Our mission is to increase endometriosis awareness, fund landmark research, provide advocacy and support for patients, and educate the public and medical community.
Founders: Padma Lakshmi, Tamer Seckin, MD
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William  Croyle

William Croyle

William Croyle is a former writer with the Cincinnati Enquirer. He is the author of 11 books, including co-author with Tamer Seckin, MD, of The Doctor Will See You Now: Recognizing and Treating Endometriosis and EndoMEtriosis: A Guide for Girls.

Dr. Dan Martin to Represent EndoFound at the 2024 ACOG Congressional Conference

Dr. Dan Martin to Represent EndoFound at the 2024 ACOG Congressional Conference

Dr. Dan Martin, EndoFound’s scientific and medical director, will attend the American College of Obstetricians and Gynecologists 42nd annual Congressional Leadership Conference from March 3-5 in Washington, D.C. Dr. Martin’s attendance…

Lauren Kornegay Has Filled a Void with Her Nonprofit Endo Black, and Will Share Her Story on Patient Day

Lauren Kornegay Has Filled a Void with Her Nonprofit Endo Black, and Will Share Her Story on Patient Day

Lauren Kornegay’s late mother left her daughter with profound words of wisdom. “She always said, ‘If there’s a void, you fill it, and if you want something done, you do it yourself,’” Kornegay said. “That’s…

Long Island Student Bringing Endometriosis Education to Her High School’s Health Curriculum

Long Island Student Bringing Endometriosis Education to Her High School’s Health Curriculum

Sophia Tarasenko had never heard of endometriosis until she read an article about it in Science News magazine 16 months ago. Since then, she’s conducted scientific research on it, has made it the topic of her entry in a regional science…

Mother Who Had Seven Miscarriages to Speak at Patient Day About Explaining Endometriosis to Her Daughters

Mother Who Had Seven Miscarriages to Speak at Patient Day About Explaining Endometriosis to Her Daughters

Ciji Castro has three young daughters. She’s also suffered through seven miscarriages due to endometriosis, which took two decades to diagnose. On March 2 and 3 in New York City, she will speak at the 15th Annual Endometriosis of America…

Former OBGYN, Now a Clinical Researcher and Educator, to Unlock the Mystery of Genes at EndoFound Patient Day

Former OBGYN, Now a Clinical Researcher and Educator, to Unlock the Mystery of Genes at EndoFound Patient Day

How old we are does not necessarily reflect the age of our body’s cells. While we cannot control the former, the latter—impacted by our environments, lifestyles, and experiences—is something we can control to an extent to…

Mental Health Counselor to Share Her Work and Endometriosis Journey at Patient Day

Mental Health Counselor to Share Her Work and Endometriosis Journey at Patient Day

Many endometriosis patients find the strength and resilience during their journey to turn their pain into something positive. Shakira O’Garro has taken that to the extreme, transforming her pain into a career.  O’Garro, a licensed…

EndoFound Receives 61 Applications for $250,000 in Grants to Be Awarded in March

EndoFound Receives 61 Applications for $250,000 in Grants to Be Awarded in March

Katie Burns received a grant from EndoFound in 2017 for $25,000 over two years. She used that as seed money to develop data to apply for larger grants to study how the environmental toxicant phthalate, a chemical found in plastics and personal…

All 51 Team EndoStrong Runners Finish NYC Marathon, Collectively Raise more than $200,000

All 51 Team EndoStrong Runners Finish NYC Marathon, Collectively Raise more than $200,000

Dana Sellitto suffered from endometriosis symptoms for two decades before finally being diagnosed in June. She had surgery in July, and just 14 weeks later, on Nov. 5, she ran the New York City Marathon, her first full marathon. It took her…

EndoFound ambassador Olivia Culpo appears on the prestigious cover of NIH MedlinePlus Magazine

EndoFound ambassador Olivia Culpo appears on the prestigious cover of NIH MedlinePlus Magazine

“It was truly an honor when they asked me to be on the cover and share my story,” Culpo said. “I know this magazine reaches a lot of people who are looking for answers to their health issues, and I’ll do whatever it…

