Endometriosis Foundation of America: An Online Patient Community
Endometriosis in African Women: The Reasons Behind Unreported Cases & Lack of Access to Care

Endometriosis is currently being diagnosed in around 30-40% of women in Nigeria alone, yet treatment options and access to care in the African continent is limited. This week on the Blossom, Zainab Onuh-Yahaya speaks with African women in Nigeria, Ghana, and the UK to discuss their experiences with the disease and to cover the reason so many cases go unreported. One pharmacist who was diagnosed with endometriosis calls herself “lucky,” and explains that many people have trouble getting diagnosed and receiving proper treatment and  medication that could relieve their pain. Olivia Nwankudu, founder of EndoSurvivors International Foundation (ESIF), also speaks out about the need for educating young girls at an early age to ensure that they can recognize symptoms—and to date, ESIF has educated over 9,000 teenage girls in Nigeria on the symptoms of endometriosis under EndoFound’s ENPOWR Project.

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The Menstrual Health Project's Endometriosis Diagnostic Toolkit

Cofounder of the The Menstrual Health Project Gabriella ‘Gabz’ Pearson recently helped create a much-needed toolkit to provide practical support for those suffering from pelvic pain. On this episode of EndoTV, Gabriella discusses what you need to know about the Endometriosis Diagnostic Toolkit and how it can help women navigate their menstrual health to lead as normal of a life as possible.

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Dr. Martin on a Primary Cause for Delays in Diagnosis: Normalizing Pain

For Future of Personal Health, our scientific and medical director Dr. Dan Martin explains the primary cause for significant delays in diagnosing and treating endometriosis: doctors normalizing pain. “Normalization of pain is the idea that all women have pain, and therefore, their pain is usually normal,” Dr. Martin writes, “When the pain is normalized, a woman will not have a follow-up protocol with her physician. The doctor will tell her to come back ‘as needed,’ which she may not do as the pain increases because she is too afraid of being told again that it’s simply part of being a woman.” 

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Balance, Self-nurture, Care: How Anjali Found Pain Relief

In poetic and decisive language, Anjali shares how endometriosis has affected her life; she describes pain as a “state in which you must be as still as possible, otherwise, the sharp corner of a heavy wooden dresser weighing down on you will finally cave into your ovary and crush it into nonexistence.” Anjali also writes eloquently about how she not only found incredible relief through acupuncture, but also experienced personal growth through her struggles with this disease as well as through dance. You don’t want to miss this story—it’s one of perseverance, pain relief, and accepting your body and self throughout even its most difficult periods.

Anjali's Story
New Goods in Store this Spring!

Kick spring off with these new arrivals to the EndoFound Shop. From awareness sneakers and denim jackets to throw blankets, mugs, and stickers, we’ve got you covered this season to spread awareness about endometriosis as you purchase with purpose!

Shop EndoFound

Thank you to all our supporters who use Amazon Smile each time they shop! Haven’t selected a charity on Amazon yet? You can contribute to advancing cutting-edge endometriosis research and advocating for endo legislation by selecting EndoFound as your charity on Amazon Smile. EndoFound receives a .5% donation from all qualifying purchases and it's so easy! You must shop at smile.amazon.com to donate (bookmark the link here!).

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