Our mission is to increase endometriosis awareness, fund landmark research, provide advocacy and support for patients, and educate the public and medical community.
Founders: Padma Lakshmi, Tamer Seckin, MD
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Endofound Org

Endofound Org

The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

2023 United Airlines NYC Half Marathon

2023 United Airlines NYC Half Marathon

  The Endometriosis Foundation of America is officially an official charity partner with the United Airlines New York City Half Marathon. This year, we are thrilled to announce that we have a 5 spots for the half marathon! If you would…

Team EndoStrong Raises More Than $160,000 in NYC Marathon

Team EndoStrong Raises More Than $160,000 in NYC Marathon

By William Croyle Christian Guevara’s wife, Maddison, was diagnosed with stage four endometriosis last year after suffering for nearly a decade. Following surgery, Christian searched online for ways to get more involved in the endometriosis…

Endometriosis Patient and Family Physician Named Executive Director of EndoFound

Endometriosis Patient and Family Physician Named Executive Director of EndoFound

Endometriosis Patient and Family Physician Named Executive Director of EndoFound By William Croyle Dr. Tracey Haas had her first endometriosis surgery when she was 17 years old, though her doctor didn’t diagnose it then. Twenty-eight…

Conquering Endometriosis Becomes a Family Affair

Conquering Endometriosis Becomes a Family Affair

By William Croyle The Grobmans knew nothing about endometriosis until five years ago. Now, they are immersed in EndoFound by bringing awareness to the disease and raising money for a cure. Rachel Grobman, a patient of Dr. Tamer Seckin, has…

EndoFound’s Team EndoStrong for Sunday’s TCS New York City Marathon Already Making History

EndoFound’s Team EndoStrong for Sunday’s TCS New York City Marathon Already Making History

By William Croyle More than 50 runners for Team EndoStrong are on pace to raise over $150,000 for EndoFound in this Sunday’s TCS New York City Marathon. Both numbers are records for the organization, in its eighth year as a charity partner…

The Endometriosis Foundation of America Applauds Passage of New Jersey Legislation for Endometriosis Screening and Awareness Program

The Endometriosis Foundation of America Applauds Passage of New Jersey Legislation for Endometriosis Screening and Awareness Program

The Endometriosis Foundation of America, and its UpEndo Coalition, applaud passage of New Jersey General Assemblywoman Shanique Speight’s bill, A3212, to establish a Women’s Menstrual Health Screening Program and requirements to…

ENPOWR: Partner With ENPOWR Project

ENPOWR: Partner With ENPOWR Project

If you're interested in ENPOWR please sign up your company

Endometriosis: Defining It, Recognizing It, and Treating It

Endometriosis: Defining It, Recognizing It, and Treating It

What is endometriosis? Endometriosis is a menstruation disease.  It occurs when tissue similar to the interior lining of the uterus, or endometrium, mistakenly migrates and implants in areas outside the uterus, primarily in the pelvic…

TAMPAX® MAKES A DONATION TO THE ENDOMETRIOSIS FOUNDATION OF AMERICA

TAMPAX® MAKES A DONATION TO THE ENDOMETRIOSIS FOUNDATION OF AMERICA

New York, NY, September 22, 2022 – The Endometriosis Foundation of America (EndoFound) announced today that it had received a $100,000 donation from Procter and Gamble (P&G) brand Tampax® to expand EndoFound's education programs.…

UpEndo Coalition Secures Key Support & Funding for Endometriosis Research

UpEndo Coalition Secures Key Support & Funding for Endometriosis Research

Today, our UpEndo Coalition announced new supportive provisions and a funding directive for endometriosis research in the US House of Representatives and US Senate-developed appropriations bills. This includes “report language”…

Meet The 2022 TCS New York City Marathon Team

Meet The 2022 TCS New York City Marathon Team

The Endometriosis Foundation of America is officially entering its 8th year as an official charity partner with the TCS New York City Marathon. This year, we are thrilled to announce that we have a record 50+ runners in the marathon! The personal…

Finding the Strength to Ask for Help—Emotional & Financial Help: Lily Clayton Hansen's Endo Story