Jeanne St. Claire Shares Her Endometriosis Story Weeks After Surgery and Five Years After It Nearly Killed Her

Jeanne St. Claire Shares Her Endometriosis Story Weeks After Surgery and Five Years After It Nearly Killed Her

  Jeanne St. Claire asked the writer of this story almost as many questions about endometriosis as he’d asked her. She also ordered Dr. Tamer Seckin’s first book, The Doctor Will See You Now, during the interview so it would…

Nearly Thirty Years after Having a Hysterectomy, Septuagenarian Is Sharing Her Endometriosis Story - Gail Albritton’s Endo Story

Nearly Thirty Years after Having a Hysterectomy, Septuagenarian Is Sharing Her Endometriosis Story - Gail Albritton’s Endo Story

Gail Albritton of El Dorado, Arkansas, began feeling significant pain during her periods as a teenager 60 years ago. With endometriosis awareness nearly nonexistent, she continued to suffer from the symptom every month for more than three decades…

Captain of Team EndoStrong in Awe of Runners’ Efforts as NYC Marathon Approaches

Captain of Team EndoStrong in Awe of Runners’ Efforts as NYC Marathon Approaches

When Clare Murphy agreed in the spring to captain EndoFound’s Team EndoStrong for the New York City Marathon on Nov. 5, she didn’t know what to expect in her new role. Today, she struggles to find the words to describe what she’s…

Usually Private About Her Endometriosis Story, Lindsay Jankovitz Opens Up Before Marathon to Help Others

Usually Private About Her Endometriosis Story, Lindsay Jankovitz Opens Up Before Marathon to Help Others

Nobody wants to talk about the most brutal time in their life, including Lindsay Jankovitz. For her, that was in high school nearly 20 years ago when endometriosis began taking over her body. But Jankovitz has bravely been sharing her story…

After Five Surgeries for Endometriosis and Adenomyosis, US Army Veteran to Run in First New York City Marathon

After Five Surgeries for Endometriosis and Adenomyosis, US Army Veteran to Run in First New York City Marathon

Nicole Allen graduated from West Point, achieved the rank of major, and ran on the Army Ten Miler team at Fort Hood (now Fort Cavazos) in Texas. She did it all while battling endometriosis and adenomyosis. Now, at 34, Allen is about to run…

Unveiling the Journey: Battling Medical Dismissal and Finding Hope with Endometriosis - Aubrey Svensson’s Endo Story

Unveiling the Journey: Battling Medical Dismissal and Finding Hope with Endometriosis - Aubrey Svensson’s Endo Story

*trigger warning for references to medical trauma*   June 26, 2023, will forever be the day that changed my life. My name is Aubrey Svensson, and I am an incoming M1 medical student. I graduated with a degree in psychology from The Ohio…

University of Alabama Student with Endometriosis Running for Team EndoStrong in the New York City Marathon

University of Alabama Student with Endometriosis Running for Team EndoStrong in the New York City Marathon

Mary Groninger has never run a marathon. She’d also never heard of EndoFound until a Google search last spring. Now she’s training for the world’s largest race as a member of Team EndoStrong. “It’s been a whirlwind…

A Miracle Baby Develops Adenomyosis: Jennifer Hoffmann’s Quest for Strength and Peace

A Miracle Baby Develops Adenomyosis: Jennifer Hoffmann’s Quest for Strength and Peace

I was eight years old the first time I rode a horse. It was also the first time I fell off, as a nearby car backfired and scared the horse—but I got back on and never stopped riding. Even when the indoor riding arena collapsed under the…

Ironman Triathlon Athlete Running for Team EndoFound in New York City Marathon

Ironman Triathlon Athlete Running for Team EndoFound in New York City Marathon

Dan O’Brien has just about done it all when it comes to running, including half marathons, full marathons, and Ironman triathlons. But something the 26-year-old hedge fund trader from New York has never done is tie his running to a charity,…

