Endometriosis Foundation of America: ‚ÄčAn Online Patient Community

Margaret Cianci

Dear %Subscriber:CustomField1%,

The passing of Supreme Court Justice Ruth Bader Ginsburg is a profound loss. For generations, she has guided the national dialogue and the highest court in this country on gender equality, the importance of stemming discrimination, women's healthcare rights, and so much more.

Justice Ginsburg inspired a nation, even becoming an icon to today's younger generations, who dubbed her "Notorious RBG."

She was fierce in her beliefs and a calming presence on the bench and opened our minds to the infinite possibilities of dialogue and cooperation. In that spirit, we will continue raising our voices, ensuring that endometriosis and women's reproductive health remain a priority in this country.

In community,

margaret

Margaret Caspler Cianci
Executive Director, EndoFound

Virtual Patient Conference 2020
Webinar

It’s here! The full schedule for our first virtual patient conference is now live. From informative panels and sessions on extra-pelvic endo, mental health, nutrition, patient advocacy, and more, the Virtual Patient Conference will arm you with all the tools you need to live your best life with endo. Browse the full list of speakers, dates and times, today—and more speakers will be added shortly.

Register today!
EndoFound's New Scientific & Medical Director
Webinar

We’re excited to welcome Dr. Dan Martin as EndoFound’s first scientific and medical director. A retired gynecologist and specialist in excising endometriosis, Dr. Martin will help answer questions that patients and medical professionals bring to EndoFound while also improving and expanding the Foundation’s education initiatives. “I’ve been teaching forever, and I will continue to help EndoFound educate,” Dr. Martin says. “I’ve always said that, as a surgeon, you look for what you know and you see what you look for, but if you don’t know to look for it, you don’t see it. That’s especially true with endometriosis.”

Read More
Giving Back: Leslie Patriarco’s Endo Story
Webinar

Leslie Patriarco spent years looking for answers for why she was experiencing so much pain. Despite endometriosis coming up frequently on her online search for answers, Leslie thought there was no way—her doctor had already said there was no chance she had endo. But she continued doing her research and advocating for herself. “After finding EndoFound’s website,” Leslie writes, “I read about every single thing I had been feeling for years in the patient testimonials and informational section.” Now, Leslie’s giving back by not only sharing her own story, but also launching a fundraiser for endo awareness through One Hope Wine. Thank you, Leslie!

Leslie’s Endo Story
Endo 101: Top 10 Signs You Need a New Endo Specialist
Webinar

Next up in Endo 101 from Ask Harry is tell-tale signs for when you should find a new endometriosis specialist. From doctors who forcefully recommended a hysterectomy to those who perform a laparoscopy without a biopsy, pictures, or video, Dr. Harry Reich’s top-ten checklist for steering clear of ineffective doctors is comprehensive and can help you find the right treatment for your endometriosis.

Ask Harry
Charity Streaming for EndoFound: Mellana
Webinar

Recently, Twitch Partner Mellana hosted a 30-hour stream-a-thon on Twitch for endometriosis support and awareness, raising nearly $1,000. Mellana raised money for her best friend, Melissa. “I had no idea about the hardships that those with endo endure,” Mellana says, “so I was really moved by her constant strength battling this disease.” Mellana is a Twitch partner, so she naturally chose to stream as a fundraising platform. “Melissa is beloved in the gaming community that I am deeply involved in,” Mellana adds, “so it's no surprise to know that others wanted to support her in her fight as well.” Thank you, Mellana, for your generosity and support. If you’re a gamer and want to stream for EndoFound, learn more in the link below. 

Set up your charity stream today

Do you have a birthday coming up? Celebrate with EndoFound! Click here to set up your Facebook birthday fundraiser. From birthday fundraisers on Facebook to running 5Ks, you make it happen. With your help, we can continue working towards increasing endometriosis awareness, education, advocacy, and research. Thank you to everyone across the country who has fundraised in support of endometriosis!

Follow the EndoFound on social media and be the first to hear about new research, program updates, or different ways to get involved. Our platforms provide a safe and supportive environment to connect people from around the world. Please visit our Facebook, Twitter, or Instagram and give us any feedback you may have by commenting on our posts or direct messaging us!

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We hope that you find endofound.org useful in providing information and in helping you make your own health care decisions.