Early detection and diagnosis
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Let’s Talk About Sex & Endometriosis…Seriously!

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Top International Faculty Convenes to Talk about Sex…and Endometriosis…Seriously!
At the EFA's Second Annual Scientific Symposium

“We are here today to exchange options and ideas.”
- Symposium Chair, Tamer Seckin, MD

In support of this event, EFA acknowledges the generous gift made by the Leon Lowenstein Foundation, Inc. in behalf of Kim Bendheim, Co-Chairman and Director of the Foundation, along with the genorosity of our event partners, Ethicon Endosurgery, Simbionix, Karl Storz Endoscopy, Lumenis Lasers, Abbott Medical, endometriosis.org and the Endometriosis Research Center.

Praise for the EFA’s 2011 Scientific Symposium:

“After listening to those speakers, I am going to recommend that my best friend speak to her doctor because she has many of the signs that were discussed today – and has had them since she was 13 and has been on birth control pills ever since.  Hopefully, I can help someone that I deeply care about as a direct result of attending today’s sessions.” – Health Media attendee

“Amazing job on the conference...what an inspiration to so many women!”-Leading MD/Surgeon

“Thanks to & yours for providing such a forum in which to meet, share, learn & grow. I know this is but the root that will branch off exponentially. Each 1 teach 1...”-Researcher

“I am hoping that one year I can meet Padma and tell her that she is the reason my girlfriend got help and is better now.”-Partner

“…this was the best year!”-World-renowned scientist

“I came out of the conference full of information to share and to help others.”-Patient

“…this conference was not only even better than last year, but also the fact that more patients were there and they learned a lot…the 2 day structure was just amazing.”-Caregiver

“Thank you for your gift - of opening our eyes to the options of treatment, caring and educating yesterday with your panel of doctors. Patients are in need to be heard and helped on many levels. This forum allowed our voices to be heard outside of the doctor’s  offices, outside of our friends and family's ears…women came from all over the US to be there and join in this journey to not only help and spread the word, but to find answers to our questions to solve the mystery of this disease.”-Patient

“You are a pioneer…on the forefront of treating this scourge of young women!”-Top-ranked gynecologist

The Endometriosis Foundation of America is very grateful to the international panel of experts, health professionals, patient constituency, public, and all those who came together in NYC on March 18 and 19, 2011 to attend our second annual scientific symposium.  Hundreds of delegates were present, with countless more more joining via our live webcast, united in the common mission of advancing the dialogue on all aspects of the disease.

Throughout both days of the conference, one significant message was clear: women are suffering, being misdiagnosed and continuously mistreated. Endometriosis is estimated to affect the lives of 1 out of 10 women, and although it may not be fatal, the disease holds devastating effects on the quality of life of a woman and all those in her life, personal and professional.

EFA Co-Founder Padma Lakshmi. EFA Co-Founder Tamer Seckin, MD with 2011 Honorees Dr. David Redwine & Dr. Caroline Gargett. EFA Co-Founder Padma Lakshmi. EFA Co-Founder Tamer Seckin, MD with 2011 Honorees Dr. David Redwine & Dr. Caroline Gargett.
EFA Co-Founder Padma Lakshmi. EFA Co-Founder Tamer Seckin, MD with 2011 Honorees Dr. David Redwine & Dr. Caroline Gargett.

Chaired by EFA Co-Founder and President, Tamer Seckin, MD, this exciting event brought together leaders in endometriosis from the realms of molecular science, research, industry and surgery, including Foundation 2011 Honorees Caroline Gargett, BAppSci, MAppSci, PhD and David B. Redwine, MD, FACOG, ACGE; Scientific Co-Chairs Keith Isaacson, MD, C.Y. Liu, MD and Harry Reich, MD; and Faculty members Michael Divon, MD, Asgerally T. Fazleabas, PhD, Linda Griffith, PhD, Victor Gomel, MD, Lone Hummelshøj, Pinar Kodaman, MD, PhD, Franklin D. Loffer, MD, Marta Meana, PhD, Iris Orbuch, MD, Resad Pasic, MD, PhD, Elizabeth Poynor, MD, William Rodgers, MD, PhD, Adam Romoff, MD, Juan Salgado-Morales, MD, Neeta Shah, MD, Wendy Winer, RN, BSN, CNOR, Mike Berkley, LAc., Heather Ropplo-Guidone, Jessica Brown, MD, Deborah Coady, MD, Jhumka Gupta, MPH, ScD, Dena Harris, MD, A. Douglas Heymann, MD, FACS, Kelly Jacob-Burns, Tanmoy Mukherjee, MD and Iris Orbuch, MD.

