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How are you doing? Based on the information we have, endo patients continue to be affected by the COVID-19 pandemic. From postponed surgeries to strained pain management plans, we know it’s a difficult journey, and we’re here for you. We are continuing to make your wellbeing our priority at EndoFound. If you have a moment, please complete this survey to help us understand how you are doing during this difficult time. Your input will help us help you in the weeks and months to come. 

I’m excited to announce our third webinar, Endo 101: Back to Basics. Based on your feedback, we recognized that many patients want to arm themselves with the basics of endo pain management and treatment, especially during this difficult time. Gynecologic surgeon Dr. Karli Goldstein, who is an endo patient herself, will be joined by patient advocate Jessica Murnane to discuss the basics of living with, managing, and treating endometriosis. Journalist Dina Gusovsky will moderate the conversation.

As our staff continues to work from home, we increasingly need your help in order to continue the work we do. As a result of COVID-19, EndoFound canceled all of its fundraising events, including the Blossom Ball. To make up the shortfall, we need your support now more than ever to continue building awareness of the disease, advocating for the community, educating adolescents, and supporting cutting-edge research. GoFundMe is matching #GivingTuesdayNow donations. Please consider a donation of $100 now as the match is first-come-first-serve. 

Last week the coronavirus stimulus package included two new changes for donors to nonprofits. The CARES act will allow a temporary universal charitable deduction up to $300 for cash gifts for the 2020 tax year. For donors who are still able to itemize their deductions, the current deduction cap is 60% of adjusted gross income. For more information, please visit this page.  

Together we will make it through this stronger than before.

In community,

Margaret Cianci

Executive Director, EndoFound

Everyone is shopping from home these days. It's our new norm for the time being. When shopping with Amazon, we ask you to please consider using Amazon Smile to support EndoFound. We receive a .5% donation from all qualifying purchases if you select us as your charity. Remember that you have to login at smile.amazon otherwise if you go straight to Amazon you’re not donating. You can also simply follow this link: https://smile.amazon.com/ch/20-4904437

You spoke and we listened! In our next webinar, Endo 101: Back to Basics, EndoFound Board member Dr. Karli Goldstein, a gynecologic surgeon at the Seckin Endometriosis Center, and Jessica Murnane, author, podcast host, endo patient, and advocate put the focus back on endometriosis.  

Moderator Dina Gusovsky, a former CNBC journalist who now writes for Late Night with Seth Meyers, leads the discussion on getting back to basics including diagnosing and treating endometriosis, pain management, and nutrition options.

This informative crash course arms you with the tools you need wherever you are in your endo journey. Whether you’re suspecting endometriosis for the first time or have just had your fourth surgery, Dr. Goldstein and Jessica are here to talk. This webinar can help those who haven’t heard of endo but may be experiencing pain, as well as educate friends and family members who don’t know much about the disease. Invite your friends, family, endo advocates, and fellow supporters! Please note: we have updated the original time to 11:30AM (EDT). 

Calling all gamers! We're looking to partner with online streamers to fundraise for endometriosis. Please complete this interest form and we will contact you as soon as registration is open.

Double your impact! GoFundMe is matching #GivingTuesdayNow donations. Please consider a donation of $100 now as the match is first-come first-serve. 

GivingTuesday is a global generosity movement unleashing the power of people and organizations to transform their communities and the world.  #GivingTuesdayNow is a worldwide day of unity to take place on May 5, 2020, as a response to the unprecedented need caused by COVID-19.  Its mission remains the same: a day to do good and come together by giving to your charity of choice.

EndoFound is tasked with educating an estimated 7 million U.S. women with the signs and symptoms of endometriosis. There are still so many women who have never even heard the word endometriosis, let alone understand the symptoms. With your support, EndoFound is continuing to create partnerships, programs, and outreach to inform the public, elected officials, the medical community, and anyone who will listen that endometriosis is a public health crisis. Through education and advocacy, together we can help so many more women who suffer with this debilitating disease. As the impact of COVID-19 continues to change our daily lives, we cannot forget that women are suffering from endo—now more than ever. Please join our Giving Tuesday Campaign by donating. Every little bit helps!

In 2016 Kianna Scott, endo patient and founder of EndoArmy, moved across the country to Virginia not knowing a single person in pursuit of her life-long dream of working in the veterinary industry with Olympic-level horses. It was shortly after her move when a doctor told her that her back pain was due to overexerting herself. The doctor told her to stop riding and working with horses forever which would have resulted in her losing her apartment, her job, and her new found life.

EndoFound spoke with Kianna last week about EndoArmy, on why information and community remains as important as ever for endo patients, and how endo patients can continue to realize their dreams despite their disease. Today, Kianna is planning her Trail Ride Campaign, a 6-month journey on horseback from Mexico to Canada on the Pacific Crest Trail. Kianna never gave up on her dream, and her mission with Endo Army is stronger than ever: you can realize your dream too.

EndoFound recently sat down with Ie-Ming Shih, MD, PhD, who is the Richard TeLinde Distinguished Professor of Gynecologic Pathology at the Johns Hopkins University School of Medicine. In this interview, Dr. Shih discusses how he recognized the need for high impact research in endometriosis and applied his training in gynecologic pathology and cancer molecular genetics to conduct endometriosis research. His project, funded by EndoFound in 2018, revealed that deep-infiltrating endometriosis (DIE) harbors somatic cancer-associated mutations and was published in the New England Journal of Medicine. With excitement, Dr. Shih discusses how these preliminary results motivated him and his team to collaborate with other researchers and apply for an NIH grant. This has resulted in an award of over $3 million which Dr. Shih hopes will result in better diagnosis and treatment for women with endometriosis. Dr. Shih expresses his sincere gratitude to EndoFound for providing the seed funding for the initial project that made it possible to apply to the NIH.

Subscribe to EndoNews for the latest in endometriosis research from around the world.

Hello Endo Chick is a boutique clothing shop on Etsy created to spread awareness, promote change, and inspire others. Kailey, owner and founder, was diagnosed with endometriosis in 2016 after suffering for years with unexplained pain. “Before I was diagnosed,” Kailey said, “I had never heard of the word endometriosis. I was shocked to find out that 1 in 10 women have it. I am proud to use my voice to tell my story and hopefully inspire others to do the same.”

One of the first resources she found after diagnosis was EndoFound. “The Endometriosis Foundation of America is a valuable source for all women. Their site is full of information and creates a supportive online community for Endowarriors. The research they are conducting paves the way for a better understanding of this complex disease.” For these reasons, Kailey donates a portion of every sale to EndoFound. Thank you, Kailey!

If you have a project or company with proceeds donated to EndoFound, please let us know by emailing generaladmin@endofound.org!

Calling all runners! We’re still building our NYC Marathon team according to the guidance of the New York Road Runners Club. If you’re interested in a chance to be a part of our fifty person team, please fill out this form. 

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

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Disclaimer: The information contained on the Endometriosis Foundation of America ("EndoFound") web site and social media is provided for your general information only. EndoFound does not give medical advice or engage in the practice of medicine. The EndoFound under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

References to any entity, product, service, or source of information not related to the EndoFound in this site should not be considered an endorsement, either direct or implied, by the Endometriosis Foundation of America. The EndoFound does not recommend or endorse any specific tests, products, procedures, opinions or other information that may be provided on any linked web sites. The linked web sites may contain text, graphics, images or information that you find offensive. EndoFound has no control over and accepts no responsibility for such materials.

We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.