Endofound OrgThe Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
Dear %Subscriber:CustomField1%, Thanksgiving is almost here, but for many of us, it will look very different this year, given that most of us aren't able to gather with our loved ones to celebrate. It's going to be challenging being so close…
Imagine waking up one morning, excited to get the day started because you have great things planned. You get up to walk to the bathroom to begin your morning routine when all of a sudden you feel something running down your leg. You’re…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Diana Falzone: Dr. Seckin, we received many questions from the patient conference, actually, so many we couldn't get to them during the weekend. So we have some…
Join the fight with EndoFound to help raise critical funds for 200 million individuals worldwide with endometriosis. Three way to get involved: 1. You can start a fundraising campaign and raise $200 2. You can donate to the team of 200…
Dear %Subscriber:CustomField1%, We couldn't let this year slip by without rescheduling our annual medical conference, ReOperative Endometriosis. We're excited to share that the virtual conference featuring endometriosis experts from around…
Dear %Subscriber:CustomField1%, Educating the next generation of medical professionals is essential to diagnosing and treating endometriosis. Yadira Ramos, a physician who suffers from endometriosis, highlights just how important it is in this…
Despite a Percocet, I kept tossing and turning, trying to fall asleep. I was still recovering from a recent surgery to remove a cyst (approximately 5cm) near my right ovary. I was not aware that the cyst was caused by stage 4 endometriosis.…
From Washington to Florida and Minnesota to Texas, Team EndoFound walked, ran, hiked, and biked over 796 miles to End Endometriosis on November 1st, 2020. These dedicated individuals got moving in spite of rain and snow, COVID-19 restrictions,…
Dear %Subscriber:CustomField1%, Thank you to everyone who participated in the virtual End Endo 5K on Sunday. This year has been incredibly hard for so many, and we appreciate everything you do to support EndoFound's programs, legislative advocacy,…
On March 9th, 2020, I was officially diagnosed with endometriosis, a diagnosis that my surgeon and I believe took 17 years. I was 33 years old, and after almost two decades of chronic pain and violently painful periods, I finally knew why. …
Dear %Subscriber:CustomField1%, The endometriosis community is so resilient. It's empowering to witness the camaraderie and support you offer to one another. As we embark on the final two months of what has been a life-changing year for so…
Dear %Subscriber:CustomField1%, Thank you for joining us for the Virtual Patient Conference! Curated by our Patient Advisory Committee, the conference included everything from patient stories to the latest in care from endometriosis experts.…
Virtual Patient Conference, October 16 - 18 EndoFound is excited to announce that our annual Patient Conference is going virtual this year! Join us on Oct. 16 - 18 for this conference designed specifically for individuals with endometriosis,…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 How Chronic Illness Taught Me To Find Happiness : Eva Hagberg, PhD Margaret Caspler Cianci: But now it is my honor to introduce them Eva Hagberg talking about…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Hidden & Asymptomatic Endometriosis: Why Physicians Misdiagnose Endometriosis - Dr. Adi Katz, Dr. Goldstein Brianna Majsiak: Hi, everyone. Thank you so much…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Endometriosis Outside the Pelvis - Dan Martin, MD, Michael Nimaroff MD Tamer Seckin, MD:Next speakers are again dear supporters of our foundation. Dan Martin…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Endometriosis After Hysterectomy - Dr. Rosanne Kho Margaret Caspler Cianci: Next we are delighted to welcome Dr. Rosanne Kho to speak about endometriosis after…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Mental Health & Coping with Pain - Dr. Laura Payne Margaret Caspler Cianci: Here today, we have Dr. Laura Payne with us. Dr. Payne is a clinical psychologist…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 How to advocate with your insurance Latia Lee, Moderator: Melissa Boudreau Melissa Boudreau: Hello everybody, and welcome to this advocacy session with…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Endometriosis Advocates: Supporting yourself and others with endo Les Henderson, Lauren Kornegay, Samantha Denae, Kylie Gomez Melissa:Welcome, everybody. Thank…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 IBS is BS when it is Endometriosis….Culprit in the misdiagnosis, and years of delay. Tamer Seckin, MD Moderator: Diana Falzone Diana Falzone:Now we have…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Follow Your Gut: Endometriosis & Nutrition - Lilia Bolgov, MS, RD Diana Falzone:Up next, we have Lilia Bolgov. She is a registered dietician. She's passionate…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Soothing the Pains of Endometriosis: Mind & Body - Corinne Idzal, DPT NLP RYT Diana Falzone:We have now a very special treat, because endometriosis impacts…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 How to talk to your doctor about Endometriosis - Tracey Haas, DO Diana Falzone:Now speaking of an awesome panelist, we have with us today, tonight, depending…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Virtual Patient Conference 2020: Lexie Stevenson Lexie Stevenson:Hi, everyone. Welcome to the 2020 Virtual Patient Conference. It is so crazy that we're all…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Endometriosis 101 - Dr. Goldstein and Dr. Hawkins Diana Falzone:And to join us about endometriosis, and really basic 101 endo. And I don't really think there's…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Padma Lakshmi:Hi everyone. I'm Padma Lakshmi. One of the co-founders of the Endometriosis Foundation of America. And I want to welcome you to our virtual patients…
