Endometriosis Foundation of America: ‚ÄčAn Online Patient Community

Margaret Cianci

Dear %Subscriber:CustomField1%,

Our annual Patient Conference is just one week away! We’re excited to bring you a host of panels and sessions designed for and by individuals with endometriosis. Diana Falzone, journalist and endo advocate, will be moderating the conference. Lexie Stevenson of the Young & the Restless will deliver our keynote address on Friday night. Dr. Karli Goldstein and Dr. Soyini Hawkins will present on Endo 101, and Dr. Goldstein will be joined by Dr. Adi Katz for Hidden & Asymptomatic Endometriosis: Why Physicians Misdiagnose Endometriosis.

We’ll also be kicking the weekend off with a special happy hour with a featured mocktail and cocktail from the Patient Advisory Committee, who helped plan this conference. Have your glasses ready!

This is just a teaser of our many inspiring speakers. Browse the full schedule of speakers, dates and times, and register today for free for an informative, supportive, and educational weekend.

In community,


Margaret Caspler Cianci
Executive Director, EndoFound

Hidden & Asymptomatic Endo: Virtual Patient Conference 2020

Why is endometriosis so hard for doctors to diagnose? At the Virtual Patient Conference, Dr. Karli Goldstein and Dr. Adi Katz will present on this critical topic, covering the specifics of what doctors should ask their patients, where to look for endometriosis lesions, and why asymptomatic endo is not really asymptomatic at all. Register today for the Virtual Patient Conference to build your endometriosis toolkit. The more you know, the more confident you can feel while fighting this disease.

Register today!
Endo 101: Adhesions vs. endometriosis

Dr. Harry Reich breaks down the misconceptions behind adhesions: “Endometriosis pain results directly from the inflammatory process going on inside of endometriosis lesions. Adhesions, when they bind the bowels, can cause their own pain, which is separate and different from endometriosis pain.” Another misconception? “Many believe that adhesions are a by-product of endometriosis or the endometriosis process. They are not!” Catch Dr. Harry Reich at the Virtual Patient Conference next weekend to answer more critical endometriosis questions by

Ask Harry
The Rare Story Behind Endosalpingiosis

Tabitha Frank was diagnosed with endosalpingiosis in 2014, not long after she gave birth to her son. She never heard of this disease and neither had the gynecologist who had performed her surgery. Endosalpingiosis is similar to endometriosis, but instead of endometrial-like tissue as occurs in endometriosis, tissue from the fallopian tubes is found outside of the tubes and elsewhere in the pelvic cavity. Endosalpingiosis is a very rare condition; there is no data on how many individuals have this disease, and there is currently little to no research being done to better understand the disease. Read Tabitha’s powerful call to action today.

The Story Behind Endosalpingiosis
Merve Aypak’s Endo Story

It took Merve Aypak twenty years to be diagnosed with endometriosis; twenty years of experiencing debilitating cramps, nausea, diarrhea, constipation, and even fever. From a young age, Merve explains that she was conditioned to accept that period pain was normal for women, especially because her mother was experiencing the same symptoms. “As periods are taboo in almost all cultures, it’s hard to talk about it, which takes a toll on your mental health,” Merve writes. “Your mental health takes the second biggest hit after your organs.” Thank you, Merve, for your story.

Merve’s Story
It’s Back! The End Endo 5K

Registration is live for our second End Endo 5K on November 1st, 2020! Find your own course to walk, run, hike, bike, or even dance to raise money for endometriosis advocacy, awareness, education, and research. Not able to participate this time? Encourage a friend or family member to participate on your behalf or donate to help the team reach their goal.

End Endo Today

Shopping from home? Consider using Amazon Smile to support EndoFound. We receive a .5% donation from all qualifying purchases if you select us as your charity.
Remember that you have to login at smile.amazon in order to donate. You can also simply follow this link.

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

Endometriosis Foundation of America - 872 FIFTH AVENUE NEW YORK, NY 10065
Phone: +1 646.854.3309 - endofound.org

[Unsubscribe] to no longer receive emails from Endometriosis Foundation of America.
Change your email settings at [Manage Subscriptions].

Disclaimer: The information contained on the Endometriosis Foundation of America ("EndoFound") web site and social media is provided for your general information only. EndoFound does not give medical advice or engage in the practice of medicine. The EndoFound under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

References to any entity, product, service, or source of information not related to the EndoFound in this site should not be considered an endorsement, either direct or implied, by the Endometriosis Foundation of America. The EndoFound does not recommend or endorse any specific tests, products, procedures, opinions or other information that may be provided on any linked web sites. The linked web sites may contain text, graphics, images or information that you find offensive. EndoFound has no control over and accepts no responsibility for such materials.

We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.