Our mission is to increase endometriosis awareness, fund landmark research, provide advocacy and support for patients, and educate the public and medical community.
Founders: Padma Lakshmi, Tamer Seckin, MD
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Endofound Org

Endofound Org

The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

 

The TCS 50th Anniversary NYC Marathon marathon is scheduled for November 7th, 2021, and we hope you'll be able to run for endometriosis awareness and advocacy. We know these are extremely uncertain times, so we ask that you please only fill out this form if you are certain about your interest and can commit to fundraise the minimum amount for charities of $3,000 per entry!

Apply Today

The Blossom Newsletter - January 20, 2021

The Blossom Newsletter - January 20, 2021

Applauding France for Their National Strategy to Combat Endo Great news from France! Last week, President Emmanuel Macron announced that he’s launching a new national strategy to combat endometriosis in France. The national plan will…

The Blossom Newsletter - January 6, 2021

The Blossom Newsletter - January 6, 2021

Thanks to you, we’re making a difference for endometriosis patients Thanks to your incredible generosity, we exceeded our fundraising goal, and Northwell Health matched it with $50,000. Your donation will go to work immediately providing…

Sarah Austin, Whose Daughter Committed Suicide Due to Endometriosis Pain, Speaks Out

Sarah Austin, Whose Daughter Committed Suicide Due to Endometriosis Pain, Speaks Out

Sarah Austin, the mother of Trinity Lillian Graves, tells her daughter's heartbreaking story. Trinity suffered debilitating pain from endometriosis and adenomyosis for nearly four years before she took her own life. Because Trinity's endometriosis…

 France's New National Strategy to Combat Endometriosis

France's New National Strategy to Combat Endometriosis

Great news from France! Yesterday, President Emmanuel Macron announced that he is launching a new national strategy to combat endometriosis in France. The national plan will address awareness and education, encourage early diagnosis, and advance…

I’m Talking About Endometriosis: Srinikhita Pole’s Endo Story

I’m Talking About Endometriosis: Srinikhita Pole’s Endo Story

Everybody knows about diabetes. It affects 180 million women around the world. That number is the combined population of Germany, Spain and the UK, which is funny, given that there is another disease that affects the same number of people,…

Ovarian Cysts 101

Ovarian Cysts 101

To start off, what are ovarian cysts?  Ovarian cysts are pouches or sacs filled with fluid that develop in the ovaries or on their surface. Many women have ovarian cysts at some point in their life. These cysts usually cause no symptoms…

Life is never easy, especially when you are a woman: Julie Anderson's Endo Story

Life is never easy, especially when you are a woman: Julie Anderson's Endo Story

Life is never easy, especially when you are a woman. This past summer was especially hard on me. It was the Saturday of Father’s Day weekend and my family and I were attending high school graduation parties.  When I arrived at my…

The Blossom Newsletter - November 18, 2021

The Blossom Newsletter - November 18, 2021

Join Corinne Foxx in Supporting EndoFound this GivingTuesday We're two weeks away from the global day of giving, GivingTuesday, on November 30th! You know better than anyone that endometriosis care is vastly underfunded and underestimated.…

The Blossom Newsletter - November 11, 2021

The Blossom Newsletter - November 11, 2021

There’s No Place Like New York: Gates Palissery’s Run for Endometriosis A round of applause is in order for Team EndoFound, who ran 26.2 miles last Sunday at the 50th TCS New York City Marathon! The team raised over $50K—all…

How A Diagnosis of Uterine Fibroids Delayed Endo Treatment: Ruby Tolbert's Endo Story

How A Diagnosis of Uterine Fibroids Delayed Endo Treatment: Ruby Tolbert's Endo Story

My endometriosis story is one that I believe is unique. All women have different walks of life and different stories, and mine, too, is different. My endometriosis story starts with uterine fibroids.  I have always had heavy periods. I…

The Blossom Newsletter - October 28, 2021

The Blossom Newsletter - October 28, 2021

Come Cheer on Team EndoFound with Us! This Sunday November 7th, join EndoFound to cheer on 15 Team EndoFound runners at the 50th TCS New York City Marathon! The team has already raised over $40,000 to fight endometriosis—and you can still…

A New Clinical Trial on Endometriosis Pain & Cabergoline

A New Clinical Trial on Endometriosis Pain & Cabergoline

Participating in clinical research trials for endometriosis can critically help the future of endometriosis care, and at EndoFound, we're dedicated to sharing IRB-approved trials that you can join. This week, we're excited to share a clincial…

Join The Endometriosis Foundation of America's Effort to “UpEndo” in Congress

Join The Endometriosis Foundation of America's Effort to “UpEndo” in Congress

LATEST UPDATE With great excitement, The Endometriosis Foundation of America (EndoFound) is announcing the creation of the “UpEndo” coalition. This new effort will provide an opportunity for coalition members to work together to…

The Blossom Newsletter - October 28, 2021

The Blossom Newsletter - October 28, 2021

A Beginner’s Guide to Participating in Clinical Trials It’s no secret that endometriosis research is critically underfunded—but there’s still cutting-edge research happening and you can help progress research efforts…

