Endometriosis Foundation of America: ‚ÄčAn Online Patient Community

Margaret Cianci

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Our annual Patient Conference, Live Your Best Life with Endo, kicks off tomorrow evening at 6PM (ET)! Join us for a happy hour featuring mocktails and cocktails and a welcome from EndoFound co-Founders Padma Lakshmi and Tamer Seckin, MD, followed by actress and endometriosis advocate Lexie Stevenson’s keynote. Diana Falzone, journalist, endo advocate and EndoFound’s Director of Media Relations and Advocacy, is moderating the three-day conference.

We’re excited to go virtual from October 16th through the 18th to educate and support individuals, family members, friends, and the public about endometriosis, a disease that affects one in ten women in the United States. On Saturday and Sunday, presentations run from 1 pm to 4 pm and will include Q & A’s with leading endometriosis specialists.

Joining the weekend conversations are Les Henderson, Founder of endoQueer and host of the "Be a Beacon" podcast; New York-based writer, Eva Hagberg, who’s written for several publications including The New York Times and Wired, and is the author of the critically acclaimed, How to Be Loved: A Memoir of Lifesaving Friendship; Lauren Kornegay, founder of Endo Black; author, screenwriter, and EndoFound educator and advocate, Samantha Denäe; and Brianna Majsiak, Senior Health Producer at Everyday Health.

Education is key to early diagnosis and treatment. While we can’t be together in person, we can come together as a community for this important cause. The conference is free, but you must be registered to join. For the schedule of events and to receive our exclusive Virtual Goodie Bag (including our feature mocktail and cocktail recipe) register today.

In community,


Margaret Caspler Cianci
Executive Director, EndoFound

The Life Cycle: Virtual Patient Conference 2020

Endo is experienced differently at every age, and we can learn so much from the endo patients who are either just diagnosed and beginning their journey or patients who have been through decades of endometriosis symptoms. That’s why we created this panel: The Endo Life Cycle, featuring Dr. Deepa Barot, Natalie Vavricka, McCall Huey, and moderated by Mary Ray, co-founder of MyHealthTeams, which creates social networks like MyEndometriosisTeam, the largest social network for women living with endometriosis.

Register today!
Ask Harry is Back! 

Great news for our community! Dr. Harry Reich, known worldwide as a pioneer in the field of laparoscopic surgery, is renewing his renowned column, Ask Harry. Register today to submit your questions to be answered live by Dr. Harry Reich at the Virtual Patient Conference this weekend.

Ask Harry
Trigger Warning: Discussion of Eating Disorders

While an anti-inflammatory diet can help endometriosis patients manage their symptoms, diet management can negatively impact patients who also struggle with eating disorders. “Eating disorders are complex,” Elle Hurley writes, “but Dr. Lampert explains that they boil down to the need to exercise some control over our circumstances. When it comes to life with a chronic illness like endometriosis, it can frequently feel like everything is out of your control.”

Read More
Research Spotlight: Dr. Anna Pollack

Dr. Anna Pollack received an EndoFound grant in 2018 to study endocrine-disrupting chemicals in individuals with endometriosis. In this video spotlight, Dr. Pollack explains how our bodies are exposed to these chemicals all over the life course, which may affect the natural functioning of hormones. Studying these chemicals can help give new insight into which chemicals may increase the risk of endometriosis, can inform new policies to reduce exposure, and ultimately help decrease the risk they pose to the development of endometriosis.

Watch Now
It’s Back! The End Endo 5K

Registration is live for our second End Endo 5K on November 1st, 2020! Find your own course to walk, run, hike, bike, or even dance to raise money for endometriosis advocacy, awareness, education, and research. Not able to participate this time? Encourage a friend or family member to participate on your behalf or donate to help the team reach their goal.

End Endo Today

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