Endofound Org

It would be impossible for me to give you the exact number of times I was referred to the emergency room due to severe abdominal pain during my formative teenage years. Every single time, medical professionals would load me up with pain medication,…

New York, NY - September 17, 2020  Falzone sets sights on expanding endometriosis awareness on Capitol Hill and to state governments across the US.  EndoFound is thrilled to announce that journalist and long-time endometriosis advocate,…

Dear %Subscriber:CustomField1%, As our community knows too well, endometriosis treatment and support is vastly under-funded and it continues to be an incredibly difficult disease to diagnose and treat. People of color face these barriers in…

Endometriosis treatment and support is vastly under-funded and continues to be an incredibly difficult disease to diagnose and treat. Black, Indigenous, and POC individuals face these barriers to receiving proper diagnosis and treatment in…

This patient resource sheet is geared specifically towards endometriosis patients of color and is meant to be used in correspondence with The Endometriosis Portal for People of Color, where patients and doctors share their diagnostic journeys,…

Endometriosis treatment and support is vastly under-funded and continues to be an incredibly difficult disease to diagnose and treat. Black, Indigenous, and POC individuals face these barriers to receiving proper diagnosis and treatment in…

As I am writing this, I am currently in bed, only two days out of my sixth endometriosis-related surgery. I’m a real veteran now. The pain I’m feeling from having my guts cut into and my insides messed around with is way too familiar.…

Dear %Subscriber:CustomField1%, Today is World Suicide Prevention Day. Each year, countless lives are lost to suicide. According to a BBC study released last fall, more than half of the 13,500 women with endometriosis who shared their stories…

How to prep and pack for surgery Every patient is different and every patient finds comfort through their own means. Based on popular and common surgery tips shared by endo patients, we recommend creating a list of groceries, items, etc. that…

A new series of endo stories: creative nonfiction by endometriosis patients. Creative nonfiction uses literary styles and techniques to tell a personal story that is rooted in fact and reality. Kelly Sgroi’s flash piece is a powerful…

Dear %Subscriber:CustomField1%, Labor Day weekend is here, and I want to give a shout-out to all of you who work so hard. It's not easy planning a career or even getting to work with endometriosis. We still have a lot of work to do when it…

Last weekend marked the first ever End Endo 5K and we are overwhelmed by our community’s generosity and support. Together we raised over $15K from hundreds of supporters, and are still going strong to surpass our fundraising goal. Team…

Dear %Subscriber:CustomField1%, Coming off the heels of our first End Endo 5K this weekend, we are amazed by the power of the endometriosis community. Runners from Alaska to Florida went above and beyond to raise over $15K for endometriosis…

Earlier this summer, we collected tips from the endo community on how to manage endometriosis pain through our weekly newsletter. You know your body best, and you know what endo tips work for you when it comes to managing symptoms. If you have…

EndoFound supports a wide range of innovative research studies that aim to develop better strategies in diagnosing and treating endometriosis. These studies encompass a wide range of topics, from the social impact of the disease to the molecular…

Dear %Subscriber:CustomField1%, Back in March, we were devastated to have to cancel our annual Patient Day due to the pandemic. Patient Day has always been a time for patients to come together, learn, and get the information and support they…

EndoFound met with an inspiring group of undergraduate students from the University of Rochester who are working on an endometriosis-related project for their participation in a worldwide competition. The International Genetically Engineered…

Dear %Subscriber:CustomField1%, National Nonprofit Day is Monday, August 17th, a wonderful time to celebrate the critical impact that nonprofits have had around the world since the Tariff Act was signed into law in 1894. Thank you to the nonprofits…

Dear %Subscriber:CustomField1%, Last week the house approved Rep. Abby Finkenauer’s push to double federal research funding for endometriosis and the amendment now moves to the Senate. This is such great news for the endo community. Let’s…

I was eleven when I first got my period. After a few months I started vomiting every time my new “gift” showed up. It was the type of vomiting that couldn’t be controlled; I’d walk through hallways in my middle school…

by Molly Longman Congresswoman Abby Finkenauer couldn’t help but smile as she stood on the floor of the House of Representatives on Thursday, July 30. The Iowa Democrat was speaking into a microphone, asking Congress to vote “aye”…

U.S. House Approves Doubling Funding for Endometriosis Research to $26 Million Annually Iowa Rep. Abby Finkenauer, who credits EndoFound for helping her go public with her endo story, leads the charge Washington, D.C. – An amendment to…

by Lena Felton The condition affects 7 million women in the United States and 1 in 10 women worldwide Read More: thelily.com

Dear %Subscriber:CustomField1%, We’re excited to share huge news for the endometriosis community: yesterday, Rep. Abby Finkenauer’s amendment to double federal research for endometriosis passed through the House of Representatives,…

Tiffany Silvera is an endo patient, nurse, and first-generation Jamaican-Portuguese American who loves cooking. She was diagnosed with endometriosis in December, 2011. Although Tiffany is a nurse by profession, she says her diagnosis has taught…