Swedish Rocker with Endometriosis to Play in Asbury Park to Benefit EndoFound

Swedish Rocker with Endometriosis to Play in Asbury Park to Benefit EndoFound

Asbury Park is where Bruce Springsteen started, and Alexandra Jardvall has aspired to play. The 48-year-old Swedish-born singer and songwriter has been performing since she was 12, and now her wish is about to come true.  “My dad…

Running Her First Marathon Since Diagnosed with Stage IV Endometriosis, Grace Kunkel Aims for Personal Record

Running Her First Marathon Since Diagnosed with Stage IV Endometriosis, Grace Kunkel Aims for Personal Record

Grace Kunkel is shooting for a time of 3:45 in her first New York City Marathon on Nov. 5. That would eclipse her personal record by eight minutes. But for Kunkel, the race is more about the journey than the destination. “I love running…

Two Milwaukee Artists Offering Apparel with Floral Uterus Design Through Aug. 9 to Benefit EndoFound

Two Milwaukee Artists Offering Apparel with Floral Uterus Design Through Aug. 9 to Benefit EndoFound

Mara Natkin and Gloria Ramirez don’t have endometriosis, but when the owners of Artery Ink in Milwaukee learned about it, they felt compelled to do something to bring awareness to the disease that affects millions.  “It’s…

Avery St. Sauveur Pushing Through Endo Pain to Compete in New York City Marathon: Avery St. Sauveur’s Endo Story

Avery St. Sauveur Pushing Through Endo Pain to Compete in New York City Marathon: Avery St. Sauveur’s Endo Story

Avery St. Sauveur has been in pain from endometriosis for most of the last decade, but that’s not stopping her from training for her first full marathon—the world’s largest on Nov. 5. “While the New York City Marathon…

Fashion Designer, Entrepreneur, and Social Media Influencer Making Endometriosis Awareness a Priority: Autumn Weimann’s Endo Story

Fashion Designer, Entrepreneur, and Social Media Influencer Making Endometriosis Awareness a Priority: Autumn Weimann’s Endo Story

Every woman with endometriosis has a unique story about her journey with the disease. Autumn Weimann’s may be one of the most unusual. The 31-year-old Orange County, Calif., resident started feeling symptoms in high school one day each…

Four Months Ahead of the TCS NYC Marathon, Team EndoStrong Is Poised for Record Numbers

Four Months Ahead of the TCS NYC Marathon, Team EndoStrong Is Poised for Record Numbers

Team EndoStrong raised nearly $170,000 for EndoFound last year by running in the TCS New York City Marathon. Clare Murphy, who is running for and organizing the team for this year’s marathon on Nov. 5, expects to blow away that number.…

After Years of Being Ignored and Eight Miscarriages, Bernadette Higgins Continues the Fight Against Endometriosis: Bernadette Higgins' Endo Story

After Years of Being Ignored and Eight Miscarriages, Bernadette Higgins Continues the Fight Against Endometriosis: Bernadette Higgins' Endo Story

Bernadette Higgins was in middle school the day she got her first period. She was 12 years old. “I was doubled over in pain and in the nurse’s office the second it happened,” Higgins said.  She was sent home early by…

21-Year-Old Ivy League Student with Stage IV Endometriosis Is Epitome of Resilience: Simran Datta's Endo Story

21-Year-Old Ivy League Student with Stage IV Endometriosis Is Epitome of Resilience: Simran Datta's Endo Story

  Simran Datta was sitting in her AP Language Arts and Composition class one morning, engrossed in her writing assignment. Though she was menstruating that day and typically bled a lot, she wasn’t worried since she’d just changed…

Warriors II Album Release and New York City Concert Will Benefit EndoFound

Warriors II Album Release and New York City Concert Will Benefit EndoFound

Bernadette Higgins was 12 years old when she got her first period. It was the beginning of a nightmare. “I thought it was cool when I got my period because all the girls were getting them, but I knew something was wrong,” she said.…

EndoFound Partner Pushes for Menstrual Health Awareness and Change on Capitol Hill

EndoFound Partner Pushes for Menstrual Health Awareness and Change on Capitol Hill

