Alexandra Henry is an educator, nonprofit professional, and doctoral student dedicated to advancing equity and supporting marginalized communities. As an endometriosis/adenomyosis, and rare disease patient and advocate, Al is passionate about raising awareness, challenging stigma, and supporting others navigating life with chronic illness.
For people who experience severe period pain, some of the hardest parts can be the uncertainty, isolation, and struggle to be believed. For Kate Downey and Kelsey DiLanzo, co-creators of CRAMPED, those experiences became the foundation for…
Even after spending nearly a week in the ICU, when I told doctors I thought I had thoracic endometriosis due to having recurrent pneumomediastinums (the presence of abnormal air in the chest cavity between the lungs) that only occurred during…
For most of my life, I thought my pain was normal—the kind of thing women are told to tough out: cramps, fatigue, the constant ache that others dismiss as being “in your head.” It took years (and more doctor visits than I…