Support The House Endometriosis Caucus

Support The House Endometriosis Caucus

Click here to join EndoFound's UpEndo Coalition Congresswoman Nikema Williams The Endometriosis Foundation of America (EndoFound) is pleased to support the House Endometriosis Caucus to raise awareness and increase research for endometriosis. Congresswoman…

Stop the Shame Cycle: Jennifer Bush’s Endo Story

Stop the Shame Cycle: Jennifer Bush’s Endo Story

As I sit down to compile my laundry list of thoughts racing through my mind regarding endometriosis, one stands out the most: stop the shame cycle. When I think of sharing this story it is with advocacy and education in mind. If my story can…

The Blossom Newsletter - October 21, 2021

The Blossom Newsletter - October 21, 2021

How To Approach Your Pap Smear Test When You Have Endometriosis This week on The Blossom, Alice Broster pens a handy and much-needed guide on how endometriosis patients should approach their pap smear tests. Tips include making sure your clinician…

Advance Endo Research—Just by Wearing a Tampon!

Advance Endo Research—Just by Wearing a Tampon!

As Catherine Vanacore recently wrote on the Blossom, participating in clinical research trials for endometriosis can critically help the future of endometriosis care. Today, we’re excited to share an IRB-approved research study that aims…

The Endometriosis Foundation of America Announces Formation of Scientific and Medical Board

The Endometriosis Foundation of America Announces Formation of Scientific and Medical Board

NEW YORK (November 11, 2021) – The Endometriosis Foundation of America (EndoFound), the leading non-profit for endometriosis, today announced the formation of their Scientific and Medical Board with 26 international charter…

The Blossom Newsletter - October 14, 2021

The Blossom Newsletter - October 14, 2021

Why Jenna Koperski is Running the TCS New York City Marathon There’s less than one month to go until Team EndoFound spreads endo awareness with each stride in the NYC marathon—and we’re thrilled to introduce you to some…

There’s No Place Like New York: Gates Palissery’s Run for Endometriosis

There’s No Place Like New York: Gates Palissery’s Run for Endometriosis

A round of applause is in order for Team EndoFound, who ran 26.2 miles last Sunday at the the 50th TCS New York City Marathon! The team raised over $50K—all to support EndoFound’s programs and get us closer to our collective goal:…

Announcing EndoFound’s Scientific & Medical Board

Announcing EndoFound’s Scientific & Medical Board

We’re thrilled to announce the formation of our Scientific and Medical Board with 26 international charter members serving an initial three-year term with no term limits. Chairing the committee is Dr. Dan Martin, Scientific &…

The Blossom Newsletter - October 7, 2021

The Blossom Newsletter - October 7, 2021

Missed the Must-Watch Conversation about Endo & Fertility? IGTV Must See! Fertility issues can be widespread for individuals with endometriosis. That’s why EndoFound Ambassador Corinne Foxx, EndoFound Co-founder Dr. Tamer Seckin,…

I’m Actually One of the Lucky Ones: Amber Morelli's Endo Story

I’m Actually One of the Lucky Ones: Amber Morelli's Endo Story

Endometriosis is a reproductive health disorder affecting approximately 1 in 10 women, and I am 1 in 10.  With endometriosis, the lining similar to that of the uterus (the endometrium) that’s normally shed during menstruation spreads…

Create Your Own Fundraiser

Create Your Own Fundraiser

Hosting your own fundraiser is a great way to raise money to promote endometriosis awareness and shine a light on this under-discussed disease! Here are four easy steps to get you started: 1. Plan Your Event 2. Kick off Your Campaign 3. Promote…

The Blossom Newsletter - September 30,  2021

The Blossom Newsletter - September 30, 2021

A Must-Watch Conversation about Endo & Fertility   Save the date for a special event discussing reproductive options for patients with endometriosis! The event will be hosted on EndoFound Ambassador Corinne Foxx’ Instagram Live…

Seeing Another Doctor Was The Best Thing I've Ever Done

Seeing Another Doctor Was The Best Thing I've Ever Done

I was 13 the first time I had a “bad cramp.” From then on my cramps never went away and just got worse. I would double over in pain, and movement in general during a cramp just made the pain worse, like a nerve was being shocked…

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The Blossom Newsletter - September 23, 2021

The Blossom Newsletter - September 23, 2021

A Letter from Dr. Seckin: On Endo vs. Adeno  Last week, comedian Amy Schumer thanked her surgeons Dr. Tamer Seckin, EndoFound’s co-founder, and Dr. Hayama Brill for her endometriosis surgery, involving hysterectomy and appendectomy.…

The Blossom Newsletter - September 16, 2021

The Blossom Newsletter - September 16, 2021

Methods to Alleviate Endometriosis Pain: Dr. Dan Martin’s Tips How do you recognize the signs of inflammatory response, and what can you do to help curb it? EndoFound’s Scientific & Medical Director, Dr. Dan Martin, is back…

My 900 Days Lost to Endo: Amrita Rajagopal’s Endo Story

My 900 Days Lost to Endo: Amrita Rajagopal’s Endo Story

There is a storm brewing inside me (and outside, thank you climate change!). It’s been fed by approximately 900 days of debilitating endometriosis pain. Roughly 22 years of periods x 12 months x 3 days + 3 recent months of daily pain.…

