One of the most startling endometriosis statistics is the 7-10 year delay in diagnosis. Endo patients suffer from misdiagnosis due to a lack of education in the medical community, among other reasons. As Eileen Hedger writes in her Endo Story this week, one doctor did not believe that she could bleed so much during her period, and proceeded to tell her that she was tracking her cycle wrong.
The racial bias in healthcare, barriers to optimal treatment among lower-socioeconomic status women, and now yesterday's Supreme Court ruling on limiting access to birth control only add to the problem. Making it more difficult for women with endo to get the timely care they deserve is a step backward.
Your ongoing support of EndoFound helps move us forward, but we still have a long way to go. We’re launching a resource portal for racial inequity in endometriosis care soon. We’re also continuing to partner with organizations to amplify each other’s voices. Check out the Black Women's Health Coalition, which is advocating for six essential hospital changes: equity accountability, health education for adolescents, diversity training, prejudice-free communication, a pain management protocol, and inclusivity in research.
In our COVID-19 world, EndoFound continues educating the public and medical professionals, advocating for more research funding, and providing endometriosis education and awareness programs. The pandemic poses unique difficulties for those living with endometriosis and we stay committed to supporting you.
Please consider donating today. Your support is the key to a better future. Thank you!
Executive Director, EndoFound