Endometriosis Foundation of America: ‚ÄčAn Online Patient Community

Margaret Cianci

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Educating the next generation of medical professionals is essential to diagnosing and treating endometriosis. Yadira Ramos, a physician who suffers from endometriosis, highlights just how important it is in this week's Endo Story.  

Research is key to diagnosing endometriosis sooner and by less invasive means. Read about researcher Dr. Katie Burns who received her diagnosis in college. After three surgeries and treatments to chemically induce menopause, tests for IBS/celiac disease, trips to pain clinics, hypnosis, acupuncture, radical diet changes, and more, she decided to become an endometriosis researcher.

These women are working to lessen the 7 to 10 year diagnosis delay. You can help, too. Now, more than ever, EndoFound is asking that you consider an end-of-year donation. We understand that many causes need your support, particularly during these challenging times. At any level, your contribution will change the lives of so many individuals. Thank you for helping us weather this storm and ensuring that we will emerge from this period a stronger community.

In community,

margaret

Margaret Caspler Cianci
Executive Director, EndoFound

A Researcher Working to Find a Cure
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Dr. Katie Burns, an Assistant Professor at the University of Cincinnati College of Medicine, was recently interviewed on local TV station WCPO about her work towards finding a cure for endometriosis. Dr. Burns, an endo patient herself, received seed funding from EndoFound in 2017 and 2018 that led to two NIH grants. Read more about what drives her research on endometriosis with an interview we did with Dr. Burns here.

Katie Burns’ Research
We are so close! Can you help us End Endometriosis?
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Team EndoFound is 67% to our goal to End Endometriosis and we need your help to reach our goal! You have 4 days left to donate and help Team EndoFound secure a dollar-for-dollar match from an anonymous donor. Every dollar counts to adapt endometriosis education to online learning, fund cutting-edge research on treatment and diagnosis, advocate for endometriosis care on the state and national level, and promote disease recognition in our broader communities. Please share widely with friends and family to End Endometriosis.

Help Us Reach Our Goal
Chronicles of Pain: Yadira Ramos’ Endo Story
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On EndoStories, Yadira Ramos chronicles her last year of pain, from misdiagnoses to a hysterectomy just a few months ago. Yadira, who is an emergency room physician, experienced pain since her first period, and despite learning about endometriosis in medical school in the 2000’s, never thought she may have it. This past year, she decided to create a journal to record her journey of living with endo, and we’re thankful she has shared her story with our community.

Yadira’s Story
Endometriosis & Mental Health
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Our friends at The Trinidad and Tobago Endometriosis Association host a monthly talk series on endometriosis and this month’s event focuses on mental health endometriosis care. Latia Lee, registered nurse, endometriosis patient, and dedicated member of EndoFound’s Patient Advocacy Committee, will be speaking on Saturday 21 November, 2020, 7pm, joined by Madixia Broomes and Karen Hinkson. Register today!

Register
Save the Date! Giving Tuesday is December 1st
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Giving Tuesday is an opportunity for people around the world to stand together in unity and to use their individual power of generosity to remain connected and support their communities.
We will be sharing ways you can participate in Giving Tuesday while making a meaningful impact to fund landmark endometriosis research. Stay tuned and mark your calendar!

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