Endometriosis affects over one in ten women and those born with a uterus, or about 6.5 million people in the United States and over 190 million worldwide. Despite causing debilitating pain, infertility, and impacting every aspect of a patient’s life, the disease remains poorly understood, misdiagnosed, and massively underfunded. Limited research on endometriosis means limited treatment options, continued reliance on laparoscopic surgery for diagnosis, and millions of people forced to navigate their lives around debilitating symptoms.
You know more than anyone just how much change requires real action. And action requires the right tools.
That's why we're excited to introduce The Endometriosis Advocacy Toolkit for Legislative Change, a resource our community has been asking for, and one we are thrilled to finally put in your hands. Whether you're a patient navigating your own diagnosis, a caregiver fighting alongside a loved one, a healthcare professional seeking systemic change, or a passionate advocate ready to make your voice heard, EndoFound’s Advocacy Toolkit is for you. It brings together everything you need to engage lawmakers, educate your community, and push for the policies that endometriosis patients deserve.
Advocacy can feel overwhelming, especially when you're already managing the physical and emotional toll of this disease. This toolkit is designed to meet you where you are, breaking down the process of advocacy into clear, actionable steps so that anyone, regardless of legislative experience, can make a meaningful impact. Think of it as your companion in advocacy—a practical, approachable guide that walks you through every step, whether you're writing to your representatives for the first time or you're a seasoned advocate looking to sharpen your approach.
The endometriosis community has always been resilient, vocal, and determined. Now, we're giving that determination a blueprint. Together, we can drive the awareness, research funding, and legislative change that will transform the lives of endometriosis patients everywhere.
This Endometriosis Awareness Month, people are listening. There has never been a more powerful moment to raise our voices, take action, and show the world just how urgent this cause truly is. Dig in, find your footing, and know that every action you take—however small it may feel—is part of something much bigger.
We're in this together.
