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Endofound Org Endofound Org

The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the EndoFound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.

Charity Streaming

Charity Streaming

Endofound Streamers can raise funds by doing what they love that will go towards supporting our programs aimed at building awareness, funding innovative research, and advocating for the 10 million women in the US with endometriosis.  …

Endofound Toolkit

Endofound Toolkit

Thank you for your interest in raising awareness for Endometriosis In This Toolkit, you will find all the resources and information you need to support our mission and promote your fundraiser Endo Stories There are an estimated 200 million…

How Georgie Kovacs is Giving Women the Tools to Seek Early Diagnosis & Treatment

How Georgie Kovacs is Giving Women the Tools to Seek Early Diagnosis & Treatment

Georgie Kovacs had just returned from her honeymoon in 2010 when she happened to have her annual OB-GYN appointment. A few days later, her doctor, who had routinely drawn blood, called Georgie to suggest seeing a fertility doctor. This surprised…

The Blossom Newsletter - July 9, 2020

The Blossom Newsletter - July 9, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Putting Patients First Dear %Subscriber:CustomField1%, One of the most startling endometriosis statistics is the 7-10 year delay in diagnosis. Endo patients suffer from misdiagnosis…

EndoFound's Wellness Workshops: HIIT Pilates

EndoFound's Wellness Workshops: HIIT Pilates

Join the Endometriosis Foundation of America for a series of Mind, Body & Soul strengthening workshops designed specifically for individuals with endometriosis. Workshops will be taught live via Zoom. Register below to receive a Zoom…

Endometriosis, while not a death sentence, is a sentence to a life in pain: Eileen Hedger's Endo Story

Endometriosis, while not a death sentence, is a sentence to a life in pain: Eileen Hedger's Endo Story

It all began when I was twelve years old. I was going through what every person was going through at my age: weird changes that were hard to explain or even cope with; that constant feeling of being gross ( you all know what I am talking about);…

The Blossom Newsletter - July 2, 2020

The Blossom Newsletter - July 2, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Dear %Subscriber:CustomField1%, As we see COVID-19 cases increasing across the country this week, we know that elective surgeries are once again being affected. From everything…

Samantha Denäe on Racial Inequities in Endo Treatment & Why Endo Education Must Start in Schools

Samantha Denäe on Racial Inequities in Endo Treatment & Why Endo Education Must Start in Schools

Author, screenwriter, and endometriosis educator Samantha Denäe was accustomed to painful periods; for years, her menstrual cycle was heavy, lasted for seven or eight days, and caused cramping and nausea. Countless time, doctors had told…

Research Articles on the Racial and Ethnic Disparities in Endo Treatment

Research Articles on the Racial and Ethnic Disparities in Endo Treatment

Endometriosis is vastly under-funded and continues to be an incredibly difficult disease to diagnose and treat. Black and Indigenous individuals and people of color (BIPOC) with endo face these barriers to receiving proper diagnosis and treatment…

EndoFound’s LGBTQIA Resource Hub for Endo Patients

EndoFound’s LGBTQIA Resource Hub for Endo Patients

The LGBTQIA community continues to face many health disparities due to bias in healthcare. These disparities are a result of multiple factors, one of which is uninformed healthcare. For example, students and trainees in health professions…

The Blossom Newsletter - June 25, 2020

The Blossom Newsletter - June 25, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Dear %Subscriber:CustomField1%, Summer is upon us, and we're hoping you've been able to enjoy the warmth and sunshine while prioritizing your health. June is Pride Month and an…

Remaining to be Seen: Aditee Kissoon’s Endo Story

Remaining to be Seen: Aditee Kissoon’s Endo Story

  I was 20 years old when they wheeled me into the surgical theater. I remember it was freezing cold and I feared for my life. Both my surgeon and the attending nurse squeezed my hands and said “we’ll take care of you.”…

PeriodNow: Distributing Period Products in NYC

PeriodNow: Distributing Period Products in NYC

At the end of March, two weeks into the pandemic, New York City food banks reported a 50 percent increase in the number of people seeking assistance. That caused Jeanne Rebillard and Margaret Cianci to wonder… “If people can’t…

 PeriodNow: Because Periods Don’t Stop for Pandemics

PeriodNow: Because Periods Don’t Stop for Pandemics

June 16, 2020 PeriodNow: Because Periods Don’t Stop for Pandemics  NEW YORK, NY – At the end of March, two weeks into the pandemic, New York City food banks reported a 50 percent increase in the number of people seeking assistance.…

The Blossom Newsletter - June 18, 2020

The Blossom Newsletter - June 18, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Towards Change & Actionable Support Dear %Subscriber:CustomField1%, As we all know too well, endometriosis is a difficult disease to diagnose and treat. The stigma surrounding…

EndoFound's Newest Board Member: Dr. Donna Kesselman

EndoFound's Newest Board Member: Dr. Donna Kesselman

Donna Kesselman Raggio worked a couple of years in the fashion industry and spent a decade on Wall Street before she considered becoming a doctor. “I was 36 and didn’t feel challenged anymore, but I hadn’t even taken a biology…

