Our mission is to increase endometriosis awareness, fund landmark research, provide advocacy and support for patients, and educate the public and medical community.
Founders: Padma Lakshmi, Tamer Seckin, MD
×
Donate Now

Endofound Org

Endofound Org

The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

 

March into Awareness

March into Awareness

March into Awareness

The TCS 50th Anniversary NYC Marathon marathon is scheduled for November 7th, 2021, and we hope you'll be able to run for endometriosis awareness and advocacy. We know these are extremely uncertain times, so we ask that you please only fill out this form if you are certain about your interest and can commit to fundraise the minimum amount for charities of $3,000 per entry!

Apply Today

run for endofound

The Blossom Newsletter - September 23, 2021

The Blossom Newsletter - September 23, 2021

A Letter from Dr. Seckin: On Endo vs. Adeno  Last week, comedian Amy Schumer thanked her surgeons Dr. Tamer Seckin, EndoFound’s co-founder, and Dr. Hayama Brill for her endometriosis surgery, involving hysterectomy and appendectomy.…

The Blossom Newsletter - September 16, 2021

The Blossom Newsletter - September 16, 2021

Methods to Alleviate Endometriosis Pain: Dr. Dan Martin’s Tips How do you recognize the signs of inflammatory response, and what can you do to help curb it? EndoFound’s Scientific & Medical Director, Dr. Dan Martin, is back…

A Letter from Dr. Seckin: On Hysterectomies, Endometriosis, and Adenomyosis

A Letter from Dr. Seckin: On Hysterectomies, Endometriosis, and Adenomyosis

Last week, comedian Amy Schumer thanked her surgeons Dr. Tamer Seckin, EndoFound’s co-founder, and Dr. Hayama Brill for her endometriosis surgery, involving hysterectomy and appendectomy. Thank you, Amy, for creating awareness by emphasizing…

Enduring the Pain: Althercia Stephenson's Endo Story

Enduring the Pain: Althercia Stephenson's Endo Story

I have had menstrual pain since my period started when I was 14 years-old. Sometimes I would sleep on the cold tiles to not feel so much pain. Period cramps had me missing school, but I was told this was normal and that once I had a child the…

Social Media Policy

Social Media Policy

EndoFound applauds and fully supports any/all individuals with endometriosis bravely sharing their stories, perspectives and opinions publicly. Since every endometriosis journey is so deeply personal and unique, we realize these stories and…

We're All In This Together: Ally Bowers' Endo Story

We're All In This Together: Ally Bowers' Endo Story

Growing up as a young girl, I thought everyone went through the same period pain I did. When one of my friends would casually say, “I have the worst cramps right now, ugh,” I thought she had the same pain as I did. A pain that was…

The Blossom Newsletter - August 12, 2021

The Blossom Newsletter - August 12, 2021

The Future of Endo Care: Patient-Driven Data Dr. Noemie Elhadad, Associate Professor of Biomedical Informatics at Columbia University, is spearheading the mission to close the doctor patient gap in endometriosis care. Get to know Dr. Elhadad’s…

Teneral Cellars x Endofound Collaboration

Teneral Cellars x Endofound Collaboration

The Endometriosis Foundation of America is currently working with Teneral Cellars on a fundraising campaign. The Covid pandemic has been particularly hard on fundraising, and we are hoping to engage your support to help promote this…

From Ectopic Pregnancy to Endometriosis Diagnosis: Jenn Legnetti's Endo Story

From Ectopic Pregnancy to Endometriosis Diagnosis: Jenn Legnetti's Endo Story

On the night of March 7th, 2021, I had come home from a night out with my friends to a milkshake that my boyfriend had ordered me, as I hadn’t really eaten much that day. After taking a few sips, I started having shooting pains on the…

The Blossom Newsletter - August 5, 2021

The Blossom Newsletter - August 5, 2021

Finding Marital Support Amid An Endo Diagnosis In a powerful endo story, Hanna Szigeti details what it’s like to have both endometriosis and in-laws who attribute her worth to her child-bearing abilities. “When I realized the effects…

The Blossom Newsletter - July 29, 2021

The Blossom Newsletter - July 29, 2021

Painting NYC Yellow at the 2021 TCS NYC Marathon We’re honored to be a charity partner with New York Road Runners Club for the TCS New York City Marathon (this November 7th, 2021!), and we’re thrilled to introduce you to Team EndoFound!…

