The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
The TCS 50th Anniversary NYC Marathon marathon is scheduled for November 7th, 2021, and we hope you'll be able to run for endometriosis awareness and advocacy. We know these are extremely uncertain times, so we ask that you please only fill out this form if you are certain about your interest and can commit to fundraise the minimum amount for charities of $3,000 per entry!
A Letter from Dr. Seckin: On Endo vs. Adeno Last week, comedian Amy Schumer thanked her surgeons Dr. Tamer Seckin, EndoFound’s co-founder, and Dr. Hayama Brill for her endometriosis surgery, involving hysterectomy and appendectomy.…
Methods to Alleviate Endometriosis Pain: Dr. Dan Martin’s Tips How do you recognize the signs of inflammatory response, and what can you do to help curb it? EndoFound’s Scientific & Medical Director, Dr. Dan Martin, is back…
Last week, comedian Amy Schumer thanked her surgeons Dr. Tamer Seckin, EndoFound’s co-founder, and Dr. Hayama Brill for her endometriosis surgery, involving hysterectomy and appendectomy. Thank you, Amy, for creating awareness by emphasizing…
I have had menstrual pain since my period started when I was 14 years-old. Sometimes I would sleep on the cold tiles to not feel so much pain. Period cramps had me missing school, but I was told this was normal and that once I had a child the…
EndoFound applauds and fully supports any/all individuals with endometriosis bravely sharing their stories, perspectives and opinions publicly. Since every endometriosis journey is so deeply personal and unique, we realize these stories and…
Growing up as a young girl, I thought everyone went through the same period pain I did. When one of my friends would casually say, “I have the worst cramps right now, ugh,” I thought she had the same pain as I did. A pain that was…
The Future of Endo Care: Patient-Driven Data Dr. Noemie Elhadad, Associate Professor of Biomedical Informatics at Columbia University, is spearheading the mission to close the doctor patient gap in endometriosis care. Get to know Dr. Elhadad’s…
The Endometriosis Foundation of America is currently working with Teneral Cellars on a fundraising campaign. The Covid pandemic has been particularly hard on fundraising, and we are hoping to engage your support to help promote this…
On the night of March 7th, 2021, I had come home from a night out with my friends to a milkshake that my boyfriend had ordered me, as I hadn’t really eaten much that day. After taking a few sips, I started having shooting pains on the…
Finding Marital Support Amid An Endo Diagnosis In a powerful endo story, Hanna Szigeti details what it’s like to have both endometriosis and in-laws who attribute her worth to her child-bearing abilities. “When I realized the effects…
Painting NYC Yellow at the 2021 TCS NYC Marathon We’re honored to be a charity partner with New York Road Runners Club for the TCS New York City Marathon (this November 7th, 2021!), and we’re thrilled to introduce you to Team EndoFound!…
I Never Believed It Could Be Endometriosis Kayla experienced severe stomach pain since she was six. At 20, other debilitating symptoms began. “Most days,” Kayla writes, “I’m still unable to process what I’ve been…
The Endometriosis Events of 2022 Our annual Medical Conference, Patient Day, and Blossom Ball are officially booked for 2022. Throughout the past year, we still came together virtuallly to bring you Patient Day and Medicial Conference. Now,…
My battle with endometriosis has challenged both my body and mind in many ways. The pain and discomfort I experienced over the last 10 years has been equally taxing on my body as it has been frustrating to not have a definitive diagnosis. My…
My name is Hanna, and I have endometriosis. For years I thought the cramping, nausea, and diarrhea that accompanied my period was normal. I was one of the last girls in my group of friends to get my period, and when I finally started bleeding…
Get to know the amazing athletes running with Team EndoFound in the 2021 TCS NYC Marathon this November! Want to support the team as a whole? Visit our JustGiving Team EndoFound page. Gates Palissery Current Home: Currently live…
My twenties were no joke. I basically got married three times, got cancer, lived in poverty, ended up without a home, and struggled needlessly with severe depression, anxiety, and undiagnosed adult ADHD. Somewhere in that whole mess, I was…
Growing up, I suffered from severe stomach pain which started at around six years-old. When I was about 20 years old, other symptoms began including incredibly painful intercourse, unbearable period-induced stomach pain, constant bleeding/spotting,…
Endometriosis & Pain Medication: What You Need to Know Last month, Amy Ganner from Derbyshire, UK, accidentally overdosed on her pain medication due to endometriosis-related pain, causing her tragic death. On EndoTV, EndoFound’s scientific…
Menstrual Blood Cells May Be Key to a New Diagnostic Test ROSE researcher Dr. Christine Metz tackles two significant barriers to endometriosis care: delayed diagnosis and lack of effective treatment. The ROSE research team (winner of the 2018…
How Gendered Language Harms Non-binary Endometriosis Patients Studies have highlighted that non-binary and trans people are more likely to experience discrimination in a medical setting and are more likely to struggle to access medical services.…
All Your Endo Q’s Answered: Introducing Ask the Doctors During patient and medical conferences in the past few years, the endo community had so many critical questions to the featured doctors and experts. Now, we’ll finally be able…
Together, we went 1097 miles to end endo Our 3rd End Endo 5K took place last weekend, and 354 participants ran, walked, biked, hiked, and even horseback rode to end endo. Team EndoFound has already raised over $32,000 and they’re still…
