The Blossom Newsletter is a weekly endo community newsletter with the latest news on research, legislation, education, health and wellness, and patient stories. EndoFound continues to gather information and updates from the endo community and will share them with you here. The times are changing, but today and for many days to come, we are one.
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Painting NYC Yellow at the 2021 TCS NYC Marathon We’re honored to be a charity partner with New York Road Runners Club for the TCS New York City Marathon (this November 7th, 2021!), and we’re thrilled to introduce you to Team EndoFound!…
I Never Believed It Could Be Endometriosis Kayla experienced severe stomach pain since she was six. At 20, other debilitating symptoms began. “Most days,” Kayla writes, “I’m still unable to process what I’ve been…
The Endometriosis Events of 2022 Our annual Medical Conference, Patient Day, and Blossom Ball are officially booked for 2022. Throughout the past year, we still came together virtuallly to bring you Patient Day and Medicial Conference. Now,…
Endometriosis & Pain Medication: What You Need to Know Last month, Amy Ganner from Derbyshire, UK, accidentally overdosed on her pain medication due to endometriosis-related pain, causing her tragic death. On EndoTV, EndoFound’s scientific…
Menstrual Blood Cells May Be Key to a New Diagnostic Test ROSE researcher Dr. Christine Metz tackles two significant barriers to endometriosis care: delayed diagnosis and lack of effective treatment. The ROSE research team (winner of the 2018…
How Gendered Language Harms Non-binary Endometriosis Patients Studies have highlighted that non-binary and trans people are more likely to experience discrimination in a medical setting and are more likely to struggle to access medical services.…
All Your Endo Q’s Answered: Introducing Ask the Doctors During patient and medical conferences in the past few years, the endo community had so many critical questions to the featured doctors and experts. Now, we’ll finally be able…
Together, we went 1097 miles to end endo Our 3rd End Endo 5K took place last weekend, and 354 participants ran, walked, biked, hiked, and even horseback rode to end endo. Team EndoFound has already raised over $32,000 and they’re still…
The End Endo 5K Kicks Off This Weekend! The June End Endo 5K is this weekend! From Texas to Québec, we have over 300 Team EndoFound members coming together to end endo across the map. These folks have raised an unprecedented amount of…
The Endo Experience Through Dance: EndoGirl Endo Girl, a short documentary dance film, portrays the endometriosis experience through dance. Directed and produced by Australian filmmaker Sophia Bender, the film tells the story of thirteen people…
Examining the Patient & Provider Relationship in Endometriosis Care When PhD candidate Allyson Bontempo set out to understand how endometriosis patients engage in online communities, she had hoped to recruit a modest number of survey participants—instead,…
An Exclusive Interview with Abby Finkenauer Abby Finkenauer, former Congresswoman for Iowa, made national headlines when she courageously shared her struggle with endometriosis on the House floor to announce the historic House Endometriosis…
Why I Don’t Believe in Permanent Endometriosis Remission: A Personal Essay Live on the The Blossom, endometriosis patient and writer Tara Mandarano pens a powerful personal essay on endometriosis remission, which an endometriosis expert…
Registration is Now Live! The 3rd End Endo 5K Registration is live for EndoFound's third End Endo 5K! Individuals with endometriosis need your help now to adapt endometriosis education to online learning, fund cutting-edge research on endometriosis…
Working with Endo: Three Perspectives Endometriosis is not one size fits all, and endometriosis patient, writer, and advocate Elle Hurley demonstrates exactly this in her latest piece interviewing three patients on what it’s like to work…
Endometriosis Pain: Recent Research & Finding Relief The exact connection between endometriosis and pain is still not well understood. Pain levels are also difficult to compare in different people. “While a pain scale is one tool,”…
Adenomyosis Awareness Month Read up on everything you need to know about adenomyosis, a common, often painful condition where cells from the inner lining of the uterus (the endometrium) infiltrate the muscular layer of the uterus (the myometrium).…
The Importance of Advocating for Yourself, A Trusted Doctor, and Menstrual Leave: An Interview with Olivia Culpo In a powerful and candid interview, model, actress, and businesswoman Olivia Culpo opens up about her endometriosis journey and…
Connecting Patients with Science: Highlights from the International Patient Conference Did you miss this year’s International Patient Conference? Covering fertility, the importance of early intervention, alternative treatments, and so…