The Blossom Newsletter - June 11, 2020

The Blossom Newsletter - June 11, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. The Call for Change in Women’s Health Dear %Subscriber:CustomField1%, We hope you are feeling physically and emotionally well in this week of reflection, action, and education.…

EndoFound’s Wellness Workshops

EndoFound’s Wellness Workshops

Join the Endometriosis Foundation of America for a series of Mind, Body & Soul strengthening workshops designed specifically for individuals with endometriosis. Check back every Thursday to register for the next workshop.   Workshops…

Unsung Hero: An Endo Story

Unsung Hero: An Endo Story

For confidentiality reasons, the author has wished to remain anonymous. My heavy eyelids opened up slowly. With blurred vision, I could make out the drugs trickling down from the IV bags, drip...drip...drip. It felt crazy peaceful, like the…

The Blossom Newsletter - June 4, 2020

The Blossom Newsletter - June 4, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. The Issue of Racism in Women’s Health Dear %Subscriber:CustomField1%, We hope you’re taking care of yourself and your loved ones in an increasingly challenging and difficult…

Join PeriodNow! The Campaign to End Period Poverty

Join PeriodNow! The Campaign to End Period Poverty

Before the COVID-19 pandemic, it was estimated that one in five women in the U.S. had to decide whether to spend their money on food or period supplies. Some women resort to using socks, toilet paper, diapers, and cloth rags. These statistics…

The Blossom Newsletter - May 28, 2020

The Blossom Newsletter - May 28, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Periods Don’t Stop for Pandemics Dear %Subscriber:CustomField1%, Before the COVID-19 pandemic, it's estimated that 1 in 5 women in the U.S. had to decide whether to spend…

Period Now

Period Now

Donors can supply a woman with menstrual health products and support endometriosis awareness Nearly half of women (46%) could not afford to buy both food and menstrual hygiene products during the past year.* Nearly two thirds (64%) of women…

The Three Stages of Endo: Claudia Donea’s Endo Story

The Three Stages of Endo: Claudia Donea’s Endo Story

Denial, Struggle, and Hope  My story begins when I skipped school. I remember being comforted by the stillness and the warmth of the water in the bathtub. Any move or slight touch would cause sharp pain. I wanted to escape from my mom…

The Blossom Newsletter - May 14, 2020

The Blossom Newsletter - May 14, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Funding Critical Research that Could One Day Lead to A Cure Dear %Subscriber:CustomField1%, As we continue living in a world that calls for social distancing and the wearing of…

The Blossom Newsletter - May 21, 2020

The Blossom Newsletter - May 21, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Endo Education Begins with Young People Dear %Subscriber:CustomField1%, I hope you’re doing well this week as stay-at-home orders are slowly changing state-by-state. As always,…

An Inside Look at Endometriosis Research: Dr. Ie-Ming Shih’s $3 Million NIH Grant

An Inside Look at Endometriosis Research: Dr. Ie-Ming Shih’s $3 Million NIH Grant

The federal government gave only $13 million to endometriosis research in 2019, despite 1 in 10 US women having the disease. This equates to less than $1 per year for each diagnosed patient. Although the disease continues to be critically underfunded,…

Endo 101: Back to Basics

Endo 101: Back to Basics

Topic: Endo 101: Back to Basics Time: Sunday, May 3, 2020, 11:30am EDT   Host:  Dina Gusovsky Writer for Late Night with Seth Meyers and former CNBC journalist  Dina Gusovsky is an award-winning journalist and…

Realizing Your Dreams: An Interview with Kianna Scott

Realizing Your Dreams: An Interview with Kianna Scott

In 2016 Kianna Scott, endo patient and founder of EndoArmy, moved across the country to Virginia not knowing a single person in pursuit of her life-long dream of working in the veterinary industry with Olympic-level horses. It was shortly after…

Jessica Murnane's Favorite Things: A Healing At Home Handbook

Jessica Murnane's Favorite Things: A Healing At Home Handbook

A friend sent me this quote the other day about how this strange time is an amazing opportunity to press pause on our lives and do nothing. I know she meant well, but it sort of rubbed me the wrong way. Pressing pause isn’t really possible…

I Was Made to Feel Crazy: Christel Jules' Endo Story

I Was Made to Feel Crazy: Christel Jules' Endo Story

I used to dance. I used to sing, play the piano, and was also an aspiring actress who dabbled in pageant competitions, print work, and landed a few commercials and small roles on the big screen. Born in Manhattan, New York and raised on Long…

Candidly COVID-19 & Endo

Candidly COVID-19 & Endo

Topic: Candidly COVID-19 & Endo Sunday, April 19, 2020, 2 pm EDT   Host:  Diana Falzone     Diana Falzone is a journalist who has endometriosis. She is a contributor to Vanity Fair and serves on the advisory board for…

Diana Falzone on Why Endo Patients Need Their COVID-19 Questions Answered

Diana Falzone on Why Endo Patients Need Their COVID-19 Questions Answered

On Sunday, April 19th, at 2 PM (EDT), EndoFound is hosting its second webinar, "Candidly COVID-19 & Endo." This episode features a panel of expert physicians, including Dr. Joseph Vinetz, an expert in general infectious diseases with specialized…

The Blossom Newsletter - April 15, 2020

The Blossom Newsletter - April 15, 2020

Announcing our Endo & Covid-19 Resource Hub Dear %Subscriber:CustomField1%,  As we closed out Endometriosis Awareness Month and rolled into April, we knew the landscape was forever changed. One thing that hasn't changed is our mission…

The Blossom Newsletter - April 22, 2020

The Blossom Newsletter - April 22, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Announcing #GivingTuesdayNow Dear %Subscriber:CustomField1%, I hope you are healthy and taking care of yourself as best as you can. This continues to be a difficult time, especially…

The Blossom Newsletter - April 29, 2020

The Blossom Newsletter - April 29, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Announcing EndoFound's Next Webinar: Back to Basics Dear %Subscriber:CustomField1%, How are you doing? Based on the information we have, endo patients continue to be affected by…

The Blossom Newsletter - May 7, 2020

The Blossom Newsletter - May 7, 2020

Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Thank You for Your Support of the Endo Community Dear %Subscriber:CustomField1%, In this challenging time of the COVID-19 pandemic and stay at home orders, it is all the more important…

EndoFound's Bookshelf

EndoFound's Bookshelf

We’ve curated our favorite books about endometriosis. From novels to memoirs, we hope these books will transport and comfort you. We’ve also included nonfiction and medical books, to get you the answers you deserve. If you…

COVID-19 & Endo: More Resources

COVID-19 & Endo: More Resources

The CDC’s Coronavirus (COVID-19) website includes comprehensive COVID-19-related health tips, as well as advice for managing anxiety and stress. Columbia University Department of Psychiatry and AllenComm share COVID-19: 5 Tips to…

COVID-19 & Endo: Ask the Experts

COVID-19 & Endo: Ask the Experts

Dr. Seckin answers frequently-asked and urgent questions on COVID-19 & Endometriosis On April 5th, 2020, EndoFound CoFounder Dr. Tamer Seckin and journalist and Patient Advocate Sabrina Korber discussed COVID-19 and Endometriosis in EndoFound's…

COVID-19 and Endometriosis

COVID-19 and Endometriosis

We are living in an unprecedented and challenging time amidst the global coronavirus outbreak. The Endometriosis Foundation of America recognizes that this pandemic poses unique difficulties for those living with endometriosis and we stay committed…

Researcher Spotlight Interviews

Researcher Spotlight Interviews

EndoFound supports a wide range of innovative research studies that aim to develop better strategies in diagnosing and treating endometriosis. These studies encompass a wide range of topics, from the social impact of the disease to the molecular…

Endo as a Registered Nurse: Melissa Tucker's Endo Story

Endo as a Registered Nurse: Melissa Tucker's Endo Story

  Hi everyone, I’m Melissa. I got my first period when I was 11 years old, accompanied by severe pelvic pain that left me clenching every muscle in my body. My Mom always told me that she had the same horrific cramps during her cycle,…

The Blossom Newsletter - April 07,  2020

The Blossom Newsletter - April 07, 2020

    April 2020   Artwork: “Endometriosis Anatomy” by Jenna Wiebe of Duvet Days.   Endo & COVID-19: EndoFound’s First Webinar   Thank you to everyone who attended EndoFound's first webinar, COVID-19…

Our Infertility Journey: Kaitlin McFarland's Endo Story

Our Infertility Journey: Kaitlin McFarland's Endo Story

I never thought I would be writing my story or that I would even be in this place. I wanted to share my story to inspire hope, because I know what it feels like to lose it when you receive consistent bad news.   This all started in…

Topic: Endometriosis & COVID-19

Topic: Endometriosis & COVID-19

Topic: Endometriosis & COVID-19 Dr. Tamer Seckin, Co-founder of the Endometriosis Foundation of America (EndoFound), speaks with journalist Sabrina Korber on COVID-19 and endometriosis. This webinar includes recommendations for coping with…

Pleasant and Well-Groomed: Elizabeth Hurley's Endo Story

Pleasant and Well-Groomed: Elizabeth Hurley's Endo Story

I was 24 when the anesthesiologist put me under, but the pain started when I was 14. At 14, I had never even had my first date. I loved school, spent my free time writing fiction, and dreamed about one day walking the cobblestone streets of…

EndoFound's Virtual Community

EndoFound's Virtual Community

Dear Endo Family, We’re here for you, and we’re listening. We’re hoping to create ways for us to connect as a community in this incredibly difficult time.  We’re working on producing a video series featuring doctors,…

Blossom Ball 2020

Blossom Ball 2020

Blossom Ball 2020 Our 11th Annual Blossom Ball will be held on March 16th at Cipriani 42nd Street in New York City. Every year, Blossom Ball brings together honorable guests from the medical, research, charity, and entertainment worlds for…