The End Endo 5K Kicks Off This Weekend! The June End Endo 5K is this weekend! From Texas to Québec, we have over 300 Team EndoFound members coming together to end endo across the map. These folks have raised an unprecedented amount of…
The Endo Experience Through Dance: EndoGirl Endo Girl, a short documentary dance film, portrays the endometriosis experience through dance. Directed and produced by Australian filmmaker Sophia Bender, the film tells the story of thirteen people…
Examining the Patient & Provider Relationship in Endometriosis Care When PhD candidate Allyson Bontempo set out to understand how endometriosis patients engage in online communities, she had hoped to recruit a modest number of survey participants—instead,…
An Exclusive Interview with Abby Finkenauer Abby Finkenauer, former Congresswoman for Iowa, made national headlines when she courageously shared her struggle with endometriosis on the House floor to announce the historic House Endometriosis…
Why I Don’t Believe in Permanent Endometriosis Remission: A Personal Essay Live on the The Blossom, endometriosis patient and writer Tara Mandarano pens a powerful personal essay on endometriosis remission, which an endometriosis expert…
Registration is Now Live! The 3rd End Endo 5K Registration is live for EndoFound's third End Endo 5K! Individuals with endometriosis need your help now to adapt endometriosis education to online learning, fund cutting-edge research on endometriosis…
Working with Endo: Three Perspectives Endometriosis is not one size fits all, and endometriosis patient, writer, and advocate Elle Hurley demonstrates exactly this in her latest piece interviewing three patients on what it’s like to work…
Endometriosis Pain: Recent Research & Finding Relief The exact connection between endometriosis and pain is still not well understood. Pain levels are also difficult to compare in different people. “While a pain scale is one tool,”…
Adenomyosis Awareness Month Read up on everything you need to know about adenomyosis, a common, often painful condition where cells from the inner lining of the uterus (the endometrium) infiltrate the muscular layer of the uterus (the myometrium).…
The Importance of Advocating for Yourself, A Trusted Doctor, and Menstrual Leave: An Interview with Olivia Culpo In a powerful and candid interview, model, actress, and businesswoman Olivia Culpo opens up about her endometriosis journey and…
For confidentiality reasons, the author has wished to remain anonymous. In every bag, I carried Advil. I had to make sure I had it in case I got my period. From age 12 or 13 onward, I had debilitating cramps. In the 80’s, 90’s and…
We’re launching a new YouTube series, "Ask the Doctors", this week on EndoTV. Hosted and executive produced by Diana Falzone, it delivers answers to the thousands of questions asked by the millions of individuals suffering from this disease. …
NEW YORK, NY (June 16, 2021) – Endometriosis Foundation of America (EndoFound) is launching a new YouTube series "Ask the Doctors" this week on EndoTV. Hosted and executive produced by Diana Falzone, it delivers answers to the thousands…
I write this while recovering from surgery number four. I’m surrounded by my four dogs, the Food Network on in the background, and knitting needles on the coffee table. I’m already going crazy from not working this first week, and…
We’re excited to announce MyEndometriosisTeam as our official online community for endometriosis patients. Launched in 2015, MyEndometriosisTeam is a free, password-protected and monitored social network with more than 115,000 registered…
SAN FRANCISCO (June 15, 2021) – MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today announced its partnership with the nonprofit organization Endometriosis…
EndoFound created the End Endo 5K as a way for endometriosis advocates from around the country to fundraise by getting moving, whether walking, running, hiking, biking, or even dancing. The fundraising event is a supportive and encouraging…
I was 22 when the pain started that was not associated with my period. Even though my periods were always painful and heavy, this was a persistent pain on the left side of my abdomen. I got an ultrasound, and the nurse said that I had two,…
When I read about my diagnosis, I had to Google the word “endometriosis”: a condition in which cells similar to those in the endometrium grow outside the uterus. When you learn about endometriosis, you learn about the pain—the…
At only 21 years old, I thought it would be important to share my experience with endometriosis. A misconception about this condition is that it only affects older women. In reality, if you are of reproductive age and have a uterus, you could…
Abby Finkenauer, former Congresswoman for Iowa, made national headlines when she courageously shared her struggle with endometriosis on the House floor to announce the historic House Endometriosis Caucus in March 2020. During her term, Finkenauer…
“It can’t be endometriosis,” the gynecologist said, her voice steady and certain, to the mother of the 15-year-old girl. Her mom had asked if her daughter could have endometriosis, and the gynecologist had answered…
In January of this year, my roommate, Siobhan, walked into our apartment and found me on the floor. I was completely immobile, alternating between periods of screaming and an inability to speak due to pain. She encouraged me to go to the hospital,…
Thank you to everyone who walked, ran, hiked and biked this June to shine the spotlight on endometriosis and raise funds to change the course of the disease. We MORE THAN DOUBLED our fundraising goal, raising $32,636 to promote…
I got my first period when I was 15-years-old and once I turned 19 I began to have horrible periods—I’m talking legs going numb and tingling, extremely heavy periods, dizziness, and painful cramps. I did not understand what was…
NEW YORK (April 6, 2021) – Today, the Endometriosis Foundation of America (EndoFound) announced actor and producer Corinne Foxx as their newest ambassador. Foxx, 27, was diagnosed with endometriosis about five years ago. She recently…