This Weekend! The Path Towards a Cure The 2021 Global Patient Conference: The Path Toward a Cure starts tomorrow night at 7PM (EST) and again on Sunday from 11 - 3:30 PM (EST)! Registration is free and the virtual conference is designed to…
Squash the Silence! March into Awareness Let’s spread the word about endo! We’re excited to announce our endometriosis awareness campaign to squash the silence when it comes to this disease. To participate, film and share a short…
Endo Awareness Month Events Around the World Happy Endometriosis Awareness Month! Endometriosis is challenging for so many reasons, but feeling isolated can be particularly overwhelming. Endometriosis Awareness Month is the chance…
The Researchers at the Forefront of Non-Invasive Endometriosis Treatment Dr. Tanya Petrossian and Dr. Katherine Burns, who were each awarded EndoFound research grants, teamed up to work on disease-modifying therapeutics that will ideally leave…
Reserve Your Spot: 2021 Patient Conference Every year, we host a conference designed to equip patients with all the tools and information they need to live their best lives with endometriosis. This year, we’re delighted to partner with…
Sign Up Now! Mind, Body, & Soul Wellness Challenge Kick off endometriosis awareness month on March 1st with our Mind, Body, Soul Wellness Challenge! Participation is simple: do what makes you feel good every day while tracking your steps…
The Endometriosis Surgical Fellowship Application We’re excited to announce our endometriosis fellowship, EndoFound's first exclusive endometriosis surgical fellowship to be established in the United States. There is a desperate need…
Missed the 2020 Medical Conference? Last weekend’s live Q&A from the Reoperative Endometriosis Medical Conference covered critical topics from fertility to the risks of ovarian cancer. Most critical—several endometriosis specialists…
Working through Pain: Endo in the Writers’ Room In EndoTV’s debut episode of "Let's Talk...Period," Rachel Langer, co-producer of Transplant (NBC), talks to Diana Falzone about how endometriosis affected her as she worked in the…
Dear %Subscriber:CustomField1%, Thank you to every person who made the last year more strengthening and supportive for individuals with endometriosis. We have been through an extremely challenging year, and after what this country experienced…
The Reoperative Endo Q&A is this weekend! Join endometriosis experts including Dr. Tamer Seckin, Dr. Harry Reich, Dr. Dan Martin, Dr. Togas Tulandi, Dr. Ie-Ming Shih, Dr. Marc Possover, Dr. Philippe Koninckx, Dr. Errico Zupi, Dr. Farr…
Dear %Subscriber:CustomField1%, Before we ring in the New Year, I want to take a moment to acknowledge how strong this community is and how much we can accomplish together. This week's news of Congress doubling endometriosis research funding…
Dear %Subscriber:CustomField1%, In this season of giving, please consider donating to support the millions of individuals living with endometriosis. As endometriosis parent and board member Jody Grobman says, “EndoFound is an amazing…
Introducing EndoTV We’re excited to announce the launch of Endo TV for January 2021. Endo TV is a women's health channel*. Diana Falzone, veteran journalist and EndoFound's Director of Media Relations and Advocacy, is leading the digital…
Dear %Subscriber:CustomField1%, This week on #GivingTuesday, EndoFound launched its 200 for 200 fundraising campaign, supporting the 200 million individuals worldwide who have endometriosis. Thank you to those who've already started fundraising…
Dear %Subscriber:CustomField1%, Thanksgiving is almost here, but for many of us, it will look very different this year, given that most of us aren't able to gather with our loved ones to celebrate. It's going to be challenging being so close…
Dear %Subscriber:CustomField1%, We couldn't let this year slip by without rescheduling our annual medical conference, ReOperative Endometriosis. We're excited to share that the virtual conference featuring endometriosis experts from around…
Dear %Subscriber:CustomField1%, Educating the next generation of medical professionals is essential to diagnosing and treating endometriosis. Yadira Ramos, a physician who suffers from endometriosis, highlights just how important it is in this…
Dear %Subscriber:CustomField1%, Thank you to everyone who participated in the virtual End Endo 5K on Sunday. This year has been incredibly hard for so many, and we appreciate everything you do to support EndoFound's programs, legislative advocacy,…
Dear %Subscriber:CustomField1%, The endometriosis community is so resilient. It's empowering to witness the camaraderie and support you offer to one another. As we embark on the final two months of what has been a life-changing year for so…