Michela Bedard hears one consistent story in her work: those living in poverty need to decide what essential goods to buy each month, and menstrual products generally don’t make the cut because of priorities like food, heat, and electricity.…

Landmark Study on Endometriosis Genetics Validates What Many Patients Have Experienced

Landmark Study on Endometriosis Genetics Validates What Many Patients Have Experienced

The most extensive study ever conducted on endometriosis genetics has revealed a shared genetic basis for endometriosis and other types of pain, including migraine, back pain, and multisite pain. It also provides a clear distinction between…

Prominent Surgeon Leads Change of Diagnosis Codes for Endometriosis

Prominent Surgeon Leads Change of Diagnosis Codes for Endometriosis

Dr. Ted Lee, a longtime friend of EndoFound, approached the Centers for Disease Control in 2019 with a proposal to create more diagnosis codes for endometriosis. He expected it would be a long process involving extensive work, but it had to…

Awareness About Infertility Is Growing, but More Work Is Needed

Awareness About Infertility Is Growing, but More Work Is Needed

One in five women in the U.S. is infertile, defined by the Centers for Disease Control and Prevention as when a pregnancy does not occur after at least a year of unprotected sex. And one of the leading causes of infertility is endometriosis.…

Doctoral Candidate Seeks Endometriosis Patients for Novel Study on Stigma and Mental Health

Doctoral Candidate Seeks Endometriosis Patients for Novel Study on Stigma and Mental Health

Deniz Kocas is a clinical psychology Ph.D. student at The New School for Social Research in New York City. For the next 18 months, she will focus on her dissertation project—exploring the relationship between the stigma around endometriosis…

Drug Developer to Receive EndoFound’s Harry Reich Award

Drug Developer to Receive EndoFound’s Harry Reich Award

Stephen Palmer, Ph.D., who has dedicated more than 30 years to drug discovery and development, has been named one of EndoFound’s Harry Reich Award recipients. Palmer is an associate professor at Baylor College of Medicine and the chief…

Belgian Surgeon to Receive EndoFound’s Harry Reich Award

Belgian Surgeon to Receive EndoFound’s Harry Reich Award

Dr. Jacques Donnez, a highly decorated surgeon from Belgium, will receive EndoFound’s Harry Reich Award this weekend for his lifelong contributions to the healthcare of women with endometriosis. The foundation will present the award to…

Philadelphia ABC News Anchor to Co-Host 11th Annual Blossom Ball

Philadelphia ABC News Anchor to Co-Host 11th Annual Blossom Ball

Alicia Vitarelli has had three laparoscopic surgeries for endometriosis, her most recent one just eight weeks ago. Yet the anchor and reporter for 6abc Action News in Philadelphia will travel to Los Angeles next week to cover the Oscars, and…

Actress and Producer Corinne Foxx to be Honored at Blossom Ball on March 20

Actress and Producer Corinne Foxx to be Honored at Blossom Ball on March 20

Corinne Foxx began experiencing endometriosis symptoms with her first period at age 12. The pain peaked in 2018 when she was 24 and still had no diagnosis.  “It became so intense that I would keel over and pray that I would pass…

Distinguished NYC Attorney to Advise Endometriosis Patients of Their Rights

Distinguished NYC Attorney to Advise Endometriosis Patients of Their Rights

Laurie Berke-Weiss has been an attorney for four decades, primarily focusing on employment and labor issues. She’s never had a case involving endometriosis, but as she learns more about the disease, she understands what patients may be…

Author of Acclaimed Vagina Obscura to Speak at EndoFound’s Patient Day

Author of Acclaimed Vagina Obscura to Speak at EndoFound’s Patient Day

Rachel E. Gross says she was destined to be a nerd. Her father is a physicist. Her mother is a family medicine doctor. Her stepmom is a molecular biologist. While being a doctor or scientist wasn’t Gross’ calling, writing about…

Latia Lee Discusses Her Pregnancy Journey

Latia Lee Discusses Her Pregnancy Journey

Latia Lee started to try to get pregnant in July 2019. Nearly four years and three clinics later, she is due to have her first child in July. As Lee discusses in this episode of Let’s Talk Period on EndoTV with Diana Falzone, advocating…

