may use third-party analytics providers to help us understand how visitors interact with our website.
Users may adjust browser settings to manage cookie preferences; however, some website features may not function properly if cookies are disabled.
THIRD-PARTY SERVICE PROVIDERS
EndoFound may engage third-party service providers to support operations, including:
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Donation processing platforms
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Event registration providers
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Email communication services
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Website hosting providers
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Data management systems
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Analytics providers
These providers are authorized to use personal information only as necessary to perform services on our behalf.
DATA SECURITY
We maintain administrative, technical, and physical safeguards designed to protect personal information from unauthorized access, disclosure, alteration, or destruction.
No method of transmission or storage is completely secure, and we cannot guarantee absolute security.
DATA RETENTION
We retain personal information for as long as necessary to fulfill the purposes described in this Privacy Policy, comply with legal obligations, maintain business and donor records, resolve disputes, and enforce our agreements.
YOUR PRIVACY RIGHTS
Depending on your state of residence and applicable law, you may have rights regarding your personal information, including rights to request access to, correction of, or deletion of certain information.
Requests may be submitted using the contact information below.
CHILDREN'S PRIVACY
Our website is not directed to children under the age of 13, and we do not knowingly collect personal information from children through the website without appropriate consent.
MULTI-STATE FUNDRAISING
EndoFound conducts charitable solicitation activities in multiple jurisdictions throughout the United States and complies with applicable charitable registration and fundraising requirements where required by law.
STATE DISCLOSURES
Certain states may require additional disclosures regarding charitable solicitations. Any state-specific charitable solicitation notices required by law are incorporated into this Privacy Policy and/or displayed elsewhere on the website.
CHANGES TO THIS POLICY
We may update this Privacy Policy from time to time. Any revisions will be posted on this page with an updated Effective Date.
CONTACT US
Endometriosis Foundation of America, Inc.
872 Fifth Avenue, New York, NY 10065
Info@endofound.org
212-988-4160
For questions regarding this Privacy Policy or our privacy practices, please contact us using the information above.