It Wasn’t All in My Head: Megan Highberger’s Endo Story

It Wasn’t All in My Head: Megan Highberger’s Endo Story

Emergency room visits, doctors’ appointments, missed work and school, infertility, passing out and vomiting from pain, heavy bleeding, pelvic floor dysfunction, ultrasounds, procedures, digestive issues, medications, misdiagnoses, and…

EndoFound Ambassadors

EndoFound Ambassadors

EndoFound ambassadors are influential leaders in entertainment, the arts, sports, social media, and beyond who use their platform to spread awareness, educate, advocate, and fundraise to further the cause of endometriosis research, programming…

A Letter from Dr. Seckin: On Hysterectomies, Endometriosis, and Adenomyosis

A Letter from Dr. Seckin: On Hysterectomies, Endometriosis, and Adenomyosis

Last week, comedian Amy Schumer thanked her surgeons Dr. Tamer Seckin, EndoFound’s co-founder, and Dr. Hayama Brill for her endometriosis surgery, involving hysterectomy and appendectomy. Thank you, Amy, for creating awareness by emphasizing…

Enduring the Pain: Althercia Stephenson's Endo Story

Enduring the Pain: Althercia Stephenson's Endo Story

I have had menstrual pain since my period started when I was 14 years-old. Sometimes I would sleep on the cold tiles to not feel so much pain. Period cramps had me missing school, but I was told this was normal and that once I had a child the…

Social Media Policy

Social Media Policy

EndoFound applauds and fully supports any/all individuals with endometriosis bravely sharing their stories, perspectives and opinions publicly. Since every endometriosis journey is so deeply personal and unique, we realize these stories and…

We're All In This Together: Ally Bowers' Endo Story

We're All In This Together: Ally Bowers' Endo Story

Growing up as a young girl, I thought everyone went through the same period pain I did. When one of my friends would casually say, “I have the worst cramps right now, ugh,” I thought she had the same pain as I did. A pain that was…

The Blossom Newsletter - August 12, 2021

The Blossom Newsletter - August 12, 2021

The Future of Endo Care: Patient-Driven Data Dr. Noemie Elhadad, Associate Professor of Biomedical Informatics at Columbia University, is spearheading the mission to close the doctor patient gap in endometriosis care. Get to know Dr. Elhadad’s…

Teneral Cellars x Endofound Collaboration

Teneral Cellars x Endofound Collaboration

The Endometriosis Foundation of America is currently working with Teneral Cellars on a fundraising campaign. The Covid pandemic has been particularly hard on fundraising, and we are hoping to engage your support to help promote this…

From Ectopic Pregnancy to Endometriosis Diagnosis: Jenn Legnetti's Endo Story

From Ectopic Pregnancy to Endometriosis Diagnosis: Jenn Legnetti's Endo Story

On the night of March 7th, 2021, I had come home from a night out with my friends to a milkshake that my boyfriend had ordered me, as I hadn’t really eaten much that day. After taking a few sips, I started having shooting pains on the…

The Blossom Newsletter - August 5, 2021

The Blossom Newsletter - August 5, 2021

Finding Marital Support Amid An Endo Diagnosis In a powerful endo story, Hanna Szigeti details what it’s like to have both endometriosis and in-laws who attribute her worth to her child-bearing abilities. “When I realized the effects…

The Blossom Newsletter - July 29, 2021

The Blossom Newsletter - July 29, 2021

Painting NYC Yellow at the 2021 TCS NYC Marathon We’re honored to be a charity partner with New York Road Runners Club for the TCS New York City Marathon (this November 7th, 2021!), and we’re thrilled to introduce you to Team EndoFound!…

The Blossom Newsletter - July 22, 2021

The Blossom Newsletter - July 22, 2021

I Never Believed It Could Be Endometriosis Kayla experienced severe stomach pain since she was six. At 20, other debilitating symptoms began. “Most days,” Kayla writes, “I’m still unable to process what I’ve been…

The Blossom Newsletter - July 15, 2021

The Blossom Newsletter - July 15, 2021

The Endometriosis Events of 2022 Our annual Medical Conference, Patient Day, and Blossom Ball are officially booked for 2022. Throughout the past year, we still came together virtuallly to bring you Patient Day and Medicial Conference. Now,…

From Ultrasound Model to Medical School: Jenna Dvorsky’s Endo Story

From Ultrasound Model to Medical School: Jenna Dvorsky’s Endo Story

My battle with endometriosis has challenged both my body and mind in many ways. The pain and discomfort I experienced over the last 10 years has been equally taxing on my body as it has been frustrating to not have a definitive diagnosis. My…

Finding Marital Support Amid An Endo Diagnosis: Hanna Szigeti's Endo Story

Finding Marital Support Amid An Endo Diagnosis: Hanna Szigeti's Endo Story

My name is Hanna, and I have endometriosis. For years I thought the cramping, nausea, and diarrhea that accompanied my period was normal. I was one of the last girls in my group of friends to get my period, and when I finally started bleeding…