Endometriosis Foundation of America: ‚ÄčAn Online Patient Community
Webinar
Announcing our Endo & Covid-19 Resource Hub

Margaret Cianci

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 As we closed out Endometriosis Awareness Month and rolled into April, we knew the landscape was forever changed. One thing that hasn't changed is our mission and support for those affected by endometriosis. EndoFound recognizes that this pandemic poses unique difficulties for those living with endometriosis, and supporting you remains our top priority. Our community is suffering: delayed surgeries, painful periods that don’t go away just because there’s a pandemic, fear of endometriosis as an underlying condition of COVID-19, and anxiety as we all wait for the world to return to normal.

In these difficult times, we’ve rolled up our sleeves, gone virtual, and are more determined than ever to continue our important work. We’ll continue to share resources, host webinars and Twitter chats, grow our online community so that we can support one another, keep research moving forward, and continue to advocate and educate so that endometriosis doesn’t get lost in the chaos of this new normal.

To provide support for our endometriosis community, we created a resource hub on COVID-19 and endometriosis. It includes expert advice from endometriosis, infectious disease, and infertility specialists, as well as tips for eating better, good reads, and so much more. From wellness practices to upcoming webinars about COVID-19 and endo, we hope this evolving resource hub provides information, guidance, and strength.

This Sunday, April 19th at 2 PM (EDT), we are hosting our second webinar, “Candidly COVID-19 & Endo.” Moderated by journalist Diana Falzone, who has been covering COVID-19 for Vanity Fair, guests include Dr. Joseph Vinetz, an infectious disease specialist from Yale School of Medicine, and EndoFound cofounder Dr. Tamer Seckin. The webinar concludes with a Q & A. 

As we continue working to provide you with the support and information you need, please consider a donation. Your dollars support critical work, including education for adolescents, advocacy for endometriosis legislation, and funding for endometriosis research. Research gets us closer to finding better diagnosis and treatment options and someday, a cure.

To make a donation visit our website or give us a call 212-988-4160. Join us in our mission today! 

Thank you, and be well!

Margaret Cianci
margaret
Executive Director, EndoFound

Everyone is shopping from home these days. It's our new norm for the time being. When shopping with Amazon, we ask you to please consider using Amazon Smile to support EndoFound. We receive a .5% donation from all qualifying purchases if you select us as your charity. Remember that you have to login at smile.amazon every time you shop otherwise you’re not donating. You can also simply follow this link: https://smile.amazon.com/ch/20-4904437

In addition, we're looking to partner with online streamers to fundraise for endometriosis! Please complete this interest form and we will contact you as soon as registration is open. 

Webinar Series: Candidly COVID & Endo
Webinar

Join us for our second webinar, "Candidly COVID & Endo," on Sunday, April 19th, at 2 PM (EDT). Journalist Diana Falzone will moderate, and guests are EndoFound cofounder Tamer Seckin, MD, and Joseph Vinetz, MD, an expert in general infectious diseases with specialized expertise in tropical medicine and traveler's health from Yale School of Medicine. The discussion will target immunology, endometriosis, and COVID-19. 

Please submit questions to be considered for the Q&A to webinar@endofound.org. You will also have an opportunity to submit questions during the webinar's Q&A session via Zoom.

Missed our last webinar? The full recording of Dr. Seckin and Sabrina Korber’s conversation on COVID-19 and endometriosis is now accessible on our website.

Tweet Chat Recap with Dr. Karli Goldstein and Dr. Michael Nimaroff
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EndoFound and Everyday Health co-hosted a Twitter Chat on Thursday at #EverydayEndoChat titled "How will the coronavirus pandemic impact ongoing endometriosis treatment?" Special guests were Karli Goldstein, MD, an endometriosis surgeon with the Seckin Endometriosis Center, and Michael Nimaroff, MD, Sr. VP of OB/GYN at Northwell Health and Chair of OB/GYN NSUH & LIJ Medical Center.