Thank you to everyone on Team EndoFound who walked, ran, biked, and hiked the End Endo 5K on August 22nd and 23rd. There’s still time left to get EndoFound to their $15K fundraising goal! Every dollar you donate will be matched by an…

Dear %Subscriber:CustomField1%, Thank you for sharing your tips in the Endo Tip Jar. Your suggestions were so helpful, and we’re excited to share them with you each week. Missed sharing your tip? You can still share in the Endo Tip Jar.…

Dear %Subscriber:CustomField1%, You know your body best, and you know what endo tips work for you when it comes to managing symptoms. We are including an Endo Tip of the Week in our newsletters from now on, and we want to hear from you. We've…

Lauren Kornegay had never heard of endometriosis when she first experienced debilitating symptoms in college. She had experienced pain with her menstrual cycle, but wasn’t taught to discuss taboo subjects such as menstruation. So she…

Endofound Streamers can raise funds by doing what they love that will go towards supporting our programs aimed at building awareness, funding innovative research, and advocating for the 10 million women in the US with endometriosis.  …

Thank you for your interest in raising awareness for Endometriosis In This Toolkit, you will find all the resources and information you need to support our mission and promote your fundraiser Endo Stories There are an estimated 200 million…

Georgie Kovacs had just returned from her honeymoon in 2010 when she happened to have her annual OB-GYN appointment. A few days later, her doctor, who had routinely drawn blood, called Georgie to suggest seeing a fertility doctor. This surprised…

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Putting Patients First Dear %Subscriber:CustomField1%, One of the most startling endometriosis statistics is the 7-10 year delay in diagnosis. Endo patients suffer from misdiagnosis…

Join the Endometriosis Foundation of America for a series of Mind, Body & Soul strengthening workshops designed specifically for individuals with endometriosis. Workshops will be taught live via Zoom. Register below to receive a Zoom…

It all began when I was twelve years old. I was going through what every person was going through at my age: weird changes that were hard to explain or even cope with; that constant feeling of being gross ( you all know what I am talking about);…

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Dear %Subscriber:CustomField1%, As we see COVID-19 cases increasing across the country this week, we know that elective surgeries are once again being affected. From everything…

Author, screenwriter, and endometriosis educator Samantha Denäe was accustomed to painful periods; for years, her menstrual cycle was heavy, lasted for seven or eight days, and caused cramping and nausea. Countless time, doctors had told…

Endometriosis is vastly under-funded and continues to be an incredibly difficult disease to diagnose and treat. Black and Indigenous individuals and people of color (BIPOC) with endo face these barriers to receiving proper diagnosis and treatment…

The LGBTQIA community continues to face many health disparities due to bias in healthcare. These disparities are a result of multiple factors, one of which is uninformed healthcare. For example, students and trainees in health professions…

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Dear %Subscriber:CustomField1%, Summer is upon us, and we're hoping you've been able to enjoy the warmth and sunshine while prioritizing your health. June is Pride Month and an…

  I was 20 years old when they wheeled me into the surgical theater. I remember it was freezing cold and I feared for my life. Both my surgeon and the attending nurse squeezed my hands and said “we’ll take care of you.”…

At the end of March, two weeks into the pandemic, New York City food banks reported a 50 percent increase in the number of people seeking assistance. That caused Jeanne Rebillard and Margaret Cianci to wonder… “If people can’t…

June 16, 2020 PeriodNow: Because Periods Don’t Stop for Pandemics  NEW YORK, NY – At the end of March, two weeks into the pandemic, New York City food banks reported a 50 percent increase in the number of people seeking assistance.…

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Towards Change & Actionable Support Dear %Subscriber:CustomField1%, As we all know too well, endometriosis is a difficult disease to diagnose and treat. The stigma surrounding…

Donna Kesselman Raggio worked a couple of years in the fashion industry and spent a decade on Wall Street before she considered becoming a doctor. “I was 36 and didn’t feel challenged anymore, but I hadn’t even taken a biology…

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. The Call for Change in Women’s Health Dear %Subscriber:CustomField1%, We hope you are feeling physically and emotionally well in this week of reflection, action, and education.…

Join the Endometriosis Foundation of America for a series of Mind, Body & Soul strengthening workshops designed specifically for individuals with endometriosis. For up-to-date information on upcoming workshops, make sure you’re…

For confidentiality reasons, the author has wished to remain anonymous. My heavy eyelids opened up slowly. With blurred vision, I could make out the drugs trickling down from the IV bags, drip...drip...drip. It felt crazy peaceful, like the…

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. The Issue of Racism in Women’s Health Dear %Subscriber:CustomField1%, We hope you’re taking care of yourself and your loved ones in an increasingly challenging and difficult…

Before the COVID-19 pandemic, it was estimated that one in five women in the U.S. had to decide whether to spend their money on food or period supplies. Some women resort to using socks, toilet paper, diapers, and cloth rags. These statistics…