The Blossom Newsletter - July 22, 2021

The Blossom Newsletter - July 22, 2021

I Never Believed It Could Be Endometriosis Kayla experienced severe stomach pain since she was six. At 20, other debilitating symptoms began. “Most days,” Kayla writes, “I’m still unable to process what I’ve been…

The Blossom Newsletter - July 15, 2021

The Blossom Newsletter - July 15, 2021

The Endometriosis Events of 2022 Our annual Medical Conference, Patient Day, and Blossom Ball are officially booked for 2022. Throughout the past year, we still came together virtuallly to bring you Patient Day and Medicial Conference. Now,…

From Ultrasound Model to Medical School: Jenna Dvorsky’s Endo Story

From Ultrasound Model to Medical School: Jenna Dvorsky’s Endo Story

My battle with endometriosis has challenged both my body and mind in many ways. The pain and discomfort I experienced over the last 10 years has been equally taxing on my body as it has been frustrating to not have a definitive diagnosis. My…

Finding Marital Support Amid An Endo Diagnosis: Hanna Szigeti's Endo Story

Finding Marital Support Amid An Endo Diagnosis: Hanna Szigeti's Endo Story

My name is Hanna, and I have endometriosis. For years I thought the cramping, nausea, and diarrhea that accompanied my period was normal. I was one of the last girls in my group of friends to get my period, and when I finally started bleeding…

Meet The 2021 TCS New York City Marathon Team

Meet The 2021 TCS New York City Marathon Team

Get to know the amazing athletes running with Team EndoFound in the 2021 TCS NYC Marathon this November! Want to support the team as a whole? Visit our JustGiving Team EndoFound page.    Gates Palissery Current Home: Currently live…

For the First Time in My Life, I Feel Fierce: Leslie Harder's Endo Story

For the First Time in My Life, I Feel Fierce: Leslie Harder's Endo Story

My twenties were no joke. I basically got married three times, got cancer, lived in poverty, ended up without a home, and struggled needlessly with severe depression, anxiety, and undiagnosed adult ADHD. Somewhere in that whole mess, I was…

I Never Believed It Could Be Endometriosis: Kayla Roberts' Endo Story

I Never Believed It Could Be Endometriosis: Kayla Roberts' Endo Story

Growing up, I suffered from severe stomach pain which started at around six years-old. When I was about 20 years old, other symptoms began including incredibly painful intercourse, unbearable period-induced stomach pain, constant bleeding/spotting,…

The Blossom Newsletter - July 8, 2021

The Blossom Newsletter - July 8, 2021

Endometriosis & Pain Medication: What You Need to Know Last month, Amy Ganner from Derbyshire, UK, accidentally overdosed on her pain medication due to endometriosis-related pain, causing her tragic death. On EndoTV, EndoFound’s scientific…

The Blossom Newsletter - July 1, 2021

The Blossom Newsletter - July 1, 2021

Menstrual Blood Cells May Be Key to a New Diagnostic Test ROSE researcher Dr. Christine Metz tackles two significant barriers to endometriosis care: delayed diagnosis and lack of effective treatment. The ROSE research team (winner of the 2018…

The Blossom Newsletter - June 24, 2021

The Blossom Newsletter - June 24, 2021

How Gendered Language Harms Non-binary Endometriosis Patients Studies have highlighted that non-binary and trans people are more likely to experience discrimination in a medical setting and are more likely to struggle to access medical services.…

The Blossom Newsletter - June 17, 2021

The Blossom Newsletter - June 17, 2021

All Your Endo Q’s Answered: Introducing Ask the Doctors During patient and medical conferences in the past few years, the endo community had so many critical questions to the featured doctors and experts. Now, we’ll finally be able…

The Blossom Newsletter - June 10, 2021

The Blossom Newsletter - June 10, 2021

Together, we went 1097 miles to end endo Our 3rd End Endo 5K took place last weekend, and 354 participants ran, walked, biked, hiked, and even horseback rode to end endo. Team EndoFound has already raised over $32,000 and they’re still…

