Endometriosis Foundation of America: An Online Patient Community
What is Perimenopause & How Has it Been Linked to Endometriosis?

A new study, published January 2022, has concluded that there’s a “statistically significant association” between laparoscopically-confirmed endometriosis and early natural menopause, meaning people who had laparoscopically-confirmed endometriosis may have a shorter reproductive span. Researchers from a range of universities and colleges analyzed the data of 106,633 women between the ages of 25 and 42 who took part in the Nurses’ Health Study II (a long-term study where each woman would fill in a survey every two years between 1989 and 2015). On The Blossom, Alice Broster dives into what endometriosis patients should know about perimenopause, and what you should do if you start to notice its signs and symptoms. 

Perimenopause & Endo
Citizen Advocacy Coalition Briefing: UpEndo

On Tuesday, May 11 (12PM-1PM), join former Congresswoman Abby Finkenauer, who founded the House Endometriosis Caucus in 2020, to learn how you can advocate for endometriosis policy changes on Capitol Hill in a virtual coalition meeting. The coalition pursues high-visibility opportunities, including Congressional hearings, federal agency and White House initiatives, and media opportunities and events. UpEndo focuses explicitly on Congressional committees that have jurisdiction over issues of interest to the coalition, such as the House and Senate Health Appropriations Subcommittees and authorizing committees. To join the UpEndo Coalition and take part in this meeting, please get in touch with Jeanne Rebillard, Director of Communications & Government Relations, at jeanne@endofound.org.

UpEndo Advocacy Updates
How One Patient Thoroughly Explained Her Symptoms to a Doctor

Alexa had already seen countless doctors when she decided that she couldn’t just accept that the pain she was feeling was normal, as many of them had told her. She wrote down her symptoms with as much detail as possible, recording the exact number of super-plus tampons she bled through on each day of her period, as well as tracing a silhouette of a human body and coloring each part that she’d felt pain in with red colored pencil. Alexa acknowledges, too, just how difficult it can be to believe your own pain when doctors don’t listen: “I didn’t fully trust my own pain until a doctor showed me photos of what endometriosis looked like inside of me.”

Alexa's Story
EndoTV: Dr. Purvi Parikh’s Latest Covid Update

This week on EndoTV, infectious disease doctor & Covid-19 researcher Purvi Parikh (NYU Langone Health) is back on with host Diana Falzone to discuss rising Covid cases and what to expect in the coming months. We aren’t out of the woods just yet, but we’re hopefully getting there.

Watch Now

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