Endometriosis Foundation of America: ‚ÄčAn Online Patient Community
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days.
The Issue of Racism in Women’s Health

Margaret Cianci

Dear %Subscriber:CustomField1%,

We hope you’re taking care of yourself and your loved ones in an increasingly challenging and difficult time. The events of the past week are reminders of the injustices that persist throughout our society. We believe that strong change is needed to address the issues that the Black community faces in the United States. EndoFound will do all that we can to continue to be a strong ally for the people we serve.

Last week, we launched a new initiative, PeriodNow, to combat the vast disparities in access to menstrual hygiene products. PeriodNow is tackling period poverty by getting these products to people in need in New York City while also educating about endometriosis. Originally a response to the COVID-19 epidemic, our campaign is ongoing, and aims to get these supplies to as many people as possible in neighborhoods throughout the city. Prior to the pandemic, 1 in 5 women in the U.S. could not afford supplies for at least one month a year, and that number is increasing as a result of the pandemic. 

And we have more work to do. Today, women of color face more barriers to receiving proper endo diagnosis and treatment. As endo advocates, we have a duty to speak up about these differences and the large-scale inequities in the field of women's health.

We recognize that racism is a public health and women's health crisis. We pledge to look forward, become better partners, and work towards making endometriosis a more equitably treated disease. We pledge to listen, learn, and, as always, continue advocating for people with endometriosis.

Join us in this pledge.

In community, 
Margaret Cianci

Executive Director, EndoFound

Racial and Ethnic Disparities in Endo Diagnosis and Treatment
A 2019 study suggests that taking a patient-centered approach could help overcome a historical racial bias in the U.S. that endometriosis mostly affects white women and improve overall patient management.  The study titled, “Behind the Times: Revisiting Endometriosis and Race,” appeared in the American Journal of Obstetrics & Gynecology.
Today, women of color continue to face more barriers to receiving proper endo diagnosis and treatment. We want to help change this disparity, and we’ll start by sharing the research articles that highlight it.
Resources for Equity in Women’s Health

EndoFound believes it is necessary to spotlight organizations and resources that enact racial and social justice in public health and women’s health. Below you can find some of the many organizations that are working towards change in women’s health.

PeriodNow: Periods Don’t Stop for Pandemics

With unemployment at a record-high, many women can no longer afford essentials such as tampons and pads. Adolescents who depended on schools to provide them are no longer able to access these supplies. Last week, EndoFound launched PeriodNow to coordinate with local agencies, businesses, and non-profits to provide women and girls in NYC with the period supplies they need but can't afford or access.

Step up with PeriodNow for period equity. Your donation will distribute menstrual hygiene products to those in need, and with a donation of $85 or more on our website we will send you the exclusive EndoFoundxDuvet Days Endometriosis Anatomy tote bag. Together let’s get those in need the essentials they deserve.

Join PeriodNow!
Unsung Hero: An Endo Story

For confidentiality reasons, the author of this latest endo story has wished to remain anonymous. P.C., who was diagnosed at age 22, tried every non-traditional method to relieve her pain in order to feel in control. “I used geranium oils for fertility wellness. I’ve prayed to Ganesh to remove my obstacles. I lit candles to Virgin Mary wishing for a conception. I carried a gris gris bag to bring about my desires for kids. I ate pineapple core to make my uterus more hospitable. I ate an avocado a day for healthy fats. I put my legs above my head for hours post copulation. Nothing seemed to work.”

Thank you for your brave story, and thank you for your words of advice: “Try this: take a moment away and forget about all the doctor’s visits, support groups, surgeries, ultrasounds, needles, and just breath. I realize that’s easier said than done. I didn’t want to hear that when I was in the thick of it. So do what you need to do. This too shall pass.”

P.C.’s Endo Story
EndoNews: Endo & Infertility Patients During Covid-19

Over on EndoNews, Timur Seçkin covered the latest research by Rowe H. and Quinlivan J. on the neglected needs of endometriosis and infertility patients during the COVID-19 pandemic. With the global outbreak of the COVID-19, hospitals canceled surgeries and people are afraid of going to hospitals. However, chronic diseases still need to be managed.

Rowe H. and Quinlivan J. cover the neglected needs of women with endometriosis during the global COVID-19 pandemic. The authors review endometriosis and its link to infertility as well as the emotional cost during this difficult time.

Read more

Subscribe to EndoNews for the latest in endometriosis research from around the world, and contribute to these researchers’ mission to improve the lives of endo patients by donating today.

NYC Marathon: Team EndoFound

Team EndoFound is gearing up to run the 50th Anniversary NYC Marathon in November. Thank you to our runners for your critical and inspirational commitment to endometriosis. You can view their fundraising pages, including their stories on why they want to run for endometriosis awareness, here.

And we still have a few spots left on our team. Fill out the interest form below to run with Team EndoFound.

Join Team EndoFound

Thank you to everyone across the country who has fundraised in support of endometriosis. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. To create a fundraiser, please set up your fundraiser on Facebook.

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

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