EndoFound’s Global Patient Symposium to Welcome the Egg Whisperer

EndoFound’s Global Patient Symposium to Welcome the Egg Whisperer

A decade ago, one of Dr. Aimee Eyvazzedeh’s patients couldn’t get pregnant and was about to abandon the hope of growing her family. “I told her, ‘Don’t give up. I still think there’s a chance,’”…

Actress Lexie Stevenson Continues to Advocate for Endometriosis Awareness

Actress Lexie Stevenson Continues to Advocate for Endometriosis Awareness

Lexie Stevenson is the lead actress in a movie scheduled to air on Lifetime and Amazon Prime in a few months. Still untitled, the picture is based on The Tinder Swindler Netflix documentary. Producers cranked out the filming in three weeks…

Bindi Irwin recovering well following surgery at Seckin Endometriosis Center

Bindi Irwin recovering well following surgery at Seckin Endometriosis Center

Renowned conservationist and Australian television personality Bindi Irwin recently underwent surgery in New York City at the Seckin Endometriosis Center in Lenox Hill Hospital. She is the daughter of the late Steve Irwin, best known for his…

Lawyer Drafts Bill to Teach Texas Public School Students About Endometriosis

Lawyer Drafts Bill to Teach Texas Public School Students About Endometriosis

One of Olivia Lee’s life mottos is, “The more you know, the more you owe.”  Lee, a special education attorney with Disability Rights Texas, put that adage into action by drafting House Bill 1298 with Texas Rep. Harold…

Connecticut Legislator Continues Push for Endometriosis Awareness and Research

Connecticut Legislator Continues Push for Endometriosis Awareness and Research

Connecticut State Rep. Jillian Gilchrest has been a powerful advocate for endometriosis patients during her three years in office. In this brief but impactful Endo TV episode of Let’s Talk Period with host Diana Falzone, Rep. Gilchrest…

EndoFound’s Annual Patient Day Returns in Person

EndoFound’s Annual Patient Day Returns in Person

EndoFound worked diligently to stay on mission through COVID-19, including with the informative and popular Global Patient Symposium, commonly referred to as Patient Day. By switching to a virtual format in 2020, the event continued to provide…

EndoFound’s 14th Annual Scientific Conference Will Dissect Latest Endometriosis Discoveries

EndoFound’s 14th Annual Scientific Conference Will Dissect Latest Endometriosis Discoveries

Only four papers on endometriosis are cited from 1926 to 1929 in PubMed—a database of 35 million scientific abstracts and references managed by the U.S. National Library of Medicine. Among those, 32,698 include endometriosis.…

Esteemed Auctioneer Revved and Ready to Entertain at EndoFound’s 11th Annual Blossom Ball

Esteemed Auctioneer Revved and Ready to Entertain at EndoFound’s 11th Annual Blossom Ball

Harry Santa-Olalla has the charisma, presence, and passion of a traditional auctioneer, but he doesn’t prefer the term auctioneer. He says his job is to be the team captain, turning what is often a spectator sport—with most of the…

EndoFound’s New Director of Development Ready for the Challenge

EndoFound’s New Director of Development Ready for the Challenge

  Entering college, Jake Carlin knew he wanted to work in the nonprofit industry. He wasn’t sure in what capacity, but healthcare eventually rose to the top. “Being on the healthcare side was coincidental at first, but then…

EndoFound's New Scientific & Medical Director: Dr. Dan Martin

EndoFound's New Scientific & Medical Director: Dr. Dan Martin

When Dr. Dan Martin was 10 years old, his grandmother made him learn needlepoint. It wasn’t something many boys did in 1956, but she believed that the concentration and hand-to-eye coordination the craft required would lead her grandson…

Journalist Diana Falzone Begins New Role with EndoFound

Journalist Diana Falzone Begins New Role with EndoFound

Three years ago, after Diana Falzone’s second endometriosis surgery, she and her doctor had a profound conversation. It was a moment so powerful, they were both brought to tears. “He asked me to help him carry the torch to bring…