Endofound Org

    April 2020   Artwork: “Endometriosis Anatomy” by Jenna Wiebe of Duvet Days.   Endo & COVID-19: EndoFound’s First Webinar   Thank you to everyone who attended EndoFound's first webinar, COVID-19…

I never thought I would be writing my story or that I would even be in this place. I wanted to share my story to inspire hope, because I know what it feels like to lose it when you receive consistent bad news.   This all started in…

Topic: Endometriosis & COVID-19 Dr. Tamer Seckin, Co-founder of the Endometriosis Foundation of America (EndoFound), speaks with journalist Sabrina Korber on COVID-19 and endometriosis. This webinar includes recommendations for coping with…

I was 24 when the anesthesiologist put me under, but the pain started when I was 14. At 14, I had never even had my first date. I loved school, spent my free time writing fiction, and dreamed about one day walking the cobblestone streets of…

Dear Endo Family, We’re here for you, and we’re listening. We’re hoping to create ways for us to connect as a community in this incredibly difficult time.  We’re working on producing a video series featuring doctors,…

Blossom Ball 2020 Our 11th Annual Blossom Ball will be held on March 16th at Cipriani 42nd Street in New York City. Every year, Blossom Ball brings together honorable guests from the medical, research, charity, and entertainment worlds for…

Join EndoFound in supporting a request by led by Congresswoman Finkenauer and Congresswoman González-Colón directing the National Institute for Child and Human Development to allocate at least $26 million toward endometriosis…

  Abby Finkenauer, Chairwoman  Facebook  Twitter  Instagram  @abby4iowa Jenniffer González Colón (R-PR) Co-Chair Facebook Twitter  Instagram @RepJenniffer Colin…

If you have endometriosis, my heart goes out to you. Because this disease has changed my life completely. I found out I got endometriosis when I was 15; I’m currently 16. I live in a small town in Minnesota, Morris. I am originally from…

UpEndo Awareness! UpEndo Funding! UpEndo Research! #UpEndo SIGN THE PETITION Congresswoman Abby Finkenauer (IA-01) The Endometriosis Foundation of America is pleased to support Congresswoman Abby Finkenauer (Iowa - D) and the first-ever Congressional…

UPDATE (3/6/20) In response to the COVID-19 outbreak in the United States, the Foundation Board and the Chairs of the Conference have decided to postpone the upcoming Medical Conference, Postgraduate Course, Patient Day and Blossom Ball. …

   Endometriosis Information Session — One Attendee to Receive Free Egg Freezing Cycle   EndoFound is partnering with physicians from Shady Grove Fertility (SGF) New York, who will co-host a free egg freezing seminar with…

The Endometriosis Foundation of America is hosting the 11th Annual Patient Day: Live Your Best Life with Endo on Saturday, March 14, 2020, at the Alexandria Center for Life Science in New York City. Endometriosis is a disease that…

February of 2015 was one for the books; I was 11 years old at the time and in 6th grade. I was young and 100% healthy. Those were the good days. One February day my life was no longer going to be the same, and I had no idea. The morning of…

My journey began when I started having my period. While I wasn’t officially diagnosed until December 2017, I had always had debilitating period pain. I would take ibuprofen daily during my periods. Each time I would mention anything period-related…

March is Endometriosis Awareness Month, and it's important to EndoFound that we continue our mission to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. We’re…

I’ve always believed women have a higher tolerance for chronic pain and emotional trauma. This isn’t a battle of the sexes, it’s just my observation (I may be biased, of course). For me, pain was such a constant in my life…

Patient Day 2019 PROGRAMDesign Credit: Daisy Patton Dear friends and colleagues, On behalf of The Endometriosis Foundation of America (EndoFound), I am thrilled to invite you to attend our Annual Patient Awareness Day on Sunday, March…

It was February; a dreadfully cold, dreary, and gray month in London. Walking into my flat from work that night, I was exhausted; physically, mentally, and emotionally drained. My job at the time was tough  and very stressful, working…

Governor Andrew Cuomo Makes NY a Trailblazer with New Endometriosis Law New York, NY, November 27, 2019 – Over 200 million women have endometriosis, a disease that is a leading cause of female infertility. Today the Endometriosis Foundation…

Prize November 2019: 1 winner will receive a gift box of wellness products. The approximate retail value is $1000. Eligibility Any supporter who donates or raises $200.00 between November 18, 2019 and December 3, 2019, by midnight, will automatically…

The needs of all people with endometriosis, their families and caretakers are at the heart of all that we do at Endometriosis Foundation of America (EndoFound). We are committed to serving people with endometriosis through awareness, advocacy,…

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Thank you for registering for Webinar 2020 Series. Please check your email for the instructions.      In Good Health, Endometriosis Foundation of America212.988.4160

