Endometriosis Foundation of America: ‚ÄčAn Online Patient Community

Margaret Cianci

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Back in March, we were devastated to have to cancel our annual Patient Day due to the pandemic. Patient Day has always been a time for patients to come together, learn, and get the information and support they need. Now, I’m delighted to share that our annual Patient Day is going virtual this year, and will be a full weekend affair. Mark your calendars for October 15-18th.

Lace up your running shoes because the first virtual End Endo 5K is this weekend. We can’t wait to digitally cheer on Team EndoFound, who has already raised nearly $11K from hundreds of supporters! Thank you to all our supporters and fundraisers. If you'd like to join Team EndoFound, register here. Or, you can support the team by making a donation here. And be sure to save the date for our next virtual 5K on Nov. 1st.

We’re also featuring an EndoNews article on the physical and psychological impact that painful sex has on young people and a spotlight on Atra Asdou’s End Endo fundraising. We’re also excited to share an exclusive interview with endometriosis patient and advocate Alaia Baldwin Aronow, who discusses the importance of early diagnosis, nutrition, and period poverty. Thank you, Alaia, for your advocacy!

In community,
Margaret Caspler Cianci

Executive Director, EndoFound

Endo Tip of the Week:

Before attempting new pain management options, please consult your doctor to ensure your management plan fits your case. These tips are not meant to replace proper treatment.

Talking to a therapist can help you see your thoughts from a new and different perspective. A therapist can help reduce feelings of isolation, can provide strategies to assist in pain management, help with relationship issues feelings of isolation as well as a place to share the burden of what you may be feeling that you may not be comfortable sharing with family and friends. Thank you to Annie B., Nicole K., Sarah W., and Lorna H. for sending in this recommendation to our Endo Tip Jar.

Register Today! Virtual Patient Day 2020

Registration is now open for our first-ever Virtual Patient Day on October 15th-18th! Patient Day was created by patients, and for patients, and will continue to feature a diverse series of panels, keynotes, and breakout groups to help arm you with the tools you need to live your best life with endo. We are honored to feature a faculty of doctors and patients as speakers on this day, as we believe that living with endo requires a collaborative and interdisciplinary effort that prioritizes the patient’s voice. Join us for an informative, supportive, and educational weekend. Best of all, Patient Day is now free! 

Register for Virtual Patient Day
My Main Endometriosis Symptoms Were Pain: Alaia Baldwin Aronow

Endometriosis: A Guide for Girls is the second book from EndoFound co-founder and award-winning physician Dr. Tamer Seckin, and it includes a foreword by Alaia Baldwin Aronow. Last week, Alaia spoke with journalist Sabrina Korber on the importance of educating teens, nutrition, period poverty, and more. Watch the exclusive interview today. All proceeds of Endometriosis: A Guide for Girls go towards funding EndoFound's programs and research.  

Alaia Baldwin Aronow’s Interview
Why Atra Asdou is Fundraising to End Endo

“This is my first 5K for a cause,” End Endo participant and top fundraiser Atra Asdou shares, “and I was really nervous. What if I don't meet my goal? What if I share my story and nobody cares? What if I can't leave the house day-of because I'm in pain from my period? But my community of mostly artists dug deep into themselves, sharing their support through witnessing my story, donating, and messaging me about their own stories relating to endo. They showed me a better What If: ‘What if we can do this?’" Atra Asdou is running the End Endo 5K in Chicago this weekend to not honor not only her own battle with endometriosis, but the journey of “so many like me, especially BIPOC who are severely underrepresented in the education, access, and research of gynecological science and medicine.” Thank you, Atra!

Meet Atra on Team EndoFound
The Impact of Painful Sex on Physical & Mental Wellbeing

According to a study published in the Journal of Adolescent Health, painful sexual intercourse has a negative effect on the physical and mental health of young adult individuals both with and without endometriosis. However, the effect is stronger in individuals with endometriosis compared to those without. The authors concluded that clinicians should ask adolescents and young women about painful sex, not just about contraception and the prevention of sexually transmitted diseases.

The Impact of Painful Sex
We’re Working to End Period Poverty

For two months now, PeriodNow has been combating period poverty and spreading endometriosis education throughout NYC. Working with local agencies, food banks, and nonprofits, we’re getting period supplies to anyone who needs them during this difficult time. Each package of period supplies includes an insert on endometriosis to ensure that people can recognize a disease that is still so often misdiagnosed. But we still need your help to distribute product as well as bring PeriodNow to more states.

Help End Period Poverty
Save the Dates!

Mark your calendars for EndoFound’s virtual events planned for 2020. We’re looking ahead to 2021, too!

Do you have a birthday coming up? Celebrate with EndoFound! Click here to set up your Facebook birthday fundraiser. From birthday fundraisers on Facebook to running 5Ks, you make it happen. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. Thank you to everyone across the country who has fundraised in support of endometriosis!

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

Endometriosis Foundation of America - 872 FIFTH AVENUE NEW YORK, NY 10065
Phone: +1 646.854.3309 - endofound.org

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Disclaimer: The information contained on the Endometriosis Foundation of America ("EndoFound") web site and social media is provided for your general information only. EndoFound does not give medical advice or engage in the practice of medicine. The EndoFound under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

References to any entity, product, service, or source of information not related to the EndoFound in this site should not be considered an endorsement, either direct or implied, by the Endometriosis Foundation of America. The EndoFound does not recommend or endorse any specific tests, products, procedures, opinions or other information that may be provided on any linked web sites. The linked web sites may contain text, graphics, images or information that you find offensive. EndoFound has no control over and accepts no responsibility for such materials.

We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.