William Croyle is a former writer with the Cincinnati Enquirer. He is the author of 11 books, including co-author with Tamer Seckin, MD, of The Doctor Will See You Now: Recognizing and Treating Endometriosis and EndoMEtriosis: A Guide for Girls.
Nearly three dozen speakers will present at EndoFound’s 15th Annual International Medical Conference, from 8 A.M. to 5 P.M. on May 2 and 3, at the Jay Conference Center, 109 W. 39th Street in New York City. Planned and implemented in…
My name is Milcah Macatiag. My friends and colleagues call me Mylks. I’m a critical care nurse in Northern California with three decades of experience in healthcare. My professional journey has led me through several pivotal roles at…
Padma Lakshmi, co-founder of EndoFound, shared her endometriosis story on April 3 at the 45th annual Simmons Leadership Conference, hosted by Simmons University at the John B. Hynes Veterans Memorial Convention Center in Boston. According to…
The first line in President Joe Biden’s executive order that advances women’s health research and innovation is what those suffering from endometriosis have been clamoring for from elected officials for decades: “My Administration…
Over the last decade, this writer has helped hundreds of women with endometriosis tell their stories to give them a voice, spread awareness about the disease, and provide readers who may have symptoms but no answers with someone they can relate…
For more than 20 years, Dan Lerner has been chasing the answer to the question, What does happiness have to do with achieving excellence and success? He shares his findings daily with everyone from Fortune 500 executives to military personnel…
Dr. Dan Martin, EndoFound’s scientific and medical director, will attend the American College of Obstetricians and Gynecologists 42nd annual Congressional Leadership Conference from March 3-5 in Washington, D.C. Dr. Martin’s attendance…
Lauren Kornegay’s late mother left her daughter with profound words of wisdom. “She always said, ‘If there’s a void, you fill it, and if you want something done, you do it yourself,’” Kornegay said. “That’s…
Sophia Tarasenko had never heard of endometriosis until she read an article about it in Science News magazine 16 months ago. Since then, she’s conducted scientific research on it, has made it the topic of her entry in a regional science…
Ciji Castro has three young daughters. She’s also suffered through seven miscarriages due to endometriosis, which took two decades to diagnose. On March 2 and 3 in New York City, she will speak at the 15th Annual Endometriosis of America…
How old we are does not necessarily reflect the age of our body’s cells. While we cannot control the former, the latter—impacted by our environments, lifestyles, and experiences—is something we can control to an extent to…
Many endometriosis patients find the strength and resilience during their journey to turn their pain into something positive. Shakira O’Garro has taken that to the extreme, transforming her pain into a career. O’Garro, a licensed…
Katie Burns received a grant from EndoFound in 2017 for $25,000 over two years. She used that as seed money to develop data to apply for larger grants to study how the environmental toxicant phthalate, a chemical found in plastics and personal…
Dana Sellitto suffered from endometriosis symptoms for two decades before finally being diagnosed in June. She had surgery in July, and just 14 weeks later, on Nov. 5, she ran the New York City Marathon, her first full marathon. It took her…
“It was truly an honor when they asked me to be on the cover and share my story,” Culpo said. “I know this magazine reaches a lot of people who are looking for answers to their health issues, and I’ll do whatever it…
Jeanne St. Claire asked the writer of this story almost as many questions about endometriosis as he’d asked her. She also ordered Dr. Tamer Seckin’s first book, The Doctor Will See You Now, during the interview so it would…
Gail Albritton of El Dorado, Arkansas, began feeling significant pain during her periods as a teenager 60 years ago. With endometriosis awareness nearly nonexistent, she continued to suffer from the symptom every month for more than three decades…
When Clare Murphy agreed in the spring to captain EndoFound’s Team EndoStrong for the New York City Marathon on Nov. 5, she didn’t know what to expect in her new role. Today, she struggles to find the words to describe what she’s…
Nobody wants to talk about the most brutal time in their life, including Lindsay Jankovitz. For her, that was in high school nearly 20 years ago when endometriosis began taking over her body. But Jankovitz has bravely been sharing her story…
Nicole Allen graduated from West Point, achieved the rank of major, and ran on the Army Ten Miler team at Fort Hood (now Fort Cavazos) in Texas. She did it all while battling endometriosis and adenomyosis. Now, at 34, Allen is about to run…
*trigger warning for references to medical trauma* June 26, 2023, will forever be the day that changed my life. My name is Aubrey Svensson, and I am an incoming M1 medical student. I graduated with a degree in psychology from The Ohio…
Mary Groninger has never run a marathon. She’d also never heard of EndoFound until a Google search last spring. Now she’s training for the world’s largest race as a member of Team EndoStrong. “It’s been a whirlwind…
I was eight years old the first time I rode a horse. It was also the first time I fell off, as a nearby car backfired and scared the horse—but I got back on and never stopped riding. Even when the indoor riding arena collapsed under the…
Dan O’Brien has just about done it all when it comes to running, including half marathons, full marathons, and Ironman triathlons. But something the 26-year-old hedge fund trader from New York has never done is tie his running to a charity,…
Asbury Park is where Bruce Springsteen started, and Alexandra Jardvall has aspired to play. The 48-year-old Swedish-born singer and songwriter has been performing since she was 12, and now her wish is about to come true. “My dad…
Grace Kunkel is shooting for a time of 3:45 in her first New York City Marathon on Nov. 5. That would eclipse her personal record by eight minutes. But for Kunkel, the race is more about the journey than the destination. “I love running…
Mara Natkin and Gloria Ramirez don’t have endometriosis, but when the owners of Artery Ink in Milwaukee learned about it, they felt compelled to do something to bring awareness to the disease that affects millions. “It’s…
Avery St. Sauveur has been in pain from endometriosis for most of the last decade, but that’s not stopping her from training for her first full marathon—the world’s largest on Nov. 5. “While the New York City Marathon…
Every woman with endometriosis has a unique story about her journey with the disease. Autumn Weimann’s may be one of the most unusual. The 31-year-old Orange County, Calif., resident started feeling symptoms in high school one day each…
Team EndoStrong raised nearly $170,000 for EndoFound last year by running in the TCS New York City Marathon. Clare Murphy, who is running for and organizing the team for this year’s marathon on Nov. 5, expects to blow away that number.…
Bernadette Higgins was in middle school the day she got her first period. She was 12 years old. “I was doubled over in pain and in the nurse’s office the second it happened,” Higgins said. She was sent home early by…
Simran Datta was sitting in her AP Language Arts and Composition class one morning, engrossed in her writing assignment. Though she was menstruating that day and typically bled a lot, she wasn’t worried since she’d just changed…
Bernadette Higgins was 12 years old when she got her first period. It was the beginning of a nightmare. “I thought it was cool when I got my period because all the girls were getting them, but I knew something was wrong,” she said.…
Michela Bedard hears one consistent story in her work: those living in poverty need to decide what essential goods to buy each month, and menstrual products generally don’t make the cut because of priorities like food, heat, and electricity.…
The most extensive study ever conducted on endometriosis genetics has revealed a shared genetic basis for endometriosis and other types of pain, including migraine, back pain, and multisite pain. It also provides a clear distinction between…
Dr. Ted Lee, a longtime friend of EndoFound, approached the Centers for Disease Control in 2019 with a proposal to create more diagnosis codes for endometriosis. He expected it would be a long process involving extensive work, but it had to…
One in five women in the U.S. is infertile, defined by the Centers for Disease Control and Prevention as when a pregnancy does not occur after at least a year of unprotected sex. And one of the leading causes of infertility is endometriosis.…
Deniz Kocas is a clinical psychology Ph.D. student at The New School for Social Research in New York City. For the next 18 months, she will focus on her dissertation project—exploring the relationship between the stigma around endometriosis…
Stephen Palmer, Ph.D., who has dedicated more than 30 years to drug discovery and development, has been named one of EndoFound’s Harry Reich Award recipients. Palmer is an associate professor at Baylor College of Medicine and the chief…
Dr. Jacques Donnez, a highly decorated surgeon from Belgium, will receive EndoFound’s Harry Reich Award this weekend for his lifelong contributions to the healthcare of women with endometriosis. The foundation will present the award to…
Alicia Vitarelli has had three laparoscopic surgeries for endometriosis, her most recent one just eight weeks ago. Yet the anchor and reporter for 6abc Action News in Philadelphia will travel to Los Angeles next week to cover the Oscars, and…
Corinne Foxx began experiencing endometriosis symptoms with her first period at age 12. The pain peaked in 2018 when she was 24 and still had no diagnosis. “It became so intense that I would keel over and pray that I would pass…
Laurie Berke-Weiss has been an attorney for four decades, primarily focusing on employment and labor issues. She’s never had a case involving endometriosis, but as she learns more about the disease, she understands what patients may be…
Rachel E. Gross says she was destined to be a nerd. Her father is a physicist. Her mother is a family medicine doctor. Her stepmom is a molecular biologist. While being a doctor or scientist wasn’t Gross’ calling, writing about…
Latia Lee started to try to get pregnant in July 2019. Nearly four years and three clinics later, she is due to have her first child in July. As Lee discusses in this episode of Let’s Talk Period on EndoTV with Diana Falzone, advocating…
A decade ago, one of Dr. Aimee Eyvazzedeh’s patients couldn’t get pregnant and was about to abandon the hope of growing her family. “I told her, ‘Don’t give up. I still think there’s a chance,’”…
Lexie Stevenson is the lead actress in a movie scheduled to air on Lifetime and Amazon Prime in a few months. Still untitled, the picture is based on The Tinder Swindler Netflix documentary. Producers cranked out the filming in three weeks…
Renowned conservationist and Australian television personality Bindi Irwin recently underwent surgery in New York City at the Seckin Endometriosis Center in Lenox Hill Hospital. She is the daughter of the late Steve Irwin, best known for his…
One of Olivia Lee’s life mottos is, “The more you know, the more you owe.” Lee, a special education attorney with Disability Rights Texas, put that adage into action by drafting House Bill 1298 with Texas Rep. Harold…
Connecticut State Rep. Jillian Gilchrest has been a powerful advocate for endometriosis patients during her three years in office. In this brief but impactful Endo TV episode of Let’s Talk Period with host Diana Falzone, Rep. Gilchrest…