At its core, the EFA's second annual scientific symposium dared to tackle dyspareunia - a provocative, politically-charged conundrum that has never before been presented in a dedicated setting. Dyspareunia, a known symptom of Cul-de-Sac endometriosis, remains a largely ignored crisis of female sexual health and well-being. Defined as painful sexual intercourse, dyspareunia is one of the many devastating symptoms that affects women in their most sexually active years, yet is rarely addressed.  Lone Hummelshøj, Chief Executive of the World Endometriosis Research Foundation, revealed the far-reaching effects of dyspareunia on the patient - from her psychological well-being, self-esteem and body image to her relationships - in her presentation “Sex in the Morning? Perhaps not for Women with Endometriosis!” Driving her point home, Hummelshøj pointed to the World Health Organization’s earlier determination that a satisfying and safe sex life is, in fact, a “fundamental human right.”

The first day of the conference was comprised of the EFA's traditional scientific and surgical symposium, in which patient, healthcare providers and women’s health professionals who attended as delegates had the crucial opportunity to learn from the renowned faculty; it is the Foundation’s mission that such education be applied in those individuals’ own practices in order to improve the delivery of care to their endometriosis patients. During the first session, “Biochemistry & Molecular Science of Endometriosis,” famed Pathologist William Rodgers, MD, PhD illustrated the significance of an ongoing project of the Foundation - the establishment of a Tissue Procurement Facility.  As Dr. Rodgers explained, studies on endometriosis cannot be done effectively without actual samples of the tissue, which are often lost in such surgical approaches as vaporization. In correspondence with these efforts, Linda Griffith, PhD and Keith Isaacson, MD of the MIT Center for Gynepathology Research, discussed current research efforts toward an understanding of the cues and signals of the disease, studying patient samples and comparing similarities and differences.  The world’s foremost authority on stem cell research, Caroline Gargett, BAppSci, MAppSci, PhD, also presented her critical data concerning the role of endometrial stem cells in gynecological disease and how they can be targeted for potential treatment of the disease.

EFA Co-Founder Padma Lakshmi took the stage Friday to thank attendees and ask if those present would continue to “help us by spreading the word…be our soldiers in the field…so that younger generations of women do not go through what I went through.”

Introducing session two, “Love, Sex, Happiness & Endometriosis,” international microsurgery pioneer Victor Gomel, MD spoke of the urgent necessity for comprehensive disease education and understanding within the medical community.  Dr. Gomel emphasized that a surgeon treating endometriosis must have the appropriate knowledge and interest in this field coupled with the willingness to follow a patient, in order to truly evaluate the effectiveness of her care. In his landmark session three presentation, Asteroid Detection, HOX Genes & Endometriosis, Dr. David Redwine reiterated the enigmatic nature of the disease - endometriosis is positionally static, following a pattern as it develops, rather than simply spreading at random; in tandem with this, aggressive excision has been demonstrated clearly to be the best option for satisfactory patient outcome. In concurrence with Dr. Redwine’s lecture, world-renowned surgeon Harry Reich, MD emphasized that medical treatment “never works, though it is looked at favorably by the health care industry due to costs.”  Dr. Reich reiterated the message that excision surgery is essential to fighting against this disease.

The theme continued throughout the day, with revealing clinical presentations on endometriosis syndromes, primate model data updates, associated infertility, surgical demonstrations and much more from panelists.