Dear %Subscriber:CustomField1%, Thank you for joining us for the Virtual Patient Conference! Curated by our Patient Advisory Committee, the conference included everything from patient stories to the latest in care from endometriosis experts.…
Dear %Subscriber:CustomField1%, Our annual Patient Conference, Live Your Best Life with Endo, kicks off tomorrow evening at 6PM (ET)! Join us for a happy hour featuring mocktails and cocktails and a welcome from EndoFound co-Founders Padma…
Dear %Subscriber:CustomField1%, Our annual Patient Conference is just one week away! We’re excited to bring you a host of panels and sessions designed for and by individuals with endometriosis. Diana Falzone, journalist and endo advocate,…
Dear %Subscriber:CustomField1%, Our annual patient conference is only two weeks away! For the past few years, EndoFound’s patient conference has served as a time when the patient community can come together and seek answers across a wide…
Dear %Subscriber:CustomField1%, The passing of Supreme Court Justice Ruth Bader Ginsburg is a profound loss. For generations, she has guided the national dialogue and the highest court in this country on gender equality, the importance of stemming…
Dear %Subscriber:CustomField1%, As our community knows too well, endometriosis treatment and support is vastly under-funded and it continues to be an incredibly difficult disease to diagnose and treat. People of color face these barriers in…
Dear %Subscriber:CustomField1%, Today is World Suicide Prevention Day. Each year, countless lives are lost to suicide. According to a BBC study released last fall, more than half of the 13,500 women with endometriosis who shared their stories…
Dear %Subscriber:CustomField1%, Labor Day weekend is here, and I want to give a shout-out to all of you who work so hard. It's not easy planning a career or even getting to work with endometriosis. We still have a lot of work to do when it…
Introducing the Period Game!
Introducing the Period Game!
Introducing the Period Game!
Dear %Subscriber:CustomField1%, Last week the house approved Rep. Abby Finkenauer’s push to double federal research funding for endometriosis and the amendment now moves to the Senate. This is such great news for the endo community. Let’s…
Dear %Subscriber:CustomField1%, We’re excited to share huge news for the endometriosis community: yesterday, Rep. Abby Finkenauer’s amendment to double federal research for endometriosis passed through the House of Representatives,…
Dear %Subscriber:CustomField1%, Thank you for sharing your tips in the Endo Tip Jar. Your suggestions were so helpful, and we’re excited to share them with you each week. Missed sharing your tip? You can still share in the Endo Tip Jar.…
Dear %Subscriber:CustomField1%, You know your body best, and you know what endo tips work for you when it comes to managing symptoms. We are including an Endo Tip of the Week in our newsletters from now on, and we want to hear from you. We've…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Putting Patients First Dear %Subscriber:CustomField1%, One of the most startling endometriosis statistics is the 7-10 year delay in diagnosis. Endo patients suffer from misdiagnosis…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Dear %Subscriber:CustomField1%, As we see COVID-19 cases increasing across the country this week, we know that elective surgeries are once again being affected. From everything…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Dear %Subscriber:CustomField1%, Summer is upon us, and we're hoping you've been able to enjoy the warmth and sunshine while prioritizing your health. June is Pride Month and an…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Towards Change & Actionable Support Dear %Subscriber:CustomField1%, As we all know too well, endometriosis is a difficult disease to diagnose and treat. The stigma surrounding…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. The Call for Change in Women’s Health Dear %Subscriber:CustomField1%, We hope you are feeling physically and emotionally well in this week of reflection, action, and education.…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. The Issue of Racism in Women’s Health Dear %Subscriber:CustomField1%, We hope you’re taking care of yourself and your loved ones in an increasingly challenging and difficult…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Periods Don’t Stop for Pandemics Dear %Subscriber:CustomField1%, Before the COVID-19 pandemic, it's estimated that 1 in 5 women in the U.S. had to decide whether to spend…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Funding Critical Research that Could One Day Lead to A Cure Dear %Subscriber:CustomField1%, As we continue living in a world that calls for social distancing and the wearing of…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Endo Education Begins with Young People Dear %Subscriber:CustomField1%, I hope you’re doing well this week as stay-at-home orders are slowly changing state-by-state. As always,…