The Blossom Newsletter - June 3, 2021

The Blossom Newsletter - June 3, 2021

The End Endo 5K Kicks Off This Weekend! The June End Endo 5K is this weekend! From Texas to Québec, we have over 300 Team EndoFound members coming together to end endo across the map. These folks have raised an unprecedented amount of…

The Blossom Newsletter - May 27, 2021

The Blossom Newsletter - May 27, 2021

The Endo Experience Through Dance: EndoGirl Endo Girl, a short documentary dance film, portrays the endometriosis experience through dance. Directed and produced by Australian filmmaker Sophia Bender, the film tells the story of thirteen people…

The Blossom Newsletter - May 20, 2021

The Blossom Newsletter - May 20, 2021

Examining the Patient & Provider Relationship in Endometriosis Care When PhD candidate Allyson Bontempo set out to understand how endometriosis patients engage in online communities, she had hoped to recruit a modest number of survey participants—instead,…

The Blossom Newsletter - May 13, 2021

The Blossom Newsletter - May 13, 2021

An Exclusive Interview with Abby Finkenauer Abby Finkenauer, former Congresswoman for Iowa, made national headlines when she courageously shared her struggle with endometriosis on the House floor to announce the historic House Endometriosis…

The Blossom Newsletter - May 6, 2021

The Blossom Newsletter - May 6, 2021

Why I Don’t Believe in Permanent Endometriosis Remission: A Personal Essay Live on the The Blossom, endometriosis patient and writer Tara Mandarano pens a powerful personal essay on endometriosis remission, which an endometriosis expert…

The Blossom Newsletter - April 29, 2021

The Blossom Newsletter - April 29, 2021

Registration is Now Live! The 3rd End Endo 5K Registration is live for EndoFound's third End Endo 5K! Individuals with endometriosis need your help now to adapt endometriosis education to online learning, fund cutting-edge research on endometriosis…

The Blossom Newsletter - April 22, 2021

The Blossom Newsletter - April 22, 2021

Working with Endo: Three Perspectives Endometriosis is not one size fits all, and endometriosis patient, writer, and advocate Elle Hurley demonstrates exactly this in her latest piece interviewing three patients on what it’s like to work…

The Blossom Newsletter - April 15, 2021

The Blossom Newsletter - April 15, 2021

Endometriosis Pain: Recent Research & Finding Relief The exact connection between endometriosis and pain is still not well understood. Pain levels are also difficult to compare in different people. “While a pain scale is one tool,”…

The Blossom Newsletter - April 8, 2021

The Blossom Newsletter - April 8, 2021

Adenomyosis Awareness Month Read up on everything you need to know about adenomyosis, a common, often painful condition where cells from the inner lining of the uterus (the endometrium) infiltrate the muscular layer of the uterus (the myometrium).…

The Blossom Newsletter - April 1, 2021

The Blossom Newsletter - April 1, 2021

The Importance of Advocating for Yourself, A Trusted Doctor, and Menstrual Leave: An Interview with Olivia Culpo In a powerful and candid interview, model, actress, and businesswoman Olivia Culpo opens up about her endometriosis journey and…

“We Must Do Better”: An Anonymous Endo Story

“We Must Do Better”: An Anonymous Endo Story

For confidentiality reasons, the author has wished to remain anonymous. In every bag, I carried Advil. I had to make sure I had it in case I got my period. From age 12 or 13 onward, I had debilitating cramps. In the 80’s, 90’s and…

All Your Endometriosis Questions Answered by the Experts

All Your Endometriosis Questions Answered by the Experts

We’re launching a new YouTube series, "Ask the Doctors", this week on EndoTV. Hosted and executive produced by Diana Falzone, it delivers answers to the thousands of questions asked by the millions of individuals suffering from this disease.  …

Your Endometriosis Questions Answered by the Experts: <br/>New show “Ask the Doctors” launches on EndoTV hosted by Diana Falzone

Your Endometriosis Questions Answered by the Experts:
New show “Ask the Doctors” launches on EndoTV hosted by Diana Falzone

NEW YORK, NY (June 16, 2021) – Endometriosis Foundation of America (EndoFound) is launching a new YouTube series "Ask the Doctors" this week on EndoTV. Hosted and executive produced by Diana Falzone, it delivers answers to the thousands…