Endometriosis Foundation of AmericaVirtual Patient Conference, October 16-18, 2020 Welcome - Margaret Caspler Cianci, A Special Welcome - Padma Lakshmi, Welcome & Foundation impact - Tamer Seckin, MD, Yellow Drink…
Dear %Subscriber:CustomField1%, Our annual Patient Conference, Live Your Best Life with Endo, kicks off tomorrow evening at 6PM (ET)! Join us for a happy hour featuring mocktails and cocktails and a welcome from EndoFound co-Founders Padma…
New York, NY - October 7, 2020 – Journalist Diana Falzone & Actress Lexie Stevenson Launch Endometriosis Foundation of America 3-Day conference on October 16 The Endometriosis Foundation of America (EndoFound) announced today that…
Dear %Subscriber:CustomField1%, Our annual Patient Conference is just one week away! We’re excited to bring you a host of panels and sessions designed for and by individuals with endometriosis. Diana Falzone, journalist and endo advocate,…
Hello, my name is Merve and I am one in ten. I want to take you through my endometriosis journey as I don’t know how I would survive and continue living a close to normal life if I didn’t have other women talking about endometriosis.…
Dear %Subscriber:CustomField1%, Our annual patient conference is only two weeks away! For the past few years, EndoFound’s patient conference has served as a time when the patient community can come together and seek answers across a wide…
I’m 29 years old and finally just got my definitive diagnosis of endometriosis—and during a pandemic, no less. My journey from the onset of symptoms to diagnosis has been similar to that of many other women: it took 15 years. My…
Dear %Subscriber:CustomField1%, The passing of Supreme Court Justice Ruth Bader Ginsburg is a profound loss. For generations, she has guided the national dialogue and the highest court in this country on gender equality, the importance of stemming…
It would be impossible for me to give you the exact number of times I was referred to the emergency room due to severe abdominal pain during my formative teenage years. Every single time, medical professionals would load me up with pain medication,…
New York, NY - September 17, 2020 Falzone sets sights on expanding endometriosis awareness on Capitol Hill and to state governments across the US. EndoFound is thrilled to announce that journalist and long-time endometriosis advocate,…
Dear %Subscriber:CustomField1%, As our community knows too well, endometriosis treatment and support is vastly under-funded and it continues to be an incredibly difficult disease to diagnose and treat. People of color face these barriers in…
Endometriosis treatment and support is vastly under-funded and continues to be an incredibly difficult disease to diagnose and treat. Black, Indigenous, and POC individuals face these barriers to receiving proper diagnosis and treatment in…
This patient resource sheet is geared specifically towards endometriosis patients of color and is meant to be used in correspondence with The Endometriosis Portal for People of Color, where patients and doctors share their diagnostic journeys,…
Endometriosis treatment and support is vastly under-funded and continues to be an incredibly difficult disease to diagnose and treat. Black, Indigenous, and POC individuals face these barriers to receiving proper diagnosis and treatment in…
As I am writing this, I am currently in bed, only two days out of my sixth endometriosis-related surgery. I’m a real veteran now. The pain I’m feeling from having my guts cut into and my insides messed around with is way too familiar.…
Dear %Subscriber:CustomField1%, Today is World Suicide Prevention Day. Each year, countless lives are lost to suicide. According to a BBC study released last fall, more than half of the 13,500 women with endometriosis who shared their stories…
How to prep and pack for surgery Every patient is different and every patient finds comfort through their own means. Based on popular and common surgery tips shared by endo patients, we recommend creating a list of groceries, items, etc. that…
A new series of endo stories: creative nonfiction by endometriosis patients. Creative nonfiction uses literary styles and techniques to tell a personal story that is rooted in fact and reality. Kelly Sgroi’s flash piece is a powerful…
Dear %Subscriber:CustomField1%, Labor Day weekend is here, and I want to give a shout-out to all of you who work so hard. It's not easy planning a career or even getting to work with endometriosis. We still have a lot of work to do when it…
Last weekend marked the first ever End Endo 5K and we are overwhelmed by our community’s generosity and support. Together we raised over $15K from hundreds of supporters, and are still going strong to surpass our fundraising goal. Team…
Dear %Subscriber:CustomField1%, Coming off the heels of our first End Endo 5K this weekend, we are amazed by the power of the endometriosis community. Runners from Alaska to Florida went above and beyond to raise over $15K for endometriosis…