Finding the Strength to Ask for Help—Emotional & Financial Help: Lily Clayton Hansen's Endo Story

I have always been a very healthy person who gets sick about once every three years. As a writer, author, and actor, I always worked in the service industry while between writing gigs in order to make ends meet. I believe that being around…

An Inside Look into Infertility Care: Navigating Hidden Costs & Treatment

An Inside Look into Infertility Care: Navigating Hidden Costs & Treatment

Co-written by Stephanie Moss, a 3rd year medical studdent at Rush Medical School, and Dr. Ariela Marshall, a hematologist specializing in disorders of thrombosis and hemostasis in women.  One in eight women, one in four…

I’m Scared to Get Pregnant Because of Endometriosis: Kaley Martin's Endo Story

I’m Scared to Get Pregnant Because of Endometriosis: Kaley Martin's Endo Story

I feel guilty that I’m scared to get pregnant, and I live with the weight of this guilt every day. I was officially diagnosed with endometriosis in 2021, and since I’ve had three surgeries, my most recent one excision surgery in…

The Endometriosis Event of the Summer: Warriors, A Genre-Spanning Concert in NYC

The Endometriosis Event of the Summer: Warriors, A Genre-Spanning Concert in NYC

We’re thrilled to announce a special concert to fundraise for endometriosis at Nublu 151 in New York City on Thursday, July 21 at 7 pm. The concert celebrates the release of Warriors, a genre-spanning album featuring new music…

A Pharmacist Who First Found Answers Through An Online Networking Group: Kelly Jones' Endo Story

A Pharmacist Who First Found Answers Through An Online Networking Group: Kelly Jones' Endo Story

In May 2022, I received an official diagnosis of Stage 1 endometriosis. Finally an answer to my many years of pain and suffering that I experienced for nearly a week every month. After being blown off by my regular ob/gyn for two years, despite…

AAGL Launches Historic Update to ICD10 Diagnosis Codes for Endometriosis

AAGL Launches Historic Update to ICD10 Diagnosis Codes for Endometriosis

Historic news for the endometriosis community: AAGL has just announced a critical update to the International Classification of Disease (ICD) diagnosis codes for endometriosis, codes that had not been updated in more than 40 years. The update…

EndoFound Works with New Jersey Legislator to Prioritize Endometriosis & Menstrual Health

EndoFound Works with New Jersey Legislator to Prioritize Endometriosis & Menstrual Health

We're thrilled to be working with New Jersey Assemblywoman Shanique Speight (NJ- 29th Legislative District) to create awareness and support for her 2022 menstrual health bills focusing on early endometriosis education and intervention. New…

The Endometriosis Working Group in Connecticut, Spearheaded by Rep. Jillian Gilcrest

The Endometriosis Working Group in Connecticut, Spearheaded by Rep. Jillian Gilcrest

The Endometriosis Working Group, spearheaded by Rep. Jillian Gilcrest, has been prioritizing endometriosis in Connecticut for one year now. Most recently, the group held their first legislative session in May 2022. After meeting monthly and…

Interstitial Cystitis, Medical Gaslighting, and

Interstitial Cystitis, Medical Gaslighting, and "Hysteric" Women: Hannah George's Endo Story

In my long, painful road to discovering and treating my endometriosis, one of the pit stops was an interstitial cystitis (IC) diagnosis. Nicknamed the “evil twin” of endometriosis due to their frequent comorbidity, IC is characterized…

EndoFound in  Action

EndoFound in Action

  Endometriosis Research Funding Bill Passed In Congress New York Passes Historic Endometriosis Legislation Historic Menstrual Health & Endometriosis Legislation Signed Into Law Rep. Finkenauer Hailed Coast to Coast for Endometriosis…

UpEndo Who We are

UpEndo Who We are

WHO WE AREIn November of 2021, the Endometriosis Foundation of America (EndoFound) launched the UpEndo Coalition to serve as a collective voice providing an opportunity for coalition members to work together to raise awareness of endometriosis.…