What Doesn’t Kill You, Makes You Advocate: Morgan Babcock's Endo Story

What Doesn’t Kill You, Makes You Advocate: Morgan Babcock's Endo Story

I write this while recovering from surgery number four. I’m surrounded by my four dogs, the Food Network on in the background, and knitting needles on the coffee table. I’m already going crazy from not working this first week, and…

An Online Social Community for Endo Patients: MyEndometriosisTeam

An Online Social Community for Endo Patients: MyEndometriosisTeam

We’re excited to announce MyEndometriosisTeam as our official online community for endometriosis patients. Launched in 2015, MyEndometriosisTeam is a free, password-protected and monitored social network with more than 115,000 registered…

The Endometriosis Foundation of America Names MyEndometriosisTeam Its Official Online Community

The Endometriosis Foundation of America Names MyEndometriosisTeam Its Official Online Community

SAN FRANCISCO (June 15, 2021) – MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today announced its partnership with the nonprofit organization Endometriosis…

Highlights from the June End Endo 5K

Highlights from the June End Endo 5K

EndoFound created the End Endo 5K as a way for endometriosis advocates from around the country to fundraise by getting moving, whether walking, running, hiking, biking, or even dancing. The fundraising event is a supportive and encouraging…

Blocking out pain became my profession: Sabra L. Crockett's Endo Story

Blocking out pain became my profession: Sabra L. Crockett's Endo Story

I was 22 when the pain started that was not associated with my period. Even though my periods were always painful and heavy, this was a persistent pain on the left side of my abdomen. I got an ultrasound, and the nurse said that I had two,…

Why I’m Fundraising to End Endo: Samantha By’s Endo Story

Why I’m Fundraising to End Endo: Samantha By’s Endo Story

When I read about my diagnosis, I had to Google the word “endometriosis”: a condition in which cells similar to those in the endometrium grow outside the uterus. When you learn about endometriosis, you learn about the pain—the…

Rising Above Endometriosis: Anna Ryan’s Endo Story

Rising Above Endometriosis: Anna Ryan’s Endo Story

At only 21 years old, I thought it would be important to share my experience with endometriosis. A misconception about this condition is that it only affects older women. In reality, if you are of reproductive age and have a uterus, you could…

Why Abby Finkenauer Fought to Double Endometriosis Funding to $26 Million

Why Abby Finkenauer Fought to Double Endometriosis Funding to $26 Million

Abby Finkenauer, former Congresswoman for Iowa, made national headlines when she courageously shared her struggle with endometriosis on the House floor to announce the historic House Endometriosis Caucus in March 2020. During her term, Finkenauer…

Learning to Become an Advocate: Samantha Chrin's Endo Story

Learning to Become an Advocate: Samantha Chrin's Endo Story

  “It can’t be endometriosis,” the gynecologist said, her voice steady and certain, to the mother of the 15-year-old girl. Her mom had asked if her daughter could have endometriosis, and the gynecologist had answered…

Women’s Healthcare is Healthcare: Avery Orrall's Endo Story

Women’s Healthcare is Healthcare: Avery Orrall's Endo Story

In January of this year, my roommate, Siobhan, walked into our apartment and found me on the floor. I was completely immobile, alternating between periods of screaming and an inability to speak due to pain. She encouraged me to go to the hospital,…

End Endo 5K

End Endo 5K

Thank you to everyone who walked, ran, hiked and biked this June to shine the spotlight on endometriosis and raise funds to change the course of the disease. We MORE THAN DOUBLED our fundraising goal, raising $32,636 to promote…

The Day I Got The Answers I Needed: Jatava Burns' Endo Story

The Day I Got The Answers I Needed: Jatava Burns' Endo Story

I got my first period when I was 15-years-old and once I turned 19 I began to have horrible periods—I’m talking legs going numb and tingling, extremely heavy periods, dizziness, and painful cramps. I did not understand what was…

The Endometriosis Foundation of America’s Announces Corinne Foxx As An Ambassador

The Endometriosis Foundation of America’s Announces Corinne Foxx As An Ambassador

NEW YORK (April 6, 2021) – Today, the Endometriosis Foundation of America (EndoFound) announced actor and producer Corinne Foxx as their newest ambassador. Foxx, 27, was diagnosed with endometriosis about five years ago. She recently…