Conference moderator Heather Roppolo-Guidone, EFA’s Chief Medical & Science Coordinator and Saturday Co-Chair, opened the second day by encouraged participating patients to take advantage of the open forum, saying “if we don’t speak for ourselves, no one will speak for us.” Recounting the origins of the conference, Dr. Seckin explained to the audience, “you are the reason that we got this going…we saw that patients were not being treated properly…we saw that we were missing things…and not being taught how to properly treat you.”  He also reemphasized the mission of the Foundation: “we need to create awareness, along with education…I continue to look for the truth.”  The unique, patient-centric theme of Saturday’s workshops encouraged extensive dialogue between attendees and panel experts.  The novel event – the first of its kind in the United States - gave patients and caregivers unparalleled access to leaders on the disease, affording the opportunity to exchange ideas, ask for guidance, share suggestions, and most importantly, allow women’s voices to be heard.

Friday's sessions were webcast live in an interactive format and watched by countless participants from around the globe.  Click our video gallery to access individual lecture and interview downloads.

Currently, in addition to ongoing research projects and awareness efforts, the Endometriosis Foundation of America is looking ahead to next year’s Conference, Going to the Roots.  Check back frequently as we continue to bring you updates on our efforts.  Thank you again for your ongoing support of our critical mission!


medical conference 2011 Sponsors - Leon Lowenstein Foundation medical conference 2011 Sponsors - Ethicon medical conference 2011 Sponsors - Abbott
medical conference 2011 Sponsors - Simbionix medical conference 2011 Sponsors -Lumenis medical conference 2011 Sponsors -Storz
medical conference 2011 Sponsors -ERC medical conference 2011 Sponsors - Endometriosis.org WCE

Let’s Talk About Sex & Endometriosis…Seriously!

Friday, March 18, 2011 8:00 am – 4:00 pm

Time Presentation Title Speaker(s)

7:30 am – 8:00 am

Continental Breakfast | Sponsor Exhibits | Faculty Meet & Greet

8:00 am – 8:10 am

Welcoming Remarks /
Update on Endometriosis Foundation of America

Tamer Seckin, MD, EFA President

Chairs: Michael Divon, MD, Franklin D. Loffer, MD & Elizabeth Poynor, MD

8:10 am – 8:30 am

Endometriosis Primate Model Data: an Update

Asgerally T. Fazleabas, PhD

8:30am – 8:40am

Endometriosis & Implantation Failure

Pinar Kodaman, MD, PhD

8:40am – 9:00am

Systems Biology of the Peritoneal Cavity in Endometriosis

Linda Griffith, PhD & Keith Isaacson, MD

9:00am – 9:25am

Role of Endometrial Stem Cells in Gynecological Disease

Caroline Gargett, MD, PhD

9:25am – 9:50am

Research Role of Endometriosis Tissue Bank /
Pathology of Endometriosis: Unanswered Questions & Challenges

William Rodgers, MD, PhD

9:50am – 10:05am

Question & Answer Session

10:05am – 10:20am

Refreshment Break & Sponsor Exhibits

Chairs: Resad Pasic, MD, PhD, Jessica Brown, MD & Adam Romoff, MD

10:20am – 10:45am

Introduction: Love, Happiness, Sex & Endometriosis

Victor Gomel, MD

10:45am – 11:00am

Sex in the Morning? Perhaps not for Women with Endometriosis!

Lone Hummelshøj

11:00am – 11:25am

Painful Intercourse: Why Surgery is Not Enough /
Taking Sex Seriously: Psychosocial Correlates of Dyspareunia

Marta Meana, PhD

11:25am – 11:40am

What I have Learned - and what Others can Learn from my Experience with Endometriosis

Padma Lakshmi

11:40am – 11:45am

Concluding Remarks: Do You Now Understand Better About Love, Happiness, Sex & Endometriosis?