Advocacy

Advocacy

EndoFound's UpEndo Coalition is a powerful voice for everyone touched by endometriosis. EndoFound's advocacy team is committed to speaking up about the policy needs of the endometriosis community. It plays a critical role in helping to secure…

New Jersey Assemblywoman Speight's Menstrual Health Package including Endometriosis

New Jersey Assemblywoman Speight's Menstrual Health Package including Endometriosis

Assemblywoman Speight: “END PERIOD POVERTY” Assemblywoman Shanique Speight, a proud representative of New Jersey’s 29th Legislative District, has dedicated her service to advocate for the needs of vulnerable populations and…

Learning to Believe Myself: Alexa Reilly's Endo Story

Learning to Believe Myself: Alexa Reilly's Endo Story

One day in September 2019, I laid down on my stomach as my physical therapist placed an ice pack on my lower back—a usual routine during my appointments for my back injury—but immediately I felt that something was different. The…

A Love Letter to a Partner with Endometriosis: Lucjan’s Story

A Love Letter to a Partner with Endometriosis: Lucjan’s Story

Trigger warning: The following piece contains discussions of content relating to suicide and self-harm. If you or someone you know is in need of crisis services, please call The Lifeline which provides 24/7, free and confidential…

EndoFound Marathon Form

EndoFound Marathon Form

Thank you for completing the registration.             

 Write to Your Rep to Support Critical Endometriosis Research & Funding!

Write to Your Rep to Support Critical Endometriosis Research & Funding!

We are excited to have the Congressional Endometriosis Caucus, led by Reps. Scott (GA), Williams (GA), Rice (NY), and Gonzalez-Colon (PR), circulating a “Dear Colleague” letter in the US House of Representatives asking their colleagues…

The Year That Marked My Life: Kimmy Cuthbert's Endo Story

The Year That Marked My Life: Kimmy Cuthbert's Endo Story

If you were to ask me whether there was a year that marked my life, I would reply, yes: 2018. How did I go from being a happy young woman to a woman who felt like a human pinball machine, being bounced from doctor to doctor? To tell you my…

These Heavy Rocks in My Womb Are Part of My Path: Anjali Soi's Endo Story

These Heavy Rocks in My Womb Are Part of My Path: Anjali Soi's Endo Story

I recently had my left ovary and fallopian tube removed via laparoscopy. They were frozen to the left of my pelvis and my gynecologist removed them along with the endometrial growths in my pelvic area. He said my endometriosis was very bad…

We Didn't Think One Child Was Possible—Now We Have Three: Amanda’s Endo Story

We Didn't Think One Child Was Possible—Now We Have Three: Amanda’s Endo Story

Endometriosis is a cruel disease that I have battled most of my life. I was diagnosed in college and was told then by my doctors that it was so severe I would never have children.   I distinctly remember the day I started my period…

Why I Seek to Learn About Other People's Experiences with Endometriosis: Ellie Denson's Endo Story

Why I Seek to Learn About Other People's Experiences with Endometriosis: Ellie Denson's Endo Story

When reading about or researching endometriosis, I often learned about the worst cases. A girl who needed to have her whole uterus removed, a woman who needed bladder reconstruction surgery, the couple who was trying to get pregnant and, for…

Medical Conference 2022: Pelvic and Beyond, Including Thoracic

Medical Conference 2022: Pelvic and Beyond, Including Thoracic

Now in its 13th year, our Endometriosis Medical Symposium brings together the leading endometriosis experts to discuss cutting-edge endometriosis research, treatments, and advances around the world. This conference focuses on extrapelvic endometriosis,…

The Blossom Newsletter - February 24, 2021

The Blossom Newsletter - February 24, 2021

Find the Community You’ve Been Looking For EndoFound’s annual patient-oriented conference was created for and inspired by women’s unique journeys with endometriosis. This year, we’re delighted to host three weekends…

The Blossom Newsletter - March 3, 2021

The Blossom Newsletter - March 3, 2021

Making Every Month Endometriosis Awareness Month: A Message from Dr. Seckin Endometriosis Awareness Month is officially here! And as Dr. Tamer Seckin, cofounder of EndoFound, says in his welcome video for our March conferences, if only every…