Announcing our Endo & Covid-19 Resource Hub Dear %Subscriber:CustomField1%, As we closed out Endometriosis Awareness Month and rolled into April, we knew the landscape was forever changed. One thing that hasn't changed is our mission…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Announcing #GivingTuesdayNow Dear %Subscriber:CustomField1%, I hope you are healthy and taking care of yourself as best as you can. This continues to be a difficult time, especially…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Announcing EndoFound's Next Webinar: Back to Basics Dear %Subscriber:CustomField1%, How are you doing? Based on the information we have, endo patients continue to be affected by…
Artwork: "Endometriosis Anatomy" by Jenna Wiebe of Duvet Days. Thank You for Your Support of the Endo Community Dear %Subscriber:CustomField1%, In this challenging time of the COVID-19 pandemic and stay at home orders, it is all the more important…
April 2020 Artwork: “Endometriosis Anatomy” by Jenna Wiebe of Duvet Days. Endo & COVID-19: EndoFound’s First Webinar Thank you to everyone who attended EndoFound's first webinar, COVID-19…
April 2020 Artwork: “Endometriosis Anatomy” by Jenna Wiebe of Duvet Days. Closing Out Endo Awareness Month We hope you’re doing well as we close out Endometriosis Awareness Month and enter…
There are an estimated 200 million endometriosis patients worldwide, and each endo story is as unique as a fingerprint. What's your story? Below, a few participants bravely stand in their truth, in hopes of forever squashing the silence surrounding…
The holidays are near, and we're filled with cheer: our 2nd Annual Holiday Bazaar will soon be here! Vendors can sell, and shoppers can scoop up exclusive gifts—all for a good cause! Plus, how can you tell whether or not you've found the…
Change is on the horizon! Read on to learn about The Endometriosis Foundation of America's #LetsTalkPeriod campaign, which could help millions of students learn about endometriosis.
Let's teach the next generation about endometriosis—together! You only have a few days left to donate to ENPOWR's $50K fundraiser to create an educational endo 101 video. Our community is abuzz about CBD oil—but experts warn: buyer beware.…
Class is back in session, and we've got a valuable lesson: our endometriosis ENPOWR program turns 5! Find out our plan to educate thousands of schoolchildren around the world—but we need your help! Thinking about shelling out $10K a year…
There are 200 million endometriosis stories out there just waiting to be told. What's yours? One woman recounts her combined 22 hours of endo surgery, while another confides endo silently killed her kidney, further driving home the urgent need…
Change is on the horizon! Read on to learn about The Endometriosis Foundation of America's #LetsTalkPeriod campaign, which could help millions of New York students learn about endometriosis. Plus, a trans man shares his harrowing endo-related…
Just ICYMI: May was Pelvic Pain Awareness Month, and we highlighted a massage therapist who is helping to comfort his endometriosis clients from the outside in. After a long battle with infertility, former Sister Sister star Tia Mowry welcomed…
The month of April brought spring showers—and a downpour of incredible stories from fearless and fierce endo women. Ahead, you'll find an exclusive interview with Julianne Hough who reveals her family plans with husband Brooks Laich, an endo…
There was hardly a dull moment during Endometriosis Awareness Month as women around the world rallied together to demand a brighter future for endo women everywhere. Ahead, you'll find all the can't-miss-moments from The Blossom like Patient…
Just in time for Endometriosis Awareness Month, we've given a fresh update to our Blossom newsletter. Below, you'll find a captivating self-portrait from one of our readers, and top trending articles from The Blossom. Happy reading!
Welcome to The Blossom Letter, a creative space where women impacted by endometriosis share advice, personal stories, artwork and more. We aim to lessen the stigma surrounding this disease by celebrating the beauty of the community. It’s…
Welcome to Endofound's publication, The Blossom Letter. The Blossom Letter serves as a space in which people impacted by endometriosis share their creativity, everyday endo advice, personal stories, and more. We aim to lessen the stigma surrounding…
Welcome to Endofound's new publication, The Blossom Letter. The Blossom Letter serves as a patient-centered online space in which we share our creativity, everyday endo advice, personal stories, events, and other contributions from our supporters.…
Welcome to Endofound's new publication, The Blossom. The Blossom will serve as a patient-centered online space in which we share our creativity, everyday endo advice, personal stories, events, and other contributions from our supporters. We…