Victor Gomel, MD

11:45am – 12:00pm

Question & Answer Session

12:00 pm – 1:00 pm

Lunch Break & Sponsor Exhibits

Chairs: Harry Reich, MD & Wendy Winer, RN, BSN, CNOR

1:00 pm – 1:25 pm

Asteroid Detection, HOX Genes & Endometriosis

David Redwine, MD

1:25pm – 2:05pm

Clinical Presentations /
Surgical Treatment of Endometriosis of the Upper Vagina & Cul-de-sac, Including Ureter & Bladder

C. Y. Liu, MD

2:05pm – 2:25pm

Panel Discussion

Chairs & Speakers

2:25 pm – 2:40 pm

Refreshment Break & Sponsor Exhibits

2:40pm – 3:00 pm

Radical Excision of Endometriosis with Hysterectomy & Bowel Resection

Harry Reich, MD

3:00pm – 3:15 pm

Complications of Excision Surgery of the Cul-de-sac: How can we Prevent Them?

Tamer Seckin, MD

3:15 pm – 3:30 pm

The Obliterated Cul-de-sac: Surgical Approaches & Access

Resad Pasic, MD, PhD

3:30 pm – 3:40 pm

Diagnostic Value of Vaginal & Rectal Sonographic Mapping /
Comparing Virtual Colonoscopy & MRI

Juan Salgado-Morales, MD

3:40 pm – 3:50 pm

Panel Closing Remarks: the Future of Endometriosis Surgery & the Surgeon of Tomorrow / Adjournment

Tamer Seckin, MD | Harry Reich, MD | C.Y. Liu, MD | Elizabeth Poynor, MD



Faculty & Agenda Subject to Change.

Let’s TALK about Endometriosis…
…and Sex, and Pain, and Infertility, and Surgery!
First International Workshop for Patients about Sex & Endometriosis
at the New York Academy of Sciences
7 World Trade Center
250 Greenwich Street, 40th Floor
New York, NY 10007
Saturday, March 19, 2011

CONFERENCE DIRECTOR: Tamer Seckin, MD, EFA Co-Founder & President  |  CO-CHAIRS:  Lone Hummelshøj | Heather Roppolo-Guidone

SATURDAY FACULTY: Mike Berkley, LAc. | Jessica Brown, MD | Deborah Coady, MD | Victor Gomel, MD | Jhumka Gupta, MPH, ScD | Dena E. Harris, MD | A. Douglas Heymann, MD, FACS | Kelly Jacob-Burns | Marta Meana, PhD | Tanmoy Mukherjee, MD | Iris Orbuch, MD | Neeta Shah, MD | Wendy Winer, RN, BSN, CNOR

Saturday March 19, 2011  9:30am – 2:30pm


9:30am – 10:00am

Continental Breakfast | Sponsor Exhibits | Faculty Meet & Greet

10:00am –10:10am

Plenary: Welcome
Tamer Seckin – Opening Remarks
Heather Guidone – Unmet Needs in Endometriosis

10:10am – 10:25am

Keynote: the Paradigm Shift in Women’s Health
Neeta Shah

10:25am – 10:30am

“NO END IN SIGHT”: Poem by Jennifer Meanor

10:35am – 11:25am

Everything you ever wanted to know about Surgery …but were Afraid to Ask!
Moderator: Heather Guidone

We will talk about what happens when you have surgery for endometriosis: how do you choose a surgeon?  What is a “bowel preparation”, how do you prepare for surgery – and how do you recuperate?

Wendy Winer

Discussion/Q&A with panel
Workshop participants | Tamer Seckin | Iris Orbuch
A. Douglas Heymann | Wendy Winer

Painful Sex
Moderator: Lone Hummelshøj

We will talk with women and their partners about why sex can be so painful when you have endometriosis and ways in which it may be possible to overcome this, including techniques to avoid painful intercourse.