Helping Others with Endo Gives Me Strength to Fight for Myself: Angelique Hill's Endo Story

Helping Others with Endo Gives Me Strength to Fight for Myself: Angelique Hill's Endo Story

I remember being on the bathroom floor at my university, curled over in pain. My body was so hot that I thought I was going to faint. I kept thinking, “If I can’t get up, I can at least crawl in the hallway so someone could see…

Endometriosis Research Funding Bill Passed In Congress

Endometriosis Research Funding Bill Passed In Congress

Endometriosis research priorities in the final legislation passed by Congress and being sent to the President also includes an increase of $92 million for the NICHD over last year NEW YORK, March 11, 2022 – The Endometriosis Foundation…

The Blossom Newsletter - February 17, 2021

The Blossom Newsletter - February 17, 2021

The Endometriosis Event(s) of the Season To cover as much educational ground as possible, we’ve decided to space our virtual programming out over the entire month of March: four sessions, every Sunday of March. The first three Sundays…

A New Clinical Study on Transgender and Nonbinary People’s Experience of Living with Endometriosis

A New Clinical Study on Transgender and Nonbinary People’s Experience of Living with Endometriosis

Participating in clinical research trials for endometriosis can critically help the future of endometriosis care, and at EndoFound, we're dedicated to sharing IRB-approved trials that you can join. This week, we're excited to share a hermeneutic…

Endometriosis Research Funding Bill Passed in Congress

Endometriosis Research Funding Bill Passed in Congress

We're thrilled that last night, the United States Senate passed HR 2471, the FY22 Consolidated Appropriations Act. The next stop is the President’s desk for his signature making this a law. This legislation funds the federal government…

The Blossom Newsletter - February 10, 2021

The Blossom Newsletter - February 10, 2021

Our Annual Patient Conference & Endometriosis Medical Symposium is Back Our annual Patient Conference and Endometriosis Medical Symposium is back this March for Endometriosis Awareness Month! Now running in its 13th year, the Endometriosis…

Patient Days 2022: Here there and everywhere

Patient Days 2022: Here there and everywhere

Every year, the Endometriosis Foundation of America hosts a patient conference designed to equip patients with all the tools and information they need to live their best lives with endometriosis.  The virtual conference will include panels…

Patient Day 2022 Exhibitor Booth Raffle Prizes

Patient Day 2022 Exhibitor Booth Raffle Prizes

1. Painting by Amanda Adkins (www.AmandaAdkinsArt.com)    2. “support bundle”: Private Parts, How to be Loved, Know your Endo -SIGNED copy, blue warmies bear, dry brush 3. “awareness bundle”: I am 1 in 10 shirt,…

The Blossom Newsletter - February 3, 2021

The Blossom Newsletter - February 3, 2021

An Update from our Research Teams: The ROSE Study Since EndoFound provided critical seed money in 2013, Drs. Metz and Gregerson have been hard at work with the ROSE study, a large-scale interdisciplinary research effort which was initiated…

There is Hope for a Body that Knows Peace: Ali Ramos' Endo Story

There is Hope for a Body that Knows Peace: Ali Ramos' Endo Story

 “Women with endometriosis commonly suffer from heavy periods.” “Period pain is common in women with PCOS or endometriosis.” “Women with endometriosis commonly suffer from pain, chronic fatigue, headaches,…

Policy on Treatment versus Management of Endometriosis  and Pharmaceutical Industry Interaction

Policy on Treatment versus Management of Endometriosis and Pharmaceutical Industry Interaction

The Endometriosis Foundation of America (EndoFound) views one of its critical roles as being a trusted resource for patients and their healthcare providers. Patients are empowered when they possess knowledge and information about all aspects…

Announcing the Endometriosis Foundation of America’s 13th Annual Patient Conference & Medical Symposium This March

Announcing the Endometriosis Foundation of America’s 13th Annual Patient Conference & Medical Symposium This March

My dear friends, colleagues, and the endometriosis community around the world,  Tomorrow, March 1st, 2022, is the first day of Endometriosis Awareness Month. I wish every month were Endometriosis Awareness Month—especially because…