 I remember my first period. I was in the 6th grade and woke up in the middle of the night in excruciating pain. I thought to myself "I have never felt pain like this before...what is happening to me?" As the pain intensified, I started…

Medically reviewed by Tamer Seckin, MD on September 20, 2019 OVERVIEW What are the most common symptoms of endometriosis? There are many symptoms of endometriosis, but not everyone will experience all, most or even any of the symptoms.…

What is endometriosis? Endometriosis occurs when tissue similar to the lining of the uterus, or endometrium, is found outside of the womb, where the tissue should not be. The result is inflammation, as the tissue responds to the monthly fluctuations…

Get to know the amazing athletes running with Team EndoFound in the TCS NYC Marathon this November!   Michael Lewis Hometown: Montreal, Canada Favorite Food: Middle Eastern Why Team EndoFound?: I care for patients with Endo and want to…

Principal Investigator(s): Hugh Taylor, MD  Co-Investigator(s): Valerie Flores, MD / Ramanaiah Mamillapalli, PhD Institution: Yale School of Medicine Abstract: Endometriosis is a debilitating gynecologic disease affecting 1 in 10 reproductive-aged…

Principal Investigator(s): Chandra Tayade, DVM, PhD Co-Investigator(s): Madhuri Koti, DVM, PhD / Peter Gregersen, MD / Christine Metz, PhD Institution: Queen’s University & Feinstein Institute for Medical Research, Northwell Health…

Principal Investigator(s): Ie-Ming Shih, MD PhD Co-Investigator(s): Ayse Ayhan, MD PhD / Kristen Nicholes Institution: Johns Hopkins University, Department of Gynecology and Obstetrics Abstract: Scientists continue to struggle with a question…

Principal Investigator(s): Khashayarsha Khazaie, PhD DSc / Zaraq Khan, MD Institution: Mayo Clinic Abstract: Endometriosis is a common, systemic disease that is characterized by ectopic implantation of refluxed menstrual endometrium onto intraabdominal…

Principal Investigator(s): Caitlin Filby, PhD Co-Investigator(s): Caroline Gargett, PhD Institution: Hudson Institute of Medical Research Abstract: Endometriosis is a serious, chronic disorder affecting up to 1 in 10 girls and women. The debilitating…

Principal Investigator(s): Asgi Fazleabas, PhD Co-Investigator(s): Gregory Burns, PhD Institution: College of Human Medicine, Michigan State University Abstract: Endometriosis, a non-malignant disorder defined by the presence of endometrial…

Principal Investigator(s): Serdar Bulun, MD / J. Julie Kim, PhD Institution: Northwestern University Feinberg School of Medicine Abstract: Endometriosis is a disease that promotes infertility and pain in reproductive-aged women with no effective…

  Blossom Monthly Newsletter - July 2019 | Endofound.org       July 2019       New York Passes Historic Endometriosis Legislation The Endometriosis Foundation of America (EndoFound.org) is pleased to announce…

    April 2020   Artwork: “Endometriosis Anatomy” by Jenna Wiebe of Duvet Days.   Closing Out Endo Awareness Month   We hope you’re doing well as we close out Endometriosis Awareness Month and enter…

Who am I? I am a local girl who grew up in Smithtown. Like any girl, I enjoyed Long Island life. Swimming in luxurious pools (as shown in my picture) and playing outside with friends during the warm months. I remember running as fast as I could…

By Jessica DiBernardo Endometriosis is the mysterious health disease that affects one in 10 women. It is a condition in which tissue, similar to the lining of the uterus, grows in other areas of the body (Ruggeri, 2015.) There is no cure. There…

EndoFound Inspired Bill to Bring Endometriosis Education to New York’s School and Medical Practitioners  The Endometriosis Foundation of America (EndoFound.org) is pleased to announce that its year-long campaign to encourage New…

**A Personal PSA on Living with Endometriosis** By Angel Stahr  “You’re not special.” Those were words uttered by one of my physicians years ago when I went into her office to talk about my extreme cramps and heavy cycle.…

My problems started when I was 17 and rushed to the emergency room. Doctors initially thought I had appendicitis; instead, they found an enlarged cyst on my ovary. This was also around the time I was missing my periods and experiencing constant…

Georgie Kovacs Barden's path to motherhood spanned three years -- and 12 fertility treatments -- before she gave birth to her 3-year old son, Connor. At age 40, after seeing 10 doctors, she finally learned why she had difficulty getting pregnant:…

The lack of obvious symptoms can cloud diagnosis, lead to fertility problems. By Beth Levine Medically Reviewed by Kacy Church, MD Endometriosis and Infertility: What’s the Connection? According to the Endometriosis Foundation…