Endometriosis Foundation of America: ‚ÄčAn Online Patient Community

Margaret Cianci

Dear %Subscriber:CustomField1%,

The endometriosis community is so resilient. It's empowering to witness the camaraderie and support you offer to one another. As we embark on the final two months of what has been a life-changing year for so many, I want to assure you that EndoFound will continue to be a source of support. We learned so much together at the Virtual Patient Conference earlier this month, and from all we gleaned from your questions, comments, and feedback, we are feverishly working to bring you new programs for 2021.

The year is winding down, and EndoFound is gearing up for its #GivingTuesday and End of Year fundraising. I ask that you please consider a donation. Large or small, every donation counts. Your support educates women about endometriosis, sows the seeds of research, educates medical professionals about the disease, and unifies our voice to advocate for change with our elected officials. Together we can end the 7 to 10-year delay to diagnosis, and we won't rest until early diagnosis and treatment are the norm, not the exception.

Next week undoubtedly will bring more change as a country facing unprecedented challenges seeks to find a way to move forward together amidst a global pandemic. Now more than ever, it is essential that we continue to work together as a community to advocate for women's rights. Be assured that EndoFound will continue to be a strong advocate for you. 

In community,


Margaret Caspler Cianci
Executive Director, EndoFound

Why Lauren Manguso is Ending Endo

Lauren Manguso is participating in the End Endo 5K because she never wants another woman to go through what she’s been through. “The more awareness and funding brought to researching this condition,” Lauren says, “the faster we can make diagnoses, provide treatment, and find a cure for endometriosis.” Lauren is one of the top fundraisers and has already raised over $300 to end endometriosis! Thank you, Lauren. Why are you on a mission to End Endo? Join the 5K team today to share your story.

Support Lauren’s 5K
This Weekend! The End Endo 5K

Double your impact! We are very excited to announce that an anonymous donor has committed to match donations dollar-for-dollar if we reach our goal of $15,000 for endometriosis research and education programs. There are still spots open to join Team EndoFound for the End Endo 5K this weekend. Find your own course to walk, run, hike, bike, or even horseback ride to help shine the spotlight on this disease. Show support for the urgent issues facing our endometriosis community, particularly during COVID-19. Let’s make an impact this November to ending endo. 

End Endo Today
Menstrual Disorders Inclusion in Kenyan Education Curriculum

Our friends at EndoSisters East Africa Foundation have worked tirelessly to require menstrual disorders to be taught in schools across Kenya—and their work has paid off! The Kenya Institute of Curriculum Development (KICD) recently announced that menstrual disorders education, including endometriosis, will now be included in their Competency-Based Curriculum (CBC). As Doris Murimi, CEO of EndoSisters EA, says, "It took me 30 years to get my endometriosis diagnosis. So having menstrual disorders education taught in schools is a big win. Girls can get help sooner and the cycle of stigma, myths, and taboos around menstruation can finally be dispelled." Thank you, Doris, and everyone at EndoSisters for your hard work! Let’s keep advocating for similar education across the globe.

Read More
Now On Demand: The Virtual Patient Conference

Our Virtual Patient Conference is now available on demand! To access the conference, we are asking the community to register and give a suggested donation so that we may continue to offer this type of programming free of charge. From Endo 101 to extrapelvic endometriosis and patient advocacy, these sessions and panels can serve as your endometriosis toolkit. The Virtual Patient Conference was a wonderful opportunity for us all to connect as a community in a meaningful way, and we are excited to bring you more educational programming as well as live forums to answer all of your questions. Thank you to all of our panelists and speakers and to our attendees for your active participation.

On Demand Endo Education
Celebrate Your Birthday with EndoFound!
Do you have a birthday coming up? Celebrate with EndoFound! Click here to set up your Facebook birthday fundraiser. From birthday fundraisers on Facebook to running 5Ks, you make it happen. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. Thank you to everyone across the country who has fundraised in support of endometriosis.


Your Birthday Fundraiser

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Remember that you have to login at smile.amazon in order to donate. You can also simply follow this link.

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We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.