Endometriosis Foundation of America: An Online Patient Community
Everything You Should Know About Infertility

It’s infertility awareness week, and we’ve got a few pieces from The Blossom to share on what you need to know about infertility as an endometriosis patient. First up, a piece covering the basic facts concerning infertility if you have endometriosis. Learn, too, about the steps you can take if you get diagnosed with infertility. Maybe you’re considering IVF—can the process differ for people with endometriosis? And if you missed it, here's recent Q&A with endometriosis excision specialist Dr. Karli Goldstein who answers commonly asked questions about infertility. We also urge you to check out our Patient Day and Medical Conference archives, where fertility specialists, patients, and endo excision surgeons deep dive into this critical concern. Plus, this inspiring endo story we published a few months ago about how one woman chose to adopt after having a child naturally, even after multiple IVF cycles, was no longer an option for her.

Infertility as an Endo Patient
Fundraising Spotlight: Joanna Santos, Diagnosed with Endo in 1990

Joanna Santos, who was diagnosed with endometriosis in 1990 at the age of 22, has had 14 surgeries over the years, the final surgery being a hysterectomy. At the time, Joanna explains, there was no internet and she didn’t know a single person who also had the disease. Today, she’s in her 6th year of a social-media campaign to raise awareness: she wore yellow every day and invited her Instagram followers to join her, fundraising near 2K. “Every year when I fundraise and post about endometriosis," Joanna says, "I’m always shocked by how many people have still never heard of the disease. That’s the reason I do my wear yellow style challenge every year, to get the word out and help women like myself. It’s what I wish someone would have done for me all those years ago.”

Fundraise for Endometriosis
A Love Letter to a Partner with Endometriosis

TW: Suicide idealtion and self-harm. This week on Endo Stories, we’re featuring the perspective of a male partner who shares his intimate experience supporting his partner with endometriosis. Lucjan met his wife in dance class, and soon after they married she began experiencing extreme pain with her periods and struggled with extremely difficult mental health issues. Post-diagnosis, Lucjan explains how their marriage and communication with one another improved: they had an answer, and they could speak openly about difficulty in a way they weren't able to before. Today, Lucjan runs a blog to help support partners—particularly cis-men—understand what their loved one is going through. 

Lucjan's Story
New Goods in the EndoFound Shop!

Kick spring off with these new arrivals to the EndoFound Shop. From awareness sneakers and denim jackets to throw blankets, mugs, and stickers, we’ve got you covered this season to spread awareness about endometriosis as you purchase with purpose!

Shop Endo Gear

Thank you to all our supporters who use Amazon Smile each time they shop! Haven’t selected a charity on Amazon yet? You can contribute to advancing cutting-edge endometriosis research and advocating for endo legislation by selecting EndoFound as your charity on Amazon Smile. EndoFound receives a .5% donation from all qualifying purchases and it's so easy! You must shop at smile.amazon.com to donate (bookmark the link here!).

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Disclaimer: The information contained on the Endometriosis Foundation of America ("EndoFound") web site and social media is provided for your general information only. EndoFound does not give medical advice or engage in the practice of medicine. The EndoFound under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

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