When PhD candidate Allyson Bontempo set out to understand how endometriosis patients engage in online communities, she had hoped to recruit a modest number of survey participants—instead, she was met with a flood of interest in the survey. “In one survey that specifically addressed trust in health care providers,” Blossom reporter Lindsay Gray writes, “many respondents expressed frustration with a lack of medical knowledge of endometriosis and the breadth of its clinical manifestations, even among OBGYNs.” Now, Allyson’s hard at work on more research to improve patient care in endometriosis treatment.

The End Endo 5K is back this June 5-6 and Team EndoFound has already fundraised 82% of their goal! Want to make a critical impact on the future of endometriosis support and care? Join us in our mission to End Endo today or donate to the team’s efforts here!

This week, MSNBC executive producer Lauren Peikoff explains how the healthcare system places too much emphasis on endometriosis patients to find their own answers. Watch today for a journalist’s take on why it adds even more difficulty for patients to have to gather more information about the disease than the healthcare providers who are supposed to give them answers.

Annie’s endo story begins at age 15 when she began experiencing chronic back pain. Throughout the years, she started doing her own research and it clicked: “I have endometriosis.” "To anyone struggling with endometriosis," Annie writes, "I stand with you. You are not alone. There are millions of people in your shoes and on your side." Thank you, Annie, for sharing your story. 

Do you have a birthday coming up? Celebrate with EndoFound! Click here to set up your Facebook birthday fundraiser. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. Thank you to everyone across the country who has fundraised in support of endometriosis.

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