Endometriosis Foundation of America: ​An Online Patient Community

Margaret Cianci

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Last week the house approved Rep. Abby Finkenauer’s push to double federal research funding for endometriosis and the amendment now moves to the Senate. This is such great news for the endo community. Let’s keep the momentum going. 

Many of you have been asking how you can help. As always, spread the word about endo and advocate in your community, state, or your Congressional representatives. It’s also important to raise money for research: you can help us reach our next goal of $25K through the End Endo 5K by donating or signing up to participate today. At EndoFound, to date, we’ve funded over $1 million dollars in academic research. The money you’ve raised and donated goes directly to academic researchers in the United States. Those researchers then use the funds we provide as seed funding; they test their hypotheses and are then able to attract more funding from larger institutions like the NIH or the Department of Defense.

You can read more about how EndoFound’s seed funding helped Dr. Ie-Ming Shih attract a $3 million NIH grant. Your donation today will fund these academic researchers who are working tirelessly to improve endometriosis care and diagnostics, and one day find a cure for this debilitating disease.


Read on for a new endo story by medical student Kanwal Ojha, updates from our work with PeriodNow, and the film festival rePRO.

In community,
Margaret Caspler Cianci

Executive Director, EndoFound

Endo Tip of the Week:

Before attempting new pain management options, please consult your doctor to ensure your management plan fits your case. These tips are not meant to replace proper treatment.

According to scientific researchers, practicing yoga is associated with a reduction in levels of chronic pelvic pain and an improvement in quality of life for women with endometriosis. As Kim G. from East Texas writes, “One session can cut the pain by 50% and stay low until the next day.” Thank you to Jamie E., Kim G., Annie B., JoAnne M., and Lorna H. for sending in this recommendation to our Endo Tip Jar. You can watch our Astro Live yoga class today!

PeriodNow & The Importance of Endo Education

For two months now, PeriodNow has been combating period poverty and spreading endometriosis education throughout NYC. Working with local agencies, food banks, and nonprofits, we’re getting period supplies to anyone who needs them during this difficult time. Each package of period supplies includes an insert on endometriosis to ensure that people can recognize a disease that is still so often misdiagnosed. As endo advocate Francis Rojina says, “Education on menstrual-related disorders is imperative to leading healthy and productive lives.”

Help PeriodNow!
I Was Angry for My Younger Self: Medical Student Kanwal Ojha’s Endo Story

Kanwal Ojha, a medical student at Tulane University, powerfully details the years of debilitating cramps and misdiagnoses she experienced since she got her first period at the age of 11. Although Kanwal’s dad is a physician, she insightfully expresses the frustration she felt when she couldn’t tell him that her pain was tied to her period due to the stigma that surrounds menstruation. Kanwal hopes to pursue pediatric care and champion the voices of younger patients, especially those of young females. Thank you, Kanwal, for telling your story!

Read Kanwal's Story
16 Days Left to Get Moving with the End Endo 5K!

16 days until the End Endo 5K on August 22 and 23! There’s still time to join Team EndoFound. Find your own 5K course (3.1 miles) to walk, run, hike, bike, swim or even dance to End Endo. Your support is more important than ever. Endometriosis care has been critically affected by the COVID-19 pandemic due to postponed surgeries and doctor appointments and delayed IVF treatments. We need your help to fund the research needed for a cure. Can’t join this one? Be on the lookout for our next End Endo 5K on November 1st, to make up for the cancelled NYC Marathon.

Join the End Endo 5K
Believe Me It’s My Body: Film Panel Announcement

EndoFound is honored to be one of five selected beneficiaries of money raised for rePRO​, a five-day virtual film festival which advocates for women's reproductive justice. EndoWhat?, a must-watch documentary directed by Shannon Cohn that features accurate and expert-informed information on endo, will be screened on Thursday, 8/13 at 7PM (ET). EndoFound’s Director of Marketing, patient, and patient advocate, Melissa Boudreau, will also be participating in a panel, A Call-to-Action Conversation to empower women to demand adequate services from your healthcare providers.

Get Your Tickets Today

To create your own birthday fundraiser, you can follow this link to EndoFound’s Facebook today! From birthday fundraisers on Facebook to running 5Ks, you make it happen. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. Thank you to everyone across the country who has fundraised in support of endometriosis!

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

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We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.