The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
Today, our UpEndo Coalition announced new supportive provisions and a funding directive for endometriosis research in the US House of Representatives and US Senate-developed appropriations bills. This includes “report language”…
The Endometriosis Foundation of America is officially entering its 8th year as an official charity partner with the TCS New York City Marathon. This year, we are thrilled to announce that we have a record 50+ runners in the marathon! The personal…
I have always been a very healthy person who gets sick about once every three years. As a writer, author, and actor, I always worked in the service industry while between writing gigs in order to make ends meet. I believe that being around…
Co-written by Stephanie Moss, a 3rd year medical studdent at Rush Medical School, and Dr. Ariela Marshall, a hematologist specializing in disorders of thrombosis and hemostasis in women. One in eight women, one in four…
I feel guilty that I’m scared to get pregnant, and I live with the weight of this guilt every day. I was officially diagnosed with endometriosis in 2021, and since I’ve had three surgeries, my most recent one excision surgery in…
We’re thrilled to announce a special concert to fundraise for endometriosis at Nublu 151 in New York City on Thursday, July 21 at 7 pm. The concert celebrates the release of Warriors, a genre-spanning album featuring new music…
In May 2022, I received an official diagnosis of Stage 1 endometriosis. Finally an answer to my many years of pain and suffering that I experienced for nearly a week every month. After being blown off by my regular ob/gyn for two years, despite…
Historic news for the endometriosis community: AAGL has just announced a critical update to the International Classification of Disease (ICD) diagnosis codes for endometriosis, codes that had not been updated in more than 40 years. The update…
We're thrilled to be working with New Jersey Assemblywoman Shanique Speight (NJ- 29th Legislative District) to create awareness and support for her 2022 menstrual health bills focusing on early endometriosis education and intervention. New…
The Endometriosis Working Group, spearheaded by Rep. Jillian Gilcrest, has been prioritizing endometriosis in Connecticut for one year now. Most recently, the group held their first legislative session in May 2022. After meeting monthly and…
In my long, painful road to discovering and treating my endometriosis, one of the pit stops was an interstitial cystitis (IC) diagnosis. Nicknamed the “evil twin” of endometriosis due to their frequent comorbidity, IC is characterized…
Endometriosis Research Funding Bill Passed In Congress New York Passes Historic Endometriosis Legislation Historic Menstrual Health & Endometriosis Legislation Signed Into Law Rep. Finkenauer Hailed Coast to Coast for Endometriosis…
WHO WE AREIn November of 2021, the Endometriosis Foundation of America (EndoFound) launched the UpEndo Coalition to serve as a collective voice providing an opportunity for coalition members to work together to raise awareness of endometriosis.…
EndoFound's UpEndo Coalition is a powerful voice for everyone touched by endometriosis. EndoFound's advocacy team is committed to speaking up about the policy needs of the endometriosis community. It plays a critical role in helping to secure…
Assemblywoman Speight: “END PERIOD POVERTY” Assemblywoman Shanique Speight, a proud representative of New Jersey’s 29th Legislative District, has dedicated her service to advocate for the needs of vulnerable populations and…
One day in September 2019, I laid down on my stomach as my physical therapist placed an ice pack on my lower back—a usual routine during my appointments for my back injury—but immediately I felt that something was different. The…
Trigger warning: The following piece contains discussions of content relating to suicide and self-harm. If you or someone you know is in need of crisis services, please call The Lifeline which provides 24/7, free and confidential…
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We are excited to have the Congressional Endometriosis Caucus, led by Reps. Scott (GA), Williams (GA), Rice (NY), and Gonzalez-Colon (PR), circulating a “Dear Colleague” letter in the US House of Representatives asking their colleagues…
If you were to ask me whether there was a year that marked my life, I would reply, yes: 2018. How did I go from being a happy young woman to a woman who felt like a human pinball machine, being bounced from doctor to doctor? To tell you my…
I recently had my left ovary and fallopian tube removed via laparoscopy. They were frozen to the left of my pelvis and my gynecologist removed them along with the endometrial growths in my pelvic area. He said my endometriosis was very bad…
Endometriosis is a cruel disease that I have battled most of my life. I was diagnosed in college and was told then by my doctors that it was so severe I would never have children. I distinctly remember the day I started my period…
When reading about or researching endometriosis, I often learned about the worst cases. A girl who needed to have her whole uterus removed, a woman who needed bladder reconstruction surgery, the couple who was trying to get pregnant and, for…
Now in its 13th year, our Endometriosis Medical Symposium brings together the leading endometriosis experts to discuss cutting-edge endometriosis research, treatments, and advances around the world. This conference focuses on extrapelvic endometriosis,…
Find the Community You’ve Been Looking For EndoFound’s annual patient-oriented conference was created for and inspired by women’s unique journeys with endometriosis. This year, we’re delighted to host three weekends…
Making Every Month Endometriosis Awareness Month: A Message from Dr. Seckin Endometriosis Awareness Month is officially here! And as Dr. Tamer Seckin, cofounder of EndoFound, says in his welcome video for our March conferences, if only every…
I remember being on the bathroom floor at my university, curled over in pain. My body was so hot that I thought I was going to faint. I kept thinking, “If I can’t get up, I can at least crawl in the hallway so someone could see…
Endometriosis research priorities in the final legislation passed by Congress and being sent to the President also includes an increase of $92 million for the NICHD over last year NEW YORK, March 11, 2022 – The Endometriosis Foundation…
The Endometriosis Event(s) of the Season To cover as much educational ground as possible, we’ve decided to space our virtual programming out over the entire month of March: four sessions, every Sunday of March. The first three Sundays…
Participating in clinical research trials for endometriosis can critically help the future of endometriosis care, and at EndoFound, we're dedicated to sharing IRB-approved trials that you can join. This week, we're excited to share a hermeneutic…
We're thrilled that last night, the United States Senate passed HR 2471, the FY22 Consolidated Appropriations Act. The next stop is the President’s desk for his signature making this a law. This legislation funds the federal government…
Our Annual Patient Conference & Endometriosis Medical Symposium is Back Our annual Patient Conference and Endometriosis Medical Symposium is back this March for Endometriosis Awareness Month! Now running in its 13th year, the Endometriosis…
Every year, the Endometriosis Foundation of America hosts a patient conference designed to equip patients with all the tools and information they need to live their best lives with endometriosis. The virtual conference will include panels…
1. Painting by Amanda Adkins (www.AmandaAdkinsArt.com) 2. “support bundle”: Private Parts, How to be Loved, Know your Endo -SIGNED copy, blue warmies bear, dry brush 3. “awareness bundle”: I am 1 in 10 shirt,…
An Update from our Research Teams: The ROSE Study Since EndoFound provided critical seed money in 2013, Drs. Metz and Gregerson have been hard at work with the ROSE study, a large-scale interdisciplinary research effort which was initiated…
“Women with endometriosis commonly suffer from heavy periods.” “Period pain is common in women with PCOS or endometriosis.” “Women with endometriosis commonly suffer from pain, chronic fatigue, headaches,…
The Endometriosis Foundation of America (EndoFound) views one of its critical roles as being a trusted resource for patients and their healthcare providers. Patients are empowered when they possess knowledge and information about all aspects…
My dear friends, colleagues, and the endometriosis community around the world, Tomorrow, March 1st, 2022, is the first day of Endometriosis Awareness Month. I wish every month were Endometriosis Awareness Month—especially because…
What to Expect at Your Cervical Cancer Screening January is cervical cancer awareness month—have you been screened recently? On The Blossom, Zaynab Onuh-Yahaya covers what you need to know about your cervical cancer screening, and why…
I started my menstrual cycle at the age of 11. I was made to believe that menstruation is painful and that I just need to suck it up. No one wants to be seen as a softie, so I continued handling the pain as best as I could. One day, at…
I was 14 when the monthly ER visits began. Every other month it was the same diagnosis: A cyst must have ruptured from her monthly cycle, and you may want to take her to a gynecologist for birth control pills. The first GYN I’d seen as…
I’d like to say that my endometriosis story is different from others, but the unfortunate truth is that there are hundreds of others out there who have experienced a similar journey. Growing up, I always had extremely painful periods.…
Thanks to you, we’re making a difference for endometriosis patients Thanks to your incredible generosity, we exceeded our fundraising goal, and Northwell Health matched it with $50,000. Your donation will go to work immediately providing…
December 24, 2015 should have been extraordinary. The sun glowed over dense evergreen trees and serenity blanketed the Black Forest. My husband and I were staying on a German farm for Christmas where cats, dogs, horses, and other livestock…
Tracey Haas, DO, Executive Director Dr. Tracey Haas is a family physician with 20 years of experience working with underserved and vulnerable populations around the world. During this time, she found herself to be an endometriosis patient,…
Our campaign to end period poverty (PeriodNow) is making strides outside of New York. Thanks to our partnership with PERIOD and State Representative Jillian Gilchrest (D-West Hartford), we were able to present a donation of 50,000 tampons to…
Sarah Austin, the mother of Trinity Lillian Graves, tells her daughter's heartbreaking story. Trinity suffered debilitating pain from endometriosis and adenomyosis for nearly four years before she took her own life. Because Trinity's endometriosis…
Great news from France! Yesterday, President Emmanuel Macron announced that he is launching a new national strategy to combat endometriosis in France. The national plan will address awareness and education, encourage early diagnosis, and advance…
Everybody knows about diabetes. It affects 180 million women around the world. That number is the combined population of Germany, Spain and the UK, which is funny, given that there is another disease that affects the same number of people,…