Marta Meana

Discussion/Q&A with panel
Workshop participants | Marta Meana
Victor Gomel | Kelly Jacob-Burns
Deborah Coady | Dena Harris

11:25am –11:35am

Comfort Break | Refreshments

11:35am –12:25pm

Teenagers & Young Women with Painful Endometriosis
Moderator: Lone Hummelshøj

We will talk with adolescents (and their parents) about how to deal with endometriosis pain at a young age, including how to cope, go to school, look after yourself – and get on with having a good time!

Victor Gomel

Discussion/Q&A with panel
Workshop participants | Jhumka Gupta

Fertility & Assisted Reproduction
Moderator: Heather Guidone


We will talk about how endometriosis may affect fertility and what can be done in terms of assisted reproductive technologies and surgery to improve the chances of pregnancy.

Tanmoy Mukherjee

Discussion/Q&A with panel
Workshop participants | Jessica Brown | Kelly Jacob-Burns

12:30pm – 1:00pm

Comfort Break | Refreshments

1:05pm – 1:55pm

Complementary Therapies in Endometriosis / Fertility
Moderator: Heather Guidone

We will talk about how complementary therapies such nutrition, acupuncture, herbs, and exercise may help sustain health in women with persistent painful endometriosis to help improve their daily lives.

Mike Berkley

Discussion/Q&A with panel
Workshop participants | Mike Berkley | Jessica Brown
Iris Orbuch | Kelly Jacob-Burns

Painful Sex
Moderator: Lone Hummelshøj

We will talk with women and their partners about why sex can be so painful when you have endometriosis and ways in which it may be possible to overcome this, including techniques to avoid painful intercourse.

Marta Meana

Discussion/Q&A with panel
Workshop participants | Marta Meana
Victor Gomel | Dena Harris | Deborah Coady

:00pm – 2:25pm

What have we talked about today?
Lone Hummelshøj

Pain & Teenagers (Victor Gomel)
Sex (Marta Meana)
Fertility (Tanmoy Mukherjee)
Surgery (Wendy Winer)
Complementary therapies (Mike Berkley)
Summary (Lone Hummelshøj)

2:25pm – 2:30pm

Closing Remarks / Adjournment
Tamer Seckin – Co-Founder & President, Endometriosis Foundation of America

Faculty & Agenda Subject to Change.




EFA Co-Founder & President Tamer Seckin, MD opens the EFA's 2nd Annual Scientific Symposium

I think the applause goes back to you from me. Thank you really, indeed,…

Asgerally T. Fazleabas, PhD

What I would like to do with you today is first give you a…

Pinar Kodaman, MD, PhD

Let us for the last few minutes focus on endometriosis and how it impairs…

Dr. Keith Isaacson

A good way that Linda has described this to me, and this is actually…

MIT's Linda Griffith, PhD

Let me take you through one example of how we are thinking about cues,…

Caroline Gargett, MD, PhD

What we are doing is we want to combine these novel synthetic scaffolds, which…

William Rodgers, MD, PhD

I believe what most of our scientists have been showing us is as they…

Lone Hummelshøj

Did you know that the World Health Organization actually has classified having a satisfying…

Marta Meana, PhD

Let us take a closer look at the prevalence of pain and endometriosis. This…

EFA Co-Founder Padma Lakshmi

I have spoken so much about my own personal journey that I do not…

Dr. Victor Gomel, the 'father' of microsurgery

Tamer Seckin it is a privilege to be here in this wonderful place with…

David Redwine, MD

You are probably wondering why we are here talking about asteroids and astronomy. I…

C. Y. Liu, MD

Here is superficial peritoneal endometriosis. These types of endometriosis are superficially implanted and most…

Harry Reich, MD

Having said that, to make myself clear, I do have to echo what Padma…

Resad Pasic, MD, PhD

Looking at the objective on this talk is to review the surgical options present…

Juan Salgado-Morales, MD

First we are going to talk a little bit about virtual colonoscopy. Virtual colonoscopy…

Fanklin D. Loffer, MD, EVP of AAGL

The availability of the laparascope to allow the early diagnosis to be made, and…

Vanessa Martinez & Walt Hummel talk about the partner's perspective

For me personally as a survivor and someone who is going through this illness…