The chat included ten questions, including "is endometriosis considered a disease that makes people immuno-compromised or at high risk for complications from COVID-19?" Dr. Nimaroff says, "Endometriosis is not considered an immune-compromised condition that might put women with the disorder more susceptible to infectious diseases." Dr. Goldstein agrees, adding that "[endo] is not auto-immune, meaning there are no known antibodies that are produced as a reaction to endometriosis lesions."

To read Dr. Goldstein’s and Dr. Nimaroff’s full answers including information about IVF treatments during the pandemic, please visit our resource hub.  

Thank you to everyone across the country who has fundraised in support of endometriosis! From birthday fundraisers to running 5Ks, you make it happen. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. To create a fundraiser, please visit our Everyday Hero page or set up your fundraiser on Facebook.

Research Spotlight: Katie Burns, PhD 
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EndoFound recently sat down with Katie Burns, PhD, an endometriosis researcher at the University of Cincinnati College of Medicine. An endometriosis patient herself, Burns discussed how her participation in a National Institute of Health (NIH) clinical trial inspired her research.

Dr. Burns’ research focuses on environmental chemicals that may contribute to developing endometriosis, non-hormonal treatments for endometriosis, and immune cells that may initiate endometriosis. She discusses why her relationship with EndoFound has been critical to her research, and talks about the challenges endometriosis researchers face. Dr. Burns closes by offering suggestions for future endometriosis research.

Subscribe to EndoNews for the latest in endometriosis research from around the world such as a recent article on a study entitled Early Life Factors for Endometriosis.

Living Life At Home! EndoFound’s Bookshelf
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We've curated our favorite books about endometriosis for all your quarantine needs. From novels to memoirs, we hope these books will transport and comfort you. We’ve also included nonfiction and medical books, to get you the answers you deserve. Take a peek at our bookshelf via this link!

If you purchase your book on Amazon, use Amazon Smile and choose Endometriosis Foundation of America as your preferred organization and a portion of the proceeds will directly benefit our mission. We’ve also created an Amazon list to easily access the books we recommend!

Dr. Seckin’s Potent Endo Mocktail Recipe
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During EndoFound's April 5th webinar, cofounder and guest speaker Dr. Tamer Seckin mentioned that now is the time to boost your immune system and increase your vitamin C intake. He's been drinking a potent daily mocktail of grapefruit, orange, and pomegranate juices blended with garlic, dill (which has a very high concentration of zinc), turmeric, and ginger to help support his immune system. He recommends endo patients to try the same!

The Endo Mocktail:

  1. Juice 1 grapefruit, 1 orange, and 1 pomegranate
  2. Toss juice into a blender and add 1 minced clove of garlic, a handful of dill, 2 tsp. of ground turmeric, and fresh (or ground) ginger
  3. Enjoy!
Spotlight on Endo Advocates
Webinar

Looking to indulge in a charming story while supporting the endometriosis community? Check out Inky Corgis, an illustrated book on corgis by endo advocate and Disney illustrator Michael Woodside! All proceeds go to EndoFound. Thank you Michael for your support!

"My wife has endometriosis,” Michael says, “and some days can be very challenging for her. We have a corgi at home who brings us a lot of joy, even in the hard times. I decided to put together a little book of happy corgi watercolors to help spread some joy and put the money to a great cause."

If you have a project or company with proceeds donated to EndoFound, please let us know by emailing generaladmin@endofound.org!

Spotlight on Endo as a Registered Nurse
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In Endo Stories, Melissa Tucker, a registered nurse and Endo Educator, details her journey with endometriosis and infertility. “This is not just a physical disease, but also emotional, spiritual, mental, and financial,” Melissa writes. “I am only one person, but if I am able to tell my story and help one other person, then my efforts have succeeded.”

Melissa is also a volunteer Endo Educator and has taught our ENPOWR lesson at two of her local high schools. Thank you Melissa for your dedication to educating young girls and boys about endometriosis!

Read Melissa’s full story here. And remember, you too can share your story. We need your voices now more than ever. Either visit this page for further details, or email writers@endofound.org.

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

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