Endometriosis Foundation of America: ‚ÄčAn Online Patient Community
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days.
Announcing #GivingTuesdayNow

Margaret Cianci

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I hope you are healthy and taking care of yourself as best as you can. This continues to be a difficult time, especially for endo patients. EndoFound is responding to meet the needs of the endo community during the COVID-19 crisis by providing free information and support. From our online resource hub to live webinars with experts and weekly newsletters, we are jumping into action with endo patients as our number one priority.

For this reason, I am excited to announce that EndoFound is an official charity partner of #GivingTuesdayNow, a global day of giving and unity on May 5, 2020, created as an emergency response to the unprecedented need for nonprofit fundraising caused by COVID-19.

GoFundMe is matching #GivingTuesdayNow donations. Please consider a donation of $100 now as the match is first-come first-serve.  

Join Our Giving Tuesday Campaign!

Thank you for actively participating in Candidly COVID-19 & Endo, EndoFound’s second live webinar. Journalist Diana Falzone was joined by Dr. Joseph Vinetz, Dr. Laura Payne, Dr. Tomer Singer, and Dr. Tamer Seckin to discuss a variety of topics relating to endo, including mental health, fertility, and vulnerability to infection. If you missed the conversation, a recording is available on our endo and COVID-19 resource hub here.

We want to hear from you. What topics would you like covered in upcoming webinars? If you have suggestions, please email webinar@endofound.org so we can plan for the future with your needs in top priority.   

Be well,

Margaret Cianci
Executive Director, EndoFound

Everyone is shopping from home these days. It's our new norm for the time being. When shopping with Amazon, we ask you to please consider using Amazon Smile to support EndoFound. We receive a .5% donation from all qualifying purchases if you select us as your charity. Remember that you have to login at smile.amazon otherwise if you go straight to Amazon you’re not donating. You can also simply follow this link: https://smile.amazon.com/ch/20-4904437

Webinar Recap: Candidly COVID-19 & Endo

In a time of widespread physical distancing, thank you for virtually coming together to discuss Candidly COVID-19 & Endo. Moderator Diana Falzone was joined by Dr. Joseph Vinetz, Dr. Laura Payne, Dr. Tomer Singer, and Dr. Tamer Seckin to discuss the impact of COVID-19 on endometriosis patients. The panelists focused on vulnerability to infection, mental health, and endometriosis. In addition, they covered the topic of whether or not it’s too early to resume a fertility cycle. Dr. Tomer Singer, director of Shady Grove Fertility Center New York, advises making a plan. “Uncertainty adds to anxiety and depression,” Dr. Singer said. “I think having a plan during this time of uncertainty will help.”

To help take care of your mental health, Dr. Laura Payne, Director of the Clinical and Translational Pain Research Laboratory at McLean Hospital/Harvard University, suggested limiting your news intake, as well as aiming to behave in a non-anxious way. “If you find yourself feeling very anxious, wiping things down, etc., try to limit that behavior. The behavior will inform how you feel.” Dr. Joseph Vinetz, professor of infectious disease at Yale Medicine added that there are different and scalable ways that we will be able to overcome this. “This will pass,” he said. “It is temporary.” 

A recording is now available on our website and we look forward to bringing you more conversations in the coming weeks. We also want your feedback. What topics would you like to see covered in future webinars? Please email webinar@endofound.org with your suggestions.

Watch Now
A Day to Do Good:
#GivingTuesdayNow on May 5th

Double your impact! GoFundMe is matching #GivingTuesdayNow donations. Please consider a donation of $100 now as the match is first-come first-serve.

Giving Tuesday was inspired to launch an additional global day of unity to take place on May 5 as a response to the unprecedented need caused by COVID-19. Its mission remains the same: a day to do good and come together by giving to your charity of choice.

As EndoFound continues working to provide the estimated 7 million women in the US affected by endometriosis with the support and information they need, please consider joining our Giving Tuesday Campaign by donating. Only with your help can EndoFound continue to provide free information, adolescent education, cutting-edge research, and support to endometriosis patients and their loved ones.

Join Our Giving Tuesday Campaign!

Thank you to everyone across the country who has fundraised in support of endometriosis! From birthday fundraisers to running 5Ks, you make it happen. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. To create a fundraiser, please visit our Everyday Hero page or set up your fundraiser on Facebook.

Jessica Murnane's Favorite Things: A Healing At Home Handbook

Endo advocate, cookbook author, and podcast host Jessica Murnane shares her favorite ways to make her mind and body happier during this time. With a bespoke, curated list of recommendations for ways to heal at home, Jessica recognizes that “stress and endo can be a very problematic duo. We need to really do our best to find calming support for our bodies and minds right now.”

From virtual puzzles to endo-friendly recipes, Jessica has shared an invaluable resource on ways to decompress by doing some things you love while at home. Read all of Jessica's suggestions on The Blossom!

Jessica also launched her website, Know Your Endo, which she developed with EndoFound board member and surgeon Dr. Karli Goldstein. Know Your Endo (KYE) provides education, awareness, and support for those living with endometriosis. Check it out!

Jessica’s Favorite Things
Run with Team EndoFound in the NYC Marathon!

Calling all runners! We’re still building our NYC Marathon team according to the guidance of the New York Road Runners Club. If you’d like to be a part of our fifty person team, please fill out this form and we will get back to you shortly.

While it is a difficult time for fundraising, we are committed to our mission and must continue to raise awareness and funds to help the lives of endometriosis patients. Join us! 

Sign Up for Team EndoFound!
Spotlight on Endo Advocates

Looking for something to listen to? Endo patient and advocate Melissa Boudreau launched an endometriosis podcast in 2019 and has been producing new episodes ever since. The Cycle is a podcast about endometriosis stories from patients and also includes helpful information about the disease and ways to cope with it.

The Cycle
"I was Made to Feel Crazy": Christel Jules' Endo Story

For years, medical professionals told Christel Jules that the pain she was experiencing was in her head. She was left to embark on a quest for answers with no guidance. “The trickiest part of endometriosis for me was feeling in the dark,” Christel writes. “I had suspected I had it all along and I was made to feel crazy.”

Read Christel’s full story here. And remember, you too can share your story. We need your voices now more than ever. Visit this page for further details or email writers@endofound.org.

Christel’s Endo